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248 total results

Comments (230)

Hello everyone. I was diagnosed with WM in February of 2023 at the VA Medical Center...

https://connect.mayoclinic.org/comment/1074718/

I was diagnosed with WM in February ... the emphysema and did not treat the WM ... Does anyone else here have WM AND emphysema

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

I don't know how old you are but I did the Wm Hot breathing and ice...

https://connect.mayoclinic.org/comment/1208880/

know how old you are but I did the Wm

Discussion: Use of a sauna with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11 8:44am

Hi @artmulh, I look forward to learning more about you. Having attended two of the IWMF...

https://connect.mayoclinic.org/comment/1026606/

Waldenstrom's macroglobulinemia (WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

My knee has a dent in it if I kneel on it are my bones soft...

https://connect.mayoclinic.org/comment/840192/

kneel on it are my bones soft with WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

My daughter was first diagnosed with MGUS and now WM. Had several chemo treatments, which seems...

https://connect.mayoclinic.org/comment/899545/

first diagnosed with MGUS and now WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2023

@valleygirl1955: I sure sympathize with the piriformis butt/hip pain. Do you also suffer from sciatica? I...

https://connect.mayoclinic.org/comment/1397753/

If you goggle WM arch supports you should

Discussion: Does anyone else have issues with piriformis

Support Group: Bones, Joints & Muscles

Posted: 12 hours ago

Good morning everyone. I have been looking into turmeric recently and want to share a video...

https://connect.mayoclinic.org/comment/248815/

tab=wm#inbox/KtbxLwGzbrVXjMgwjkfMsbmcMJQxjxnmRL

Discussion: Recipes, Food Tips, Healthy Eating & More

Support Group: Just Want to Talk

Posted: Mar 1, 2019

I was diagnosed with WM early this past summer, after a bone marrow biopsy. My symptoms...

https://connect.mayoclinic.org/comment/1246490/

I was diagnosed with WM early this past ... them rough this and back to treating WM

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27 9:35am

My daughter has WM and is on 3 chemo drugs. It's been less then a year...

https://connect.mayoclinic.org/comment/863347/

My daughter has WM and is on 3 chemo

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2023

At this point seems to be NMZL; however when I asked about WM SMM the oncologist...

https://connect.mayoclinic.org/comment/752396/

be NMZL; however when I asked about WM

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2022

Suznsl. Thanks for the reply. Sorry you had to undergo plasmapheresis but I am glad you...

https://connect.mayoclinic.org/comment/1231939/

targeted therapies will keep your WM

Discussion: Anyone have zanubrutinib/Brukinsa denied?

Support Group: Blood Cancers & Disorders

Posted: Feb 8 1:52am

I was diagnosed with WM in 2015. As of yet, I am stable, no symptoms, no...

https://connect.mayoclinic.org/comment/70603/

I was diagnosed with WM in 2015.

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2017

Thanks Lori. Yes, I have received two shots and the booster a couple of years ago,...

https://connect.mayoclinic.org/comment/923249/

biopsy and determined that I have WM ... during that time turned my MGUS into WM

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023

Welcome @sagenest. It sounds like your diagnosis of Waldenstrom's is being managed by active surveillance or...

https://connect.mayoclinic.org/comment/963733/

can connect with others living with WM

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

I was diagnosed with WM in 2014. Since then, data shows that certain mutations, MYD88 and...

https://connect.mayoclinic.org/comment/662308/

I was diagnosed with WM in 2014.

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Welcome to Connect, @weissmntc. You’ve just been handed a new diagnosis of Waldenstrom Macroglobulinemia. I’m sure...

https://connect.mayoclinic.org/comment/981542/

who have also been diagnosed with WM ... found a few links for you regarding WM ... It’s not just for WM.

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Hello @marymoreau1948, Welcome to Mayo Connect. There are several other members in our support group who...

https://connect.mayoclinic.org/comment/844573/

to an educational opportunity for WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 17, 2023

I have just been diagnosed with WM and am on a watch and wait as well....

https://connect.mayoclinic.org/comment/812471/

I have just been diagnosed with WM and

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023

Hi @fyrizonly, I can understand the unsettling feeling of not knowing what to expect, especially when...

https://connect.mayoclinic.org/comment/970011/

, especially when your husband has WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

Hi,so glad to read your note. I have also just been diagnosed with WM and have...

https://connect.mayoclinic.org/comment/812531/

have also just been diagnosed with WM

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023