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Comments (2,483)

Hi @melissaeckert2018 A positive ANA doesn’t mean you have lupus. It means you may have a...

https://connect.mayoclinic.org/comment/221456/

positive ANA doesn’t mean you have lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Sep 15, 2020

Hi, @srountree3006 - welcome to Connect. You will note that I moved your post to this...

https://connect.mayoclinic.org/comment/118464/

order MRIs before testing you for lupus

Discussion: Multiple Sclerosis (MS) - please introduce yourself

Support Group: Brain & Nervous System

Posted: Jun 5, 2019

Yes, I was diagnosed by a neurologist after other atttempts, RA, lupus, ALS, etc. an intrinsic...

https://connect.mayoclinic.org/comment/92335/

neurologist after other atttempts, RA, lupus

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 1, 2018

Good morning, I've had OLP since July 2021. I'm a 70 year old woman, no children,...

https://connect.mayoclinic.org/comment/1033524/

are rife in my family eg Coeliac, lupus ... and more than men a likely to get lupus

Discussion: Oral lichen Planus: What home remedies or medications help you?

Support Group: Autoimmune Diseases

Posted: Mar 14, 2024

I had a very aggressive lumbar fusion on 4/7. At my follow-up appointment I asked why...

https://connect.mayoclinic.org/comment/895205/

I do have lupus anticoagulant (not lupus

Discussion: Long lasting hematoma on buttock

Support Group: Just Want to Talk

Posted: Jul 13, 2023

Hi, this is my first post. I feel that you are describing so much of what...

https://connect.mayoclinic.org/comment/796398/

disease, Restless leg disease then Lupus ... for liver, thyroid, Fibromyalgia and Lupus

Discussion: MCTD, Fibromyalgia, Reynauds

Support Group: Autoimmune Diseases

Posted: Jan 13, 2023

Hi @kcareconnections, and welcome to Mayo Clinic Connect! How frustrating to begin having worsening problems without...

https://connect.mayoclinic.org/comment/1367911/

related to your dysautonomia and/or lupus ... you do have both dysautonomia and lupus

Discussion: Esophageal dysmotility

Support Group: Digestive Health

Posted: Aug 10 5:31pm

Chzuck: I have lupus and was first put on generic hydroxychloroquine, and it gave me bowel...

https://connect.mayoclinic.org/comment/1114036/

Chzuck: I have lupus and was first

Discussion: Methotrexate and Hydroxychloroquine

Support Group: Autoimmune Diseases

Posted: Jul 29, 2024

This thread is very informative. I may be too accepting of all the weird and unpleasant...

https://connect.mayoclinic.org/comment/948845/

I have had a lupus diagnosis, been told

Discussion: Sensory-motor PN and feeling "chilly"?

Support Group: Neuropathy

Posted: Oct 16, 2023

Summerof42, Bless you. I am on nothing for long Covid. I am on Plaquenil 200 mg...

https://connect.mayoclinic.org/comment/880426/

take 100 mg - senstive to meds) for Lupus

Discussion: Anyone out there on Guanfacine?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 17, 2023

Going to try it. I laugh a lot and have adopted my 4 year old God...

https://connect.mayoclinic.org/comment/98325/

amputee plates in my neck and arm plus lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: May 28, 2019

I appreciate being added, thank you. Hi im Julie, ive had a lot of health concerns...

https://connect.mayoclinic.org/comment/145299/

also have psoriatic arthritis and lupus

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Apr 6, 2017

I have been on that same dose of HCQ for more than 6 years for my...

https://connect.mayoclinic.org/comment/1359267/

of HCQ for more than 6 years for my lupus

Discussion: Overreaction to HCQ, what next?

Support Group: Autoimmune Diseases

Posted: Jul 29 12:56pm

Have you had an emg/nerve conduction test along with a biopsy for small fifer neuropathy? Neuropathy...

https://connect.mayoclinic.org/comment/1259009/

neuropathy there is and Sjogrens along with lupus

Discussion: Does anyone have periodic fever episodes that last less than 12 hours?

Support Group: Autoimmune Diseases

Posted: Mar 15 10:10pm

I tried dexamethasone .5mg/50mg steroid mouth swish. It was wonderful! My PCP suspects its a symptom...

https://connect.mayoclinic.org/comment/1306184/

suspects its a symptom of SLE (systemic lupus

Discussion: Is lichen planus connected to autoimmune conditions?

Support Group: Autoimmune Diseases

Posted: May 17 11:49am

Hi, I am 59 years old female with CIDP, Lupus RA, OA, Sjogrens, Graves, TBI and...

https://connect.mayoclinic.org/comment/1007436/

am 59 years old female with CIDP, Lupus

Discussion: Does medical marijuana work for chronic pain?

Support Group: Chronic Pain

Posted: Jan 31, 2024

My whole life I’ve had normal platelets til now. Found out they are 130,000. My md...

https://connect.mayoclinic.org/comment/778606/

I also have lupus anticoagulant aka

Discussion: Low Platelets: Diagnosis to be confirmed

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

I get hot cheeks, ears, hands and at times feet. I havent been diagnosed. What is...

https://connect.mayoclinic.org/comment/213697/

Not lupus.

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Feb 7, 2020

I'm being seen by a Nurse Practitioner to a rheumatologist. When I told her of the...

https://connect.mayoclinic.org/comment/138013/

physician did other tests and ruled out Lupus

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8, 2019

Buzz23, You certainly have a plateful. In this world of busyness, there are compassionate people that...

https://connect.mayoclinic.org/comment/925451/

seeing a good rheumatologist for your Lupus

Discussion: Drowning

Support Group: Autoimmune Diseases

Posted: Sep 6, 2023