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820 total results
Comments (749)
@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...
https://connect.mayoclinic.org/comment/1041665/
year later finally diagnosed with amyloidosis ... almost 20% of patients with MM have Amyloidosis
Discussion: Abnormal bloodwork questions
Support Group: Blood Cancers & Disorders
Posted: Mar 28 12:00pm
@casey1329 My husband who is 80 yrs old has been suffering for months with the same...
https://connect.mayoclinic.org/comment/900586/
as well as finding he has Cardiac Amyloidosis ... hematologist ordered 2 biopsies to confirm Amyloidosis ... : the results confirmed Amyloidosis ... these proteins which are causing his Amyloidosis ... He started with Vyndamax for his Amyloidosis
Discussion: Possible Al Amylodiois
Support Group: Blood Cancers & Disorders
Posted: Jul 23, 2023
Julie, I moved your message to the Cancer group where you can meet others who may...
https://connect.mayoclinic.org/comment/113902/
discussion called "Diagnosed with AL Amyloidosis ... treatments you've been getting for amyloidosis
Discussion: Waldenstroms and amyloidosis
Support Group: Blood Cancers & Disorders
Posted: Sep 8, 2016
My husband was diagnosed with MGUS not long ago. He went to a cardiologist in Jacksonville...
https://connect.mayoclinic.org/comment/931005/
after being diagnosed with Cardiac Amyloidosis ... and the Cardiologist specialized in Amyloidosis
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Sep 16, 2023
I have had MGUS for 4.5 years. The strategy has been to monitor it with blood...
https://connect.mayoclinic.org/comment/1101928/
How ever mine just added Amyloidosis ... , but not uncommon for MGUS to add Amyloidosis ... people with MGUS to have this because Amyloidosis
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Jul 8 9:48pm
@kibwezi Hi. One of the triggers of Sjogren's, and SICCA which is very close to Sjogren's,...
https://connect.mayoclinic.org/comment/170411/
of the Protein Deposit Disease, or Amyloidosis ... at ALNYLAM.com, Mayoclinic.org, and Amyloidosis ... Read the stuff on various forms of Amyloidosis
Discussion: Doctors can't decide on diagnosis
Support Group: Autoimmune Diseases
Posted: Oct 22, 2017
With both psoriatic and rheumatoid arthritis, and lung lesions, you are in the zone where it...
https://connect.mayoclinic.org/comment/143209/
yourself checked for some form of amyloidosis ... doctor you see is not experienced with amyloidosis ... Call the amyloidosis foundation or Mayo
Discussion: Cavitary lesion and wall thickness ?
Support Group: Lung Health
Posted: Mar 25, 2017
@lisabeans Perhaps you need to rule out a few things. I would start by ruling out...
https://connect.mayoclinic.org/comment/137327/
deposit disease, or commonly called Amyloidosis ... find a list of many of the common Amyloidosis ... Search for Amyloidosis, then study that
Discussion: Undiagnosed auto immune disease, put on Leflunomide
Support Group: Autoimmune Diseases
Posted: Oct 22, 2017