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159 total results
Comments (135)
About 4 years ago I was going through the references in known symptoms of anything when...
https://connect.mayoclinic.org/comment/68744/
disorders: RYR2, Fukuyama Limb Girdle Muscular ... Dystrophy and Gelsolin.
I enjoyed reading all these posts. I was diagnosed with Gastroparesis in July 2019 and have...
https://connect.mayoclinic.org/comment/70470/
I have Limb-Girdle Muscular Dystrophy
@nrivers I have been reading and thinking about PN for many years. The first recollection I...
https://connect.mayoclinic.org/comment/325144/
Amyloidosis), and FKTN (Fukutin Limb Girdle Muscular ... Dystrophy #4.
@rgg, just to make sure you know where I am coming from, I have several DNA-type...
https://connect.mayoclinic.org/comment/335930/
Gelsolin, Fukutin Limb Girdle Muscular ... Dystrophy, Acute Lymphocytic(?).
@beanie300 Hi, friend. I am just an old busybody, but i have had some experience with...
https://connect.mayoclinic.org/comment/225366/
.); FKTN (Fukutin Limb Girdle Muscular ... Dystrophy.
@pfbacon Peggy, I do have my own system, but it takes a lot more time and...
https://connect.mayoclinic.org/comment/158651/
see my third birthday because of my muscular ... dystrophy, and my wife has been told
@bill ... I have not smoked five cigarettes in my 81 years, so I cannot relate...
https://connect.mayoclinic.org/comment/203472/
RyR2, MDDG(4)- Fukutin Limb Girdle Muscular ... Dystrophy, Gelsolin, a couple Leukemias
@feb ... Kathy, sounds to me that you have what is known by a bunch of...
https://connect.mayoclinic.org/comment/685009/
sometimes known as FKTN (Limb Girdle Muscular ... Dystrophy- LGMD2m LGMDc4).
Thanks for the additional information, @mayo33. I'm not personally familiar with SSS, so I'm not sure...
https://connect.mayoclinic.org/comment/235203/
associated with certain conditions such as muscular ... dystrophy and other diseases that may
Beka, I've have/had Crohns / Ulcerative Colitis for decades. It all started when I went to...
https://connect.mayoclinic.org/comment/254717/
#39;ve got a rare form of late onset muscular ... dystrophy.
Roxy1954.. My treatment plan is simple. My meds and other forms of treatment focus primarily on...
https://connect.mayoclinic.org/comment/331435/
The muscular dystrophy is eating away
Having been married for 38 years, I have some thoughts...initially, we had a tremendous sexual relationship....
https://connect.mayoclinic.org/comment/902807/
Turns out, my wife had Muscular Dystrophy
Hello. I am a Lewy body Dementia / Atypical Parkinsonism and Myotonic Dystrophy 2 (muscular dystrophy)...
https://connect.mayoclinic.org/comment/670860/
Atypical Parkinsonism and Myotonic Dystrophy ... 2 (muscular dystrophy) patient. ... to genetic testing and the Myotonic dystrophy
@hopeful33250 yes I'm well, just now seeing this. Prior this conversation many things were taking place,...
https://connect.mayoclinic.org/comment/127017/
update 2wks ago...After 27+yrs of Muscular ... Dystrophy, I've never received a exam ... muscle regrowth or stopping future muscular
Hi, @Beka. You sound a lot like me, and I strongly suspect you have some of...
https://connect.mayoclinic.org/comment/254750/
cause apparently, of lattice corneal dystrophy ... Fukutin Limb Girdle Muscular Dystrophy
Hi. I’m new here. I’ve had Myasthenia Gravis my whole life, an autoimmune version of Muscular...
https://connect.mayoclinic.org/comment/1294264/
whole life, an autoimmune version of Muscular ... Dystrophy.
I am a 75 yo male who has and continues to exercise at an elite (nationally...
https://connect.mayoclinic.org/comment/677928/
Calpainopathy, or limb-girdle muscular ... dystrophy type 2A (LGMD2A), I have
@Dennis127 , gailfaith here. I may be way off base with this note, but this is...
https://connect.mayoclinic.org/comment/165808/
testing they said I had a rare form of muscular ... dystrophy, Myotonic Dystrophy.
Hi, Ginger. I have had a wild ride trying to get a diagnosis without slapping the...
https://connect.mayoclinic.org/comment/331858/
both Gelsolin and Fukutin Limb Girdle Muscular ... Dystrophy.
Hello: You are not alone. I also have the diagnosis of LBD with Parkinsonism. I am...
https://connect.mayoclinic.org/comment/617497/
the pain - but also have Myotonic Muscular ... Dystrophy II which causes pain in my
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