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468 total results

Comments (398)

I also have Ashkenazi Jewish in my background and was just diagnosed with osteopenia (scores -1.3...

https://connect.mayoclinic.org/comment/771941/

weight-bearing exercise that my hypermobile Ehlers

Discussion: Just diagnosed with osteoporosis. What are my options?

Support Group: Osteoporosis & Bone Health

Posted: Nov 11, 2022

You can call the EDS Clinic directly and ask to be put on the wait list;...

https://connect.mayoclinic.org/comment/867873/

www.mayoclinic.org/departments-centers/ehlers-danlos-syndrome-clinic-florida

Newsfeed Post: EDS Clinic Updates, EDS Awareness

Blog: Ehlers-Danlos Syndrome

Posted: May 27, 2023

Please get evaluated for nephroptosis! I have Ehlers Danlos with the same pain you describe. My...

https://connect.mayoclinic.org/comment/1010913/

I have Ehlers Danlos with the same pain

Discussion: Pain right side close to the belly button - transverse colon ptosis

Support Group: Digestive Health

Posted: Feb 6 8:30pm

I had this and had both thumbs fused. They are fused at the joint. I have...

https://connect.mayoclinic.org/comment/1007804/

hold it securely in the joint due to Ehlers

Discussion: Bone on bone thumbs

Support Group: Bones, Joints & Muscles

Posted: Feb 1 11:00am

@dianeehlinger Welcome to Mayo Clinic Connect, a place to give and get support. It sounds like...

https://connect.mayoclinic.org/comment/595813/

doctors/providers suggest regarding a ehlers

Discussion: Ehlers Danlos Syndrome: Can't get diagnosed

Support Group: Chronic Pain

Posted: Apr 20, 2021

An Ehlers-Danlos diagnosis really isn't as important to me right now as getting my neck fixed...

https://connect.mayoclinic.org/comment/217825/

An Ehlers-Danlos diagnosis really isn ... deals with Chiari malformations and Ehlers-Danlos ... An Ehlers-Danlos diagnosis would be

Discussion: Possible Ehlers-Danlos Syndrome with craniocervical instability

Support Group: Bones, Joints & Muscles

Posted: Sep 25, 2018

Does the Mayo Clinic in Arizona treat Ehlers Danlos Syndrome and it's comorbidities? I am awaiting...

https://connect.mayoclinic.org/comment/693905/

Does the Mayo Clinic in Arizona treat Ehlers

Discussion: Hypermobile Ehlers Danlos Care Team at Mayo Clinic?

Support Group: Visiting Mayo Clinic

Posted: Mar 28, 2022

Katie, You might be interested in following these MALS-related discussions and EDS-related discussions that Kari mentors...

https://connect.mayoclinic.org/comment/173264/

* Chronic Erythema Nodosum & Ehlers-Danlos

Discussion: First appointment at Mayo with Medical Genetics

Support Group: Visiting Mayo Clinic

Posted: Nov 6, 2017

I swear by PT, and OT. I have ehlers danlos, and c-ptsd, both types of arthritis,...

https://connect.mayoclinic.org/comment/1070065/

I have ehlers danlos, and c-ptsd, both

Discussion: Dry Needling

Support Group: Joint Replacements

Posted: May 18 8:34am

This may be going down a rabbit hole but my granddaughter was born November 19th. of...

https://connect.mayoclinic.org/comment/783847/

it possible that this is related to Ehlers

Newsfeed Post: Research Updates: EDS Clinic Published

Blog: Ehlers-Danlos Syndrome

Posted: Dec 11, 2022

Acupuncture is a good idea for the pain ... but probably will not be a fix....

https://connect.mayoclinic.org/comment/794773/

www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome

Discussion: I have been hurting for 10 months and there is no end in sight.

Support Group: Bones, Joints & Muscles

Posted: Jan 10, 2023

Thankyou so much for your reply as it gives me confidence to ask the medical people....

https://connect.mayoclinic.org/comment/882605/

very scarey as I'm a victim of ehlers

Discussion: I have anemia and low blood Platelets due to previous drinking.

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2023

I have very good flexibility, but never bothered to get Ehlers Danlos diagnosis as I don't...

https://connect.mayoclinic.org/comment/275531/

flexibility, but never bothered to get Ehlers

Discussion: POTS - postural orthostatic tachycardia syndrome

Support Group: Heart Rhythm Conditions

Posted: Jan 1, 2021

MCAS is not the same as the more rare mastocytosis, they are 2 different things per...

https://connect.mayoclinic.org/comment/636990/

comorbid conditions like POTs and Ehlers-Danlos

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2021

Hello tabitha and welcome to Connect. It sounds like the side effects of Ehlers-Danlos Syndrome can...

https://connect.mayoclinic.org/comment/94858/

It sounds like the side effects of Ehlers-Danlos

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Oct 14, 2016

@randi013 Welcome to Mayo Connect. I see on your profile, you’re a service dog handler, how...

https://connect.mayoclinic.org/comment/1076558/

https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome

Discussion: First time visit, what should I expect?

Support Group: Visiting Mayo Clinic

Posted: May 28 2:41pm

Is there anyone recommended that knows more about EDS within MN or WI? Most Drs, NPs,...

https://connect.mayoclinic.org/comment/685508/

Drs, NPs, PAs do not know much on Ehlers

Newsfeed Post: Primary Care and EDS

Blog: Ehlers-Danlos Syndrome

Posted: Mar 1, 2022

Hi, @cherrylistic. Welcome to Mayo Clinic Connect. Sounds like you've been through a lot with your...

https://connect.mayoclinic.org/comment/77433/

hashimotos-thyroiditis-and-ivig-treatment - Ehlers ... connect.mayoclinic.org/discussion/possible-ehlers-danlos-syndrome-with-craniocervical-instability

Discussion: Empty Sella Syndrome

Support Group: Brain & Nervous System

Posted: Dec 13, 2018

@joannemm30809 i just saw this article in the Mayo Clinic blog section. I thought of you...

https://connect.mayoclinic.org/comment/654109/

https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome

Discussion: At a loss, multiple consultations still no answer...any idea?

Support Group: Autoimmune Diseases

Posted: Nov 14, 2021

This DES info is very helpful. I am a DES daughter whose mother was given the...

https://connect.mayoclinic.org/comment/1164948/

dysautonomia at age 14 and Sjogren’s and Ehlers