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414 total results

Comments (370)

They have said that 90 percent of his problem is from copd emphysema and ild and...

https://connect.mayoclinic.org/comment/238906/

then the mac bacterial infection and sarcoidosis

Discussion: Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Support Group: Lung Health

Posted: May 12, 2019

This was a radiologist’s impression from a recent PET SCAN. Since I made this post, I...

https://connect.mayoclinic.org/comment/709599/

discover that this has to do with Sarcoidosis

Discussion: What does this mean?

Support Group: Digestive Health

Posted: May 19, 2022

Hello and thank you for moving me to this group. I have sarcoidosis of liver, spleen,...

https://connect.mayoclinic.org/comment/130867/

I have sarcoidosis of liver, spleen,

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Mar 11, 2019

Hi, I’ve been recently diagnosed with sarcoidosis in the lungs and thoracic cavity. I am 49...

https://connect.mayoclinic.org/comment/130839/

I’ve been recently diagnosed with sarcoidosis

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Oct 22, 2018

I went in with the Sarcoidosis and muscle wasting. I would say they are little unchanged....

https://connect.mayoclinic.org/comment/949345/

I went in with the Sarcoidosis and muscle

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Oct 17, 2023

Hi, my name is Tammi Im a care giver to my husband who suffers from sarcoidosis...

https://connect.mayoclinic.org/comment/112000/

giver to my husband who suffers from sarcoidosis

Discussion: Meet fellow Caregivers - Introduce yourself

Support Group: Caregivers

Posted: Aug 29, 2016

I have not been diagnosed with sarcoidosis and already been tested for lupus. I don't have...

https://connect.mayoclinic.org/comment/704551/

I have not been diagnosed with sarcoidosis

Discussion: So many questions. Seeing Rheumatology and GI at Mayo JAX

Support Group: Autoimmune Diseases

Posted: May 2, 2022

Im new in April i was told i have sarcoidosis of the lungs no scaring of...

https://connect.mayoclinic.org/comment/77287/

Im new in April i was told i have sarcoidosis

Discussion: Sarcoidosis: What treatments have you had with few side effects?

Support Group: Lung Health

Posted: Aug 24, 2016

Has anyone had/have sarcoidosis? Each CT scan is good then bad as far as nodules. This...

https://connect.mayoclinic.org/comment/872109/

Has anyone had/have sarcoidosis?

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Jun 4, 2023

Most Hospitals and physicians will not prescribe a pet/ct because of the cost and your insurance...

https://connect.mayoclinic.org/comment/715172/

Because of my Sarcoidosis history , ... the Pulmonary Surgeon told me I had sarcoidosis ... Next step was to find a Sarcoidosis ... I currently have a team of Sarcoidosis ... body pet/ct scan finding Cardiac Sarcoidosis

Discussion: Blood pressure spikes: Is this "Normal"?

Support Group: Heart Rhythm Conditions

Posted: Jun 7, 2022

I looked to see if I wrote this reply as it reflects my experience as well....

https://connect.mayoclinic.org/comment/820823/

Have had sarcoidosis since 1995 and

Discussion: Sarcoidosis lesions of granulomas in their vertebrae bone marrow

Support Group: Autoimmune Diseases

Posted: Mar 4, 2023

Thanks for sharing these symptoms. You may also be interested in these discussions: - Anyone here...

https://connect.mayoclinic.org/comment/77295/

2bTkbMm They are not specific to sarcoidosis

Discussion: Sarcoidosis: What treatments have you had with few side effects?

Support Group: Lung Health

Posted: Aug 25, 2016

yes and now I'm anemic maybe due to an illiectomy over 50 years ago. Have had...

https://connect.mayoclinic.org/comment/730299/

Sarcoidosis was discovered over 40 ... of all my problems are due to the sarcoidosis

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Jul 24, 2022

Riverotter I just read your post, I'm so sorry how this nasty disease has ravaged you....

https://connect.mayoclinic.org/comment/130788/

My husband has both sarcoidosis once ... neurosarcoidosis You spoke of stages of sarcoidosis

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Dec 28, 2016

That is interesting about your asthma diagnosis. You may be correct. My husband was treated for...

https://connect.mayoclinic.org/comment/1131519/

years and was then discovered to have sarcoidosis

Discussion: Is Anyone Else Confused About All Those Inhalers?

Support Group: MAC & Bronchiectasis

Posted: Aug 27 7:23am

I ask for support from anyone who has been diagnosed with the same disease, especially if...

https://connect.mayoclinic.org/comment/1104028/

the same disease, especially if the sarcoidosis

Discussion: Anyone with diagnosis of sarcoidosis?

Support Group: Autoimmune Diseases

Posted: Jul 12 2:51am

I was just diagnosed with sarcoidosis, anyone else dealing with this illness I’m trying to learn...

https://connect.mayoclinic.org/comment/1080411/

I was just diagnosed with sarcoidosis

Discussion: Anyone with diagnosis of sarcoidosis?

Support Group: Autoimmune Diseases

Posted: Jun 3 9:46pm

Sorry to be so tardy., thanks for the sarcoidosis link, I’m enjoying this group. Yes I...

https://connect.mayoclinic.org/comment/698898/

Sorry to be so tardy., thanks for the sarcoidosis ... Yes I had lung sarcoidosis first. ... cardiologist said hmm, similar symptoms as sarcoidosis

Discussion: MCTD, Fibromyalgia, Reynauds

Support Group: Autoimmune Diseases

Posted: Apr 14, 2022

Hi, I am going to jump in here because I had nodules removed from my lungs...

https://connect.mayoclinic.org/comment/130789/

from my lungs which I was told was sarcoidosis ... I may push my doctor more on sarcoidosis

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Mar 3, 2017

Same boat...I'll be in jax tomorrow til the 11th, having to go there from Missouri seeing...

https://connect.mayoclinic.org/comment/704150/

seeing Rheumatology for a diagnosis of sarcoidosis