Just diagnosed with osteoporosis. What are my options?

Posted by calygirl84 @calygirl84, Nov 8, 2022

I am 65 and I just got diagnosed with osteoporosis. What are my options

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

It is hard to comment without knowing your DEXA scores, and whether you have fractured or not. If early osteoporosis there may be natural or "holistic" approaches that could help. If your fracture risk is high, there are different classes of medications. Anti-resorptives include Prolia and bisphosphonates. Bone builders include Forteo, Tymlos, and Evenity. What does your doctor recommend?

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Get a referral to an endocrinologist, or an orthopedic clinic that specializes in osteoporosis. There are too many variables for anyone on the forum to tell you what to do, and there are multiple options, but which one is best really depends on your personal medical history. Good luck.

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Thank-you,
I was just diagnosed, I have had multiple surgeries, on my spine, and neck hands and feet, and these are all from stenosis, and from worn out joints. Carpal tunnel, CMC joint arthoplasty. Trigger finger, ACDF Bunion surgery. Revision lower lumbar surgery.
I don’t have fractures.
I just want the safest way to keep my osteoporosis from getting worse.
I have osteoarthritis too, my heritage is 1/2 Azch Jewish and 1/2,Eastern block
Any input ?

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Again we do not know your DEXA scores. Are you contemplating medications or a holistic approach? Sorry for your pain.

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This is just an interesting aside note: I did some research and found that Ashkenazi Jews have a significantly higher risk of osteoporosis. I am 95% Ashkenazi and my mother has bad osteoporosis as well as my Ashkenazi Jewish friend. Looks like we can add this UN-fun affliction to our propensity for myopia and allergies. 🙄. I tried to treat mine
naturally with running and weight training and that helped my lower body (which has severe osteopenia), but I didn’t do enough weight training in my upper body to remedy the weak bones (I have severe osteoporosis there). I started on Reclast last year and my bone breakdown rate went from 27 (which is high) to 17 — good results according to my endo. My endo says weight training is great but you should check with a doctor that you can do this because if your bones are too weak and weights are too heavy you can cause fractures! I was at the point that a bone would break if I stubbed a toe and had 14 fractures overall (fifth metatarsal 4 times, toes, left hip, kneecap, 3 wrist fractures). I am a healthy half marathoner, 65 years old, very fit, 5’8” 125 pounds.
After a year on Reclast (no side effects, by the way, except for a slight flulike feeling for a few days after the infusion, which I had over 45 minutes rather than the usual 20 – and drank LOTS of water before and after). This summer, about 10 months after the infusion, my weak ankle rolled while I was gardening and I fell on the concrete driveway and got up and walked away with no broken bones. So I think it’s working! I’m going back for my second annual infusion later today. Altho I was doing everything right and I am very against taking drugs if I can address a health problem with diet and lifestyle changes, my endo said “You have been doing everything right but it’s not enough, you need the medicine.” Best of luck to you and I hope this info about my experience helps. Feel free to contact me if you have any questions. Susan
PS: Forgot to mention that, for the past six months, I have been taking a 1-hour Group Power barbell free weight class that is very intense and I feel much stronger with better balance and have been told by my endo that this really helps keep bones and muscles strong and balance good as we age. I go three times a week for one very rigorous and challenging hour and I am committed to continuing this so my skeleton doesn’t disintegrate. I consider weight training to be essential for my continued quality of life and well being. A small upfront price to pay for staying out of the hospital and surgeries!

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@calygirl84

Thank-you,
I was just diagnosed, I have had multiple surgeries, on my spine, and neck hands and feet, and these are all from stenosis, and from worn out joints. Carpal tunnel, CMC joint arthoplasty. Trigger finger, ACDF Bunion surgery. Revision lower lumbar surgery.
I don’t have fractures.
I just want the safest way to keep my osteoporosis from getting worse.
I have osteoarthritis too, my heritage is 1/2 Azch Jewish and 1/2,Eastern block
Any input ?

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I also have Ashkenazi Jewish in my background and was just diagnosed with osteopenia (scores -1.3 to -2.0 with fracture risk of 1.7/10). My doc says I’m “doing everything right”, but need to up my calcium intake. Will start PT soon to figure out more weight-bearing exercise that my hypermobile Ehlers Danlos body can handle.

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This discussion has been moved to the Osteoporosis support group dedicated to osteoporosis, osteopenia and bone health. See all discussion in the group here:
– Osteoporosis & Bone Health support group https://connect.mayoclinic.org/group/osteoporosis/

@calygirl84 as you navigate this new reality with osteoporosis, you may also be interested in these related discussions:
– Osteoporosis treatments: What did you choose? https://connect.mayoclinic.org/discussion/osteoporosis-treatments-1/
– Your tips for healthy living with osteoporosis: What helps? https://connect.mayoclinic.org/discussion/your-tips-for-healthy-living-with-osteporosis-what-helps/

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