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Comments (3,281)

Oh my goodness I feel for you. I have been searching on this site for somebody...

https://connect.mayoclinic.org/comment/1098068/

Like you have seen a neuro surgeon,

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Jul 2 2:19pm

Hello, I have not logged on in awhile again. Nothing has changed really, except I did...

https://connect.mayoclinic.org/comment/814715/

Another appointment with my original Neuro-Ophthalmologist

Discussion: Brain not "showing me" my peripheral vision

Support Group: Eye Conditions

Posted: Feb 20, 2023

Chris, thank you so much for this response. The hospital has given me no info except...

https://connect.mayoclinic.org/comment/1100351/

The neuro has not returned my messages ... Neuro then diagnosed as complex migraines ... grand mal and haven’t heard back from neuro ... to get a response Monday from the neuro

Discussion: Tiredness triggering an atonic seizure Vs sudden falling asleep

Support Group: Epilepsy & Seizures

Posted: Jul 6 12:05pm

@baa a Very Good Morning to You! I hope you had a pleasant weekend. Ackward that...

https://connect.mayoclinic.org/comment/1101392/

Ackward that your neuro has not yet

Discussion: Tiredness triggering an atonic seizure Vs sudden falling asleep

Support Group: Epilepsy & Seizures

Posted: Jul 8 6:44am

Hope you feel better soon. Has a pharmacist or pharmacologist reviewed your medications to determine if...

https://connect.mayoclinic.org/comment/1100877/

Albeit my neuro-opthamologist treats

Discussion: Sjogrens, SFN, unbalanced walking, nystagmus

Support Group: Autoimmune Diseases

Posted: Jul 7 9:59am

When I saw the ‘55’ in your name, I was hoping it was your birth year....

https://connect.mayoclinic.org/comment/1096363/

Like Neuro’s for ET at Mayo, Kid Psych

Discussion: How do I get thru spine surgery recovery? I need people to talk to

Support Group: Just Want to Talk

Posted: Jun 29 1:50pm

neuro cervical spine doc tells me I'm too old for successful C5-6 ACDF procedure. I'm 83...

https://connect.mayoclinic.org/comment/1099575/

neuro cervical spine doc tells me I&

Discussion: Has anyone had the ACDF surgery on their neck?

Support Group: Bones, Joints & Muscles

Posted: Jul 5 8:24am

i primarily go to be teaching hospitals. I have multiple highly trained and specialized doctors. There...

https://connect.mayoclinic.org/comment/1104017/

geneticist, an endochrinologist, a neuro-opthamologost ... cornea specialist and most recently a neuro-surgeon

Discussion: Teaching Hospitals

Support Group: Autoimmune Diseases

Posted: Jul 12 12:13am

Mayo is not the only Clinic in the States. I would suggest exploring other avenues other...

https://connect.mayoclinic.org/comment/1093175/

that if Mayo was not accepting new Neuro

Discussion: I have a neurological illness that has puzzled doctors.

Support Group: Brain & Nervous System

Posted: Jun 24 10:05am

I’ve had Covid shots every 6 months since the beginning. My rheum said I shouldn’t bc...

https://connect.mayoclinic.org/comment/1108216/

My neuro (also have MG) said he felt

Discussion: Humira Infections -- how do you handle each infection?

Support Group: Autoimmune Diseases

Posted: Jul 19 10:20am

His primary care told us his original MRIs only showed mild sinusitis. No mention of the...

https://connect.mayoclinic.org/comment/1102588/

We have been begging for a neuro referral ... t been seen by his primary care or neuro

Discussion: Undiagnosed brain lesion.

Support Group: Brain & Nervous System

Posted: Jul 9 8:58pm

Thanks for the info, Rachel. I did not know that Mayo Clinic was offered this therapy....

https://connect.mayoclinic.org/comment/1104755/

So I understand the power of neuro plasticity ... and reframing neuro pathways.

Discussion: Pain Reprocessing Therapy to help and even eliminate chronic pain

Support Group: Chronic Pain

Posted: Jul 13 7:12am

Hi Everyone, I have question - Have any of you been diagnosed with a pituitary gland...

https://connect.mayoclinic.org/comment/1125736/

My neuro has showed no interest in it ... I will message my Neuro with this new

Discussion: CLIPPERS: Looking to connect with others

Support Group: Autoimmune Diseases

Posted: Aug 17 9:25pm

Hello @macbeth I can only add what I know from my experiences with my wife and...

https://connect.mayoclinic.org/comment/126964/

prescribed either by her GP or her neuro-oncologist

Discussion: Alzheimers and medications for hyperactivity/anxiety/agitation

Support Group: Caregivers: Dementia

Posted: Nov 3, 2016

I agree. A clinic that can and will do a thorough neuro exam is a must....

https://connect.mayoclinic.org/comment/1094633/

clinic that can and will do a thorough neuro

Discussion: My mom can't walk, doctor's don't know why

Support Group: Autoimmune Diseases

Posted: Jun 26 12:42pm

I've had the same fasculations for 3 years. They have really never completely stopped but have...

https://connect.mayoclinic.org/comment/1108597/

I just didn't follow up with neuro

Discussion: Benign fasciculation syndrome (BFS)

Support Group: Brain & Nervous System

Posted: Jul 20 6:58am

Chris, Santosha, I have a question that I am sure I should know, but do not...

https://connect.mayoclinic.org/comment/1115430/

do not and can’t get an answer from neuro

Discussion: Sharing my experience with rescue medication for seizures

Support Group: Epilepsy & Seizures

Posted: Jul 31 4:20pm

You know the way it goes. My neurologist is the one who referred me for PT,...

https://connect.mayoclinic.org/comment/940149/

I know the Neuro will message me back

Discussion: Inflammation and bloating

Support Group: Autoimmune Diseases

Posted: Oct 1, 2023

My regimen calls for Benadryl, Tylenol and an IV steroid prior to IVIG infusion. I was...

https://connect.mayoclinic.org/comment/1121521/

I have not ask Neuro about this yet.

Discussion: Now Receiving GammaGard Bi-Weekly Infusions

Support Group: Autoimmune Diseases

Posted: Aug 11 8:39am

I was able to get a phone appt. with Dr. Dai, a neurologist in Albuquerque, NM...

https://connect.mayoclinic.org/comment/1121715/

They are not taking any new neuro patients

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Aug 11 1:07pm