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Comments (3,281)

Robyn, Sorry for the running off of words. I tried to edit and they said it...

https://connect.mayoclinic.org/comment/723991/

Although I am already seeing a neuro-opthalmologist

Discussion: Small Fiber Neuropathy biopsy test results

Support Group: Neuropathy

Posted: Jul 5, 2022

I have had what I would call flare ups body wide twitching on and off for...

https://connect.mayoclinic.org/comment/723950/

Had all the Nero and blood tests and

Discussion: Peripheral Neuropathy and benign fasciculation syndrome.

Support Group: Neuropathy

Posted: Jul 5, 2022

Am in HOUSTON. LOOKING FOR MEDICAL PRESCRIPTIONS. I have CBD, GUMMIES ETC. Just need MG and...

https://connect.mayoclinic.org/comment/723881/

On the NEEDLING, please see a Dr NEURO

Discussion: Anyone tried Dry Needling or Acupuncture for Pain or Neuropathy?

Support Group: Neuropathy

Posted: Jul 5, 2022

Long story my friend :( After 25 wonderful years in Paxil 20 it stopped helping. And...

https://connect.mayoclinic.org/comment/720401/

Neuro put me on Primidone and Mayo psych

Discussion: Brain zaps, mine are constant…Anyone else?

Support Group: Depression & Anxiety

Posted: Jun 23, 2022

I developed sudden peripheral neuropathy after the Covid vaccine. My initial symptom after the first vaccine...

https://connect.mayoclinic.org/comment/717425/

to learn more, you could join the Neuro

Discussion: Toe twitching/fasciculations?!

Support Group: Brain & Nervous System

Posted: Jun 14, 2022

I have had nystagmus and vertigo for 20 years--was not bad at first. Recently developing pain...

https://connect.mayoclinic.org/comment/715879/

neurologists, ENT, vertigo clinics, neuro

Discussion: Constant Dizziness

Support Group: Brain & Nervous System

Posted: Jun 9, 2022

I’m thinking that Primidone could be having an impact on my depression/anxiety, agitation, etc that I...

https://connect.mayoclinic.org/comment/714571/

The neuro didn’t mention any of this

Discussion: Restless legs syndrome (RLS) and mirtazapine

Support Group: Depression & Anxiety

Posted: Jun 5, 2022

@artist01, @becsbuddy, @merpreb @sueinmn, @johnbishop, @loribmt, @kilh, @artscaping, and all...Hello, my friends with precious babies, rabbits,...

https://connect.mayoclinic.org/comment/714377/

Mayo neuro gives him botox relief.

Discussion: What's outside of your picture window today?

Support Group: Just Want to Talk

Posted: Jun 4, 2022

I love the topic, focus on what we can do! I just got back from Canada...

https://connect.mayoclinic.org/comment/712649/

few years were rough, cancer, GI, neuro

Discussion: A discussion for people over 60: Let's focus on what we can do

Support Group: Aging Well

Posted: May 30, 2022

I’m sorry your symptoms are still worsening. I am 18 months out from symptom start (first...

https://connect.mayoclinic.org/comment/712123/

As for the Neuro Long Haulers Facebook

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: May 28, 2022

Wow. This thread went cold almost a month now. My leg symptoms are worsening now. Fast...

https://connect.mayoclinic.org/comment/711760/

help grease the IVIg wheels (only way neuro ... seruminst.htm P.S. join the Facebook “Neuro

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: May 27, 2022

Sorry for the late response. I was diagnosed after I went to my obgyn cause I...

https://connect.mayoclinic.org/comment/710484/

I can’t get a referral from my Nero.

Discussion: Adrenals and how do you know if their not working

Support Group: Diabetes & Endocrine System

Posted: May 22, 2022

There is a patient in the Neuro V Long-Haulers facebook group who had severe vision issues...

https://connect.mayoclinic.org/comment/710210/

There is a patient in the Neuro V Long-Haulers

Discussion: Anyone experiencing dry eyes and vision changes?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 21, 2022

The Facebook group Neuro V Long-Haulers is a great source for information, help, and support for...

https://connect.mayoclinic.org/comment/710207/

The Facebook group Neuro V Long-Haulers

Discussion: Idiopathic neuropathy and dizziness.

Support Group: Neuropathy

Posted: May 21, 2022

I feel your pain! I've had LSN for 6 long frustrating years. Same with the cough...

https://connect.mayoclinic.org/comment/705720/

My ENT tried all the neuro drugs on

Discussion: Anyone have Laryngeal Sensory Neuropathy?

Support Group: Ear, Nose & Throat (ENT)

Posted: May 5, 2022

He actually lives in Madison, WI and I would think UW-Madison might be an option. He’s...

https://connect.mayoclinic.org/comment/703970/

Do you think requesting through Neuro

Discussion: How to get help to manage ulcerative colitis along with Parkinson’s

Support Group: Parkinson's Disease

Posted: Apr 29, 2022

@becsbuddy yes he is seen at Yale and has a Neuro-ophthalmologist. Since I posted my question,...

https://connect.mayoclinic.org/comment/697335/

becsbuddy yes he is seen at Yale and has a Neuro-ophthalmologist ... I posted my question, his original Neuro ... also an oncologist agrees with the Neuro

Discussion: Ocular Myotonia VS Myasthenia Gravis

Support Group: Autoimmune Diseases

Posted: Apr 9, 2022

I need to know exactly what CES is I had rotator cuff surgery winded up in...

https://connect.mayoclinic.org/comment/696033/

numb from the knee to ankle went to nero

Discussion: Cauda Equina Syndrome: Difficulty with going to the bathroom

Support Group: Spine Health

Posted: Apr 4, 2022

I’m going to look at the site @runnergirl. I too think we must speak up. I...

https://connect.mayoclinic.org/comment/694743/

Last week I asked my Neuro for a Podiatrist