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Comments (2,484)

Yes, the Avise CTD test is more sensitive and complete. It’s dismissive to tell someone their...

https://connect.mayoclinic.org/comment/1100070/

a false positive when symptoms of lupus

Discussion: If you suspect Lupus or MCTD, be sure

Support Group: Autoimmune Diseases

Posted: Jul 6, 2024

Hi - I have never had any symptoms with my CEL. It was found early during...

https://connect.mayoclinic.org/comment/1062512/

early during routine blood work for my lupus

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Thank you for the information. I talk to my physician’s often, so I will. My lupus...

https://connect.mayoclinic.org/comment/965352/

My lupus has created a lot of problems

Discussion: Have you had bad absence seizures withdrawing from Aptiom?

Support Group: Epilepsy & Seizures

Posted: Nov 15, 2023

You might get a biopsy by a dermatologist for diagnosis. Bring in your ANA blood work,...

https://connect.mayoclinic.org/comment/705350/

The Lupus Handbook may also be useful

Discussion: Feeling helpless

Support Group: Chronic Pain

Posted: May 4, 2022

No, not for lupus. I have an undiagnosed food allergy that started out of the blue...

https://connect.mayoclinic.org/comment/702578/

No, not for lupus.

Discussion: Undiagnosed: Allergy symptoms without being allergic. Ideas?

Support Group: Autoimmune Diseases

Posted: Apr 25, 2022

Hi, I’m Amy. Last month diagnosed with PMR after 5 years of struggling to find out...

https://connect.mayoclinic.org/comment/652775/

until my daughter was diagnososed with lupus

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 10, 2021

Hi @beka i am happy to help and answer any questions! I believe my double vision...

https://connect.mayoclinic.org/comment/254714/

of nowhere and it was diagnosed as lupus

Discussion: Worsening diplopia with no explanation

Support Group: Autoimmune Diseases

Posted: Mar 11, 2019

Hello Whyus, hope this post finds you doing better! I had a lupus flare that was...

https://connect.mayoclinic.org/comment/152150/

I had a lupus flare that was sever

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Jun 9, 2017

Hi @ccorrconro, and welcome to Connect. I'm glad you chose to share your story with us....

https://connect.mayoclinic.org/comment/88211/

autoimmune disease, like Sjrogren's and lupus

Discussion: Undifferential Conective tissue disease, Sjogrens, symptoms of Lupus

Support Group: Autoimmune Diseases

Posted: Mar 9, 2016

@sultanvr I can see that you know what "intrinsic kidney disease" means and some of the...

https://connect.mayoclinic.org/comment/1160760/

listed are " glomerulonephritis, lupus ... various autoimmune tests (I have a lupus

Discussion: Intrinsic Kidney Problem-What does Intrinsic Mean?

Support Group: Kidney & Bladder

Posted: Oct 21, 2024

There are different types of Myasthenia Gravis.She might have Generalized which does not have any eye...

https://connect.mayoclinic.org/comment/1061487/

diseases.Was your mom checked for Lupus ... I knew Lupus could cause issues walking

Discussion: Myasthenia Gravis post COVID

Support Group: Post-COVID Recovery & COVID-19

Posted: May 3, 2024

@tcokeefe It sounds like you have an intense and uncomfortable case of psoriasis. Due to the...

https://connect.mayoclinic.org/comment/335851/

hair problems possibly from discoid lupus ... Lupus?

Discussion: Psoriasis on scalp and neck

Support Group: Skin Health

Posted: Feb 20, 2021

NavyLady, I recognize your problem, but I cannot do much about it but give some simple...

https://connect.mayoclinic.org/comment/209975/

been diagnosed with MM, Carnetine, Lupus ... Amyloidosis types such as multiple myeloma, Lupus

Discussion: Bronchiectasis: New Diagnosis

Support Group: MAC & Bronchiectasis

Posted: Mar 5, 2020

I am not sure how high your ANA titer is, but I have been told that...

https://connect.mayoclinic.org/comment/1152724/

years, as you know, and for, say, lupus ... daughter and I both have diagnoses of lupus

Discussion: Blood work and misdiagnosed!?!

Support Group: Autoimmune Diseases

Posted: Oct 6, 2024

I apologies for the, poo,lack of, clarification and word choice...yes hoof cloven and mouth,, is animal......

https://connect.mayoclinic.org/comment/1269784/

Could you clarify what type of lupus ... Stress can bring on flare ups lupus

Discussion: Is there a cure for inflamed tongue fungus?

Support Group: Ear, Nose & Throat (ENT)

Posted: Mar 30 6:47am

@helen1000 one of my kids had an ANA of 1:160 and it is not considered significant....

https://connect.mayoclinic.org/comment/1138660/

scleroderma (and a long time diagnosis of lupus ... My other daughter does have a lupus

Discussion: ANA 1:160 - is it an auto immune disease?

Support Group: Autoimmune Diseases

Posted: Sep 9, 2024

I have had tumid lupus for 10 years. I have been evaluated by a local dermatologist,...

https://connect.mayoclinic.org/comment/146256/

I have had tumid lupus for 10 years. ... rheumatica and initially removed the tumid lupus

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Nov 12, 2018

Thankyou for this info...... i might take this to my gp here in Australia... I have...

https://connect.mayoclinic.org/comment/1105121/

my grandma died of complications of Lupus

Discussion: ANA positive result/rare patterns

Support Group: Autoimmune Diseases

Posted: Jul 13, 2024

Sounds like Long Covid. If you can see an Integrative Medicine doctor, do it. I have...

https://connect.mayoclinic.org/comment/1041807/

ask, mouthsores can be a symptom of Lupus

Discussion: Reoccuring symptoms: Is this part of long haul COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 28, 2024

I have MCTD, which consists of many overlap symptoms of Lupus. Plaquenil/hydroxichloroquine might be useful and...

https://connect.mayoclinic.org/comment/670034/

consists of many overlap symptoms of Lupus

Discussion: Positive ANA Questions

Support Group: Autoimmune Diseases

Posted: Jan 11, 2022