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902 total results
Comments (821)
No and I asked my cardiologist when I met with her yesterday if my HCM dx...
https://connect.mayoclinic.org/comment/945994/
could be in any way confused with amyloidosis ... cardiologist said that my labs checked for Amyloidosis ... light chain, serum, free” and that Amyloidosis
Discussion: What is amyloidosis?
Support Group: Hypertrophic Cardiomyopathy (HCM)
Posted: Oct 11, 2023
My first sign of Amyloidosis was increased protein in my urine….. Had a 24hr urine &...
https://connect.mayoclinic.org/comment/1119946/
My first sign of Amyloidosis was increased ... Confirmed the presence of amyloidosis ... My amyloidosis was in my kidneys &amp
Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?
Support Group: Blood Cancers & Disorders
Posted: Aug 8, 2024
@oakbourne First, I always welcome the questions about Amyloidosis. I have my own story on the...
https://connect.mayoclinic.org/comment/163068/
always welcome the questions about Amyloidosis ... more at the Mayo search line under Amyloidosis ... Hereditary gelsolin amyloidosis. ... slowly progressive but devastating amyloidosis ... ; hereditary amyloidosis; peripheral
Discussion: Anyone dealing with Dystonia?
Support Group: Brain & Nervous System
Posted: Sep 9, 2018
Good morning, @sherryzitter. I’m so happy to see you’re jumping in with both feet into this...
https://connect.mayoclinic.org/comment/1042022/
already discovered one of the many Amyloidosis ... You’ll be able to find more Amyloidosis ... members and discussions by typing Amyloidosis
Discussion: Abnormal bloodwork questions
Support Group: Blood Cancers & Disorders
Posted: Mar 29, 2024
I lost both my senses of smell and taste a few years ago. Since then I...
https://connect.mayoclinic.org/comment/260928/
sign and symptom of several forms of Amyloidosis ... most likely one of the many forms of amyloidosis
Discussion: Problem with Tongue
Support Group: Autoimmune Diseases
Posted: Jun 1, 2020
My husband was diagnosed with Cardiac Amyloidosis recently at Mayo Clinic. He had 2 biopsies to...
https://connect.mayoclinic.org/comment/898857/
husband was diagnosed with Cardiac Amyloidosis ... started with Vyndamax to control his Amyloidosis ... As a RN I never heard about Amyloidosis
Discussion: Recently diagnosed with AL Amyloidosis: Any advice?
Support Group: Blood Cancers & Disorders
Posted: Jul 20, 2023
My husband was diagnosed with Acquired von Willebrand Syndrome almost a year ago today. Six months...
https://connect.mayoclinic.org/comment/1180018/
diagnosed with AL (light chain lambda) Amyloidosis ... multimers which is a result of his AL Amyloidosis ... unbelievable hard for him to be tested for amyloidosis
Discussion: Acquired Von Willebrand syndrome
Support Group: Blood Cancers & Disorders
Posted: Nov 26, 2024
Boston University is one of the top research facilities in the world for all forms of...
https://connect.mayoclinic.org/comment/1023528/
facilities in the world for all forms of amyloidosis ... doctors, as many are not familiar with amyloidosis ... They have come a long way in treating amyloidosis
Discussion: Newly dx with stiff heart
Support Group: MAC & Bronchiectasis
Posted: Feb 27, 2024
About Blepharitis. Many docs (and thus patients) do not know that these bleph.. disorders are often...
https://connect.mayoclinic.org/comment/765183/
usually, a symptom of a genetic disease, Amyloidosis ... Amyloidosis is often called "Corneal
Discussion: blepharospasms and Blepharitis
Support Group: Eye Conditions
Posted: Oct 25, 2022