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165 total results

Comments (142)

@rt061069 I hope you and the others on this line have all had appropriate clinical grade...

https://connect.mayoclinic.org/comment/619062/

cardiomyopathy, Fukatin and FKRP Limb Girdle Muscular ... Dystrophy, Clarkson's Disease,

Discussion: Living with pain

Support Group: Chronic Pain

Posted: Jul 23, 2021

@jackpine , The cath I use is made by Convatec Limited. The first address I have...

https://connect.mayoclinic.org/comment/317759/

Gelsolin, plus Fukutin Limb Girdle Muscular ... Dystrophy Type 4.

Discussion: Bladder ureteral obstruction/stricture

Support Group: Kidney & Bladder

Posted: Mar 28, 2021

I have a family history of PN going back at least four generations. They said it...

https://connect.mayoclinic.org/comment/317874/

tests all the genes known to cause Muscular ... Dystrophy.

Discussion: Is it worth trying to resolve peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 24, 2020

@maartensk Hi, friend. This is a simple one to answer. In my experience, my genes clump...

https://connect.mayoclinic.org/comment/750203/

neuromuscular stuff, is called Limb Girdle Muscular ... Dystrophy r23.

Discussion: Can you have combined autoimmune disorders? I need a second opinion

Support Group: Autoimmune Diseases

Posted: Sep 16, 2022

@stumpjumper , my friend. You sound a little frazzled; but with good reason. Let me throw...

https://connect.mayoclinic.org/comment/741505/

example, and that triggers some form of Muscular ... Dystrophy, and that triggers additional

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Aug 25, 2022

I would add just a little to my previous statement. I have the same symptoms, and...

https://connect.mayoclinic.org/comment/717645/

often a partner disease to Limb Girdle Muscular ... Dystrophy R23, or also using labels

Discussion: Right Cheek Swelling

Support Group: Autoimmune Diseases

Posted: Jun 15, 2022

About 4 years ago I was going through the references in known symptoms of anything when...

https://connect.mayoclinic.org/comment/68744/

disorders: RYR2, Fukuyama Limb Girdle Muscular ... Dystrophy and Gelsolin.

Discussion: Cerebral amyloid angiopathy

Support Group: Stroke & Cerebrovascular Diseases

Posted: Mar 14, 2020

I enjoyed reading all these posts. I was diagnosed with Gastroparesis in July 2019 and have...

https://connect.mayoclinic.org/comment/70470/

I have Limb-Girdle Muscular Dystrophy

Discussion: Gastroparesis diet - questions, suggestions, tips?

Support Group: Digestive Health

Posted: Feb 4, 2020

@nrivers I have been reading and thinking about PN for many years. The first recollection I...

https://connect.mayoclinic.org/comment/325144/

Amyloidosis), and FKTN (Fukutin Limb Girdle Muscular ... Dystrophy #4.

Discussion: Why test for neuropathy if there is no cure?

Support Group: Neuropathy

Posted: Mar 28, 2021

@rgg, just to make sure you know where I am coming from, I have several DNA-type...

https://connect.mayoclinic.org/comment/335930/

Gelsolin, Fukutin Limb Girdle Muscular ... Dystrophy, Acute Lymphocytic(?).

Discussion: Stem cells for Autoimmune Diseases

Support Group: Autoimmune Diseases

Posted: Feb 22, 2021

@pfbacon Peggy, I do have my own system, but it takes a lot more time and...

https://connect.mayoclinic.org/comment/158651/

see my third birthday because of my muscular ... dystrophy, and my wife has been told

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jun 12, 2020

@bill ... I have not smoked five cigarettes in my 81 years, so I cannot relate...

https://connect.mayoclinic.org/comment/203472/

RyR2, MDDG(4)- Fukutin Limb Girdle Muscular ... Dystrophy, Gelsolin, a couple Leukemias

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Mar 20, 2021

@beanie300 Hi, friend. I am just an old busybody, but i have had some experience with...

https://connect.mayoclinic.org/comment/225366/

.); FKTN (Fukutin Limb Girdle Muscular ... Dystrophy.

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Apr 5, 2020

@feb ... Kathy, sounds to me that you have what is known by a bunch of...

https://connect.mayoclinic.org/comment/685009/

sometimes known as FKTN (Limb Girdle Muscular ... Dystrophy- LGMD2m LGMDc4).

Discussion: Chest and upper back pain with bronchiectasis and pseudomonas

Support Group: MAC & Bronchiectasis

Posted: Feb 27, 2022

Thanks for the additional information, @mayo33. I'm not personally familiar with SSS, so I'm not sure...

https://connect.mayoclinic.org/comment/235203/

associated with certain conditions such as muscular ... dystrophy and other diseases that may

Discussion: Chronotropic Incompetence: how are you managing it?

Support Group: Heart & Blood Health

Posted: Dec 18, 2018

Beka, I've have/had Crohns / Ulcerative Colitis for decades. It all started when I went to...

https://connect.mayoclinic.org/comment/254717/

#39;ve got a rare form of late onset muscular ... dystrophy.

Discussion: Worsening diplopia with no explanation

Support Group: Autoimmune Diseases

Posted: Oct 18, 2020

Roxy1954.. My treatment plan is simple. My meds and other forms of treatment focus primarily on...

https://connect.mayoclinic.org/comment/331435/

The muscular dystrophy is eating away

Discussion: Anyone else with Churg-Strauss or EPGA?

Support Group: Autoimmune Diseases

Posted: Jan 8, 2021

@hopeful33250 yes I'm well, just now seeing this. Prior this conversation many things were taking place,...

https://connect.mayoclinic.org/comment/127017/

update 2wks ago...After 27+yrs of Muscular ... Dystrophy, I've never received a exam ... muscle regrowth or stopping future muscular

Discussion: Diverticulitis and Muscular Dystrophy

Support Group: Digestive Health

Posted: Feb 18, 2017

Having been married for 38 years, I have some thoughts...initially, we had a tremendous sexual relationship....

https://connect.mayoclinic.org/comment/902807/

Turns out, my wife had Muscular Dystrophy

Discussion: Sexless Marriage (when one partner is ill)

Support Group: Men's Health

Posted: Jul 26, 2023

Hello. I am a Lewy body Dementia / Atypical Parkinsonism and Myotonic Dystrophy 2 (muscular dystrophy)...

https://connect.mayoclinic.org/comment/670860/

Atypical Parkinsonism and Myotonic Dystrophy ... 2 (muscular dystrophy) patient. ... to genetic testing and the Myotonic dystrophy

Discussion: Year Long Progression of Neurological Symptoms. Exhausted. Angry.

Support Group: Brain & Nervous System

Posted: Jan 14, 2022