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Comments (10,000+)

@johnjohnny, I think this is the Mayo Clinic clinical trial you're referring to, right? - Hyperthermic...

https://connect.mayoclinic.org/comment/1367188/

connect.mayoclinic.org/discussion/hipec-1/

Discussion: Any experience with this trial or hipec treatment?

Support Group: Pancreatic Cancer

Posted: Aug 9 3:32pm

If you are taking any of the GLP-1 medications (Ozempic, Mounjoro, etc.) this could delay the...

https://connect.mayoclinic.org/comment/1371697/

If you are taking any of the GLP-1 medications

Discussion: Abdominal pain with severe constipation and weight loss

Support Group: Digestive Health

Posted: Aug 16 7:30am

I have been on my second round of Dupixent since 1/30/2025 after a long break as...

https://connect.mayoclinic.org/comment/1338043/

my second round of Dupixent since 1/

Discussion: Is anyone using Dupixent for COPD?

Support Group: COPD: Chronic obstructive pulmonary disease

Posted: Jun 29 6:28pm

Thank you, Yes we are in contact with infectious disease, actually the care team was supposed...

https://connect.mayoclinic.org/comment/1356175/

the stent was removed approximately 1 ... BK was slightly elevated 1,968 as of

Discussion: Recurring infections post transplant!

Support Group: Transplants

Posted: Jul 25 12:48pm

Everyone is anxious to get brensocatib. My gut feeling is that it will be many months...

https://connect.mayoclinic.org/comment/1357717/

it will be many months before it is 1)

Discussion: Brensocatib FDA approval?

Support Group: MAC & Bronchiectasis

Posted: Jul 27 1:12pm

Yes, my eyes felt better and he said again it's just a placebo effect. I see...

https://connect.mayoclinic.org/comment/1358838/

a good difference when I take them 1-

Discussion: AREDS 2 and side effects

Support Group: Eye Conditions

Posted: Jul 28 8:57pm

@moloney1231 Did you have radiation and take an AI for 5 years? ILC usually gets one...

https://connect.mayoclinic.org/comment/1359190/

ILC usually gets one through the 1st ... I am ILC 1B and coming off Letrozole ... after 2 1/4 years and have to decide

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Jul 29 11:42am

I was on laculose high ammonia and was out of it and given 5 days to...

https://connect.mayoclinic.org/comment/1341730/

out of it and given 5 days to live 2 1/

Discussion: Liver transplant - Let's support each other

Support Group: Transplants

Posted: Jul 5 1:58pm

1. I started with long covid about a month and a half after my 2nd bout...

https://connect.mayoclinic.org/comment/1349477/

Discussion: Questions if you feel like answering

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 16 10:01am

I don't think most doctors know that statins can cause neuropathy! A study I read said...

https://connect.mayoclinic.org/comment/1349062/

said long -term use was greater than 1

Discussion: Statin discontinued due to neuropathy. What are some alternatives?

Support Group: Neuropathy

Posted: Jul 15 6:11pm

Don’t be 100% positive that you are cancer free. It’s more like you are in remission....

https://connect.mayoclinic.org/comment/1357576/

I had surgery and 3 1/2 years later

Discussion: unusual bowel movement

Support Group: Prostate Cancer

Posted: Jul 27 11:09am

Yes, I initially had vitrectomy surgery in July 2024 for a macular pucker after about 8...

https://connect.mayoclinic.org/comment/1338562/

I had a gas bubble inserted and 1 week

Discussion: What was your experience with vitrectomy eye surgery?

Support Group: Eye Conditions

Posted: Jun 30 1:09pm

RC depends on pathology. Most often it is not required. In other cases it is the...

https://connect.mayoclinic.org/comment/1334320/

TURBT 1 mid-October. ... skipped NAC as it is not indicated for PT1A ... Turned out it was PT3AN1M0 because of

Discussion: Bladder Cancer: High grade

Support Group: Bladder Cancer

Posted: Jun 24 2:07pm

My aneurism as-sending arortic I have my yearly CT tomorrow. The last one was 4.1. It...

https://connect.mayoclinic.org/comment/1334519/

The last one was 4.1. ... It had grown .1 in one year.

Discussion: What makes ascending thoracic aortic aneurysms increase in size?

Support Group: Aortic Aneurysms

Posted: Jun 24 7:53pm

Diagnosed with prefibrotic myelofibrosis 7/25. 78 years old with JAK2, ASXL1, ZRSR2 & TET2 mutations. Platelets...

https://connect.mayoclinic.org/comment/1366821/

7/25. 78 years old with JAK2, ASXL1, ... Platelets went to 1.355 million..now ... Questions: 1.

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 9 7:57am

Thanks again for your response. I went back to Mirtazipine 30 mg. I thought I was...

https://connect.mayoclinic.org/comment/1368198/

after taking the increased dose (30) 1

Discussion: Anyone taking Mirtazapine? Is it working for you? Any side effects?

Support Group: Depression & Anxiety

Posted: Aug 11 8:53am

Thank you so much Sharon for your response. I'm calling the Gastroenterologist tomorrow AM. The PA...

https://connect.mayoclinic.org/comment/1372521/

Meghan has only been sober for 1 month

Discussion: Liver Cirrhosis: Want to connect with others

Support Group: Liver Diseases

Posted: Aug 17 9:34am

My doctor loves the word “empiric/empirically”. They empirically know the AI’s work, they empirically give AI’s...

https://connect.mayoclinic.org/comment/1333350/

cancer patients, the empiric fuse is 1

Discussion: Looking for research re: taking AI drugs vs not taking them

Support Group: Breast Cancer

Posted: Jun 23 9:43am

I was diagnosed with myelofibrosis, mds & mpn in March 2025. Im waiting for a donor...

https://connect.mayoclinic.org/comment/1368766/

My diagnosis came 1 year after my first

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 12 2:42am

I am down to 3.75mg, reducing by 1/4 every 2 weeks. Praying it works for me....

https://connect.mayoclinic.org/comment/1352089/

I am down to 3.75mg, reducing by 1/4

Discussion: Polymyalgia rheumatica: Any thoughts on my taper plan?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 20 5:57am