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188 total results
Comments (171)
I was also recently diagnosed with Sjögren’s syndrome, chronic ITP with platelets as low as 11...
I was also recently diagnosed with Sjögren ... ’s syndrome, chronic ITP with platelets ... marrow biopsies, ultrasounds, MRI’s, ... didn’t remove all my CRSP pain or Sjögren ... ’s syndrome pain it helped dramatically
@elmay - I have been through similar misery. I had been suffering with a then undiagnosed...
Part of this was Sjögren like symptoms ... their departments mention treatment of Sjögren ... ’s.
Support Group: Autoimmune Diseases
Posted: May 16, 2020
I can’t believe I found someone that has the same thing . I just woke up...
Unfortunately that’s only one of the ... neuropathy and autoimmune disease called Sjögren ... ’s.
Support Group: Sleep Health
Posted: Mar 9, 2024
I was recently just diagnosed... well let’s say it came back with two possibilities from my...
recently just diagnosed... well let’s ... with autoimmune diseases of MCTD and Sjögren ... ’s.
Support Group: Skin Health
Posted: Jan 14, 2021
But, what are your symptoms? I see you mentioned “have had”…. But what are experiencing now?...
joint pain, fatigue, maybe Raynaud’s ... connective tissue disease (lupus, Sjögren ... ’s, dermatomyositis, etc.). ... ANA, photosensitive rashes, Raynaud’s, ... my labs are totally fine and that’s
Support Group: Autoimmune Diseases
Posted: Mar 1, 2025
Hi new friend! Welcome to the special club called: Messed Up Immune System Club!! This club...
symptoms like lupus, scleroderma, Sjögren ... ’s disease with a positive ANA… but… ... on to develop into having lupus or Sjögren ... ’s disease, etc. within about 5 years ... It’s really mentally hard to come to
Support Group: Autoimmune Diseases
Posted: Jul 26, 2025
Here’s my story: for a long long time, I thought I had “allergies” which caused itchy...
Here’s my story: for a long long time ... I decided I had Sjögren’s syndrome because ... judgment (was I on the right track with Sjögren ... ’s?) ... I don’t have Sjögren’s (at least for
Support Group: Autoimmune Diseases
Posted: Apr 11, 2023
So sorry you are having this terrible pain. I feel for you, wish there was some...
hydroxychloroquine for my auto immune Sjögren ... ’s. ... helps me, you may not like it, but it’s
Support Group: Neuropathy
Posted: Aug 15, 2021
It is actually an auto immune disease, not “caused by”. There are many Auto immune diseases....
I was subsequently diagnosed with Sjögren ... ’s syndrome. ... Reynauld’s phenomenon, Fibromyalgia ... There’s also one key element left out
Support Group: Autoimmune Diseases
Posted: Oct 7, 2021
I have severe axonal sensorimotor polyneuropathy. I have lost feeling in my legs and hands. Constantly,...
pain has moved into my ribs and it’s ... are also testing me for seronegative Sjögren ... ’s syndrome (misspelled). ... It’s been proven to take up to three
Support Group: Neuropathy
Posted: Jun 29, 2024
Ooooo, I know this one! It sounds an awful lot like you have fallen into the...
It’s a nebulous term/condition that ... tissue diseases (lupus, scleroderma, Sjögren ... ’s, dermatomyositis). ... positive test results to say that it’s ... Sometimes it’s called “probable lupus
Hello @suzetteirons, I’m very sorry you continue to struggle. Sjogren’s is tough to diagnose as individuals...
Sjogren’s is tough to diagnose as individuals ... It’s too bad more hospitals don’t do ... the presence of antibodies common in Sjögren ... ’s syndrome. ... salivary glands just under the lip’s