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Comments (2,431)

Have you had an emg/nerve conduction test along with a biopsy for small fifer neuropathy? Neuropathy...

https://connect.mayoclinic.org/comment/1259009/

neuropathy there is and Sjogrens along with lupus

Discussion: Does anyone have periodic fever episodes that last less than 12 hours?

Support Group: Autoimmune Diseases

Posted: Mar 15 10:10pm

Hi, I am 59 years old female with CIDP, Lupus RA, OA, Sjogrens, Graves, TBI and...

https://connect.mayoclinic.org/comment/1007436/

am 59 years old female with CIDP, Lupus

Discussion: Does medical marijuana work for chronic pain?

Support Group: Chronic Pain

Posted: Jan 31, 2024

My whole life I’ve had normal platelets til now. Found out they are 130,000. My md...

https://connect.mayoclinic.org/comment/778606/

I also have lupus anticoagulant aka

Discussion: Low Platelets: Diagnosis to be confirmed

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

I get hot cheeks, ears, hands and at times feet. I havent been diagnosed. What is...

https://connect.mayoclinic.org/comment/213697/

Not lupus.

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Feb 7, 2020

I'm being seen by a Nurse Practitioner to a rheumatologist. When I told her of the...

https://connect.mayoclinic.org/comment/138013/

physician did other tests and ruled out Lupus

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8, 2019

Buzz23, You certainly have a plateful. In this world of busyness, there are compassionate people that...

https://connect.mayoclinic.org/comment/925451/

seeing a good rheumatologist for your Lupus

Discussion: Drowning

Support Group: Autoimmune Diseases

Posted: Sep 6, 2023

Talk to another Dr about it. Ivermectin and hydroxychloroquine don’t do anything for Covid but long...

https://connect.mayoclinic.org/comment/892206/

Research how it helps lupus and make

Discussion: Post Covid Symptoms and what has helped me.

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 8, 2023

I have been on Prolia for 3 years as I have severe Osteoporosis at 55. I...

https://connect.mayoclinic.org/comment/1340345/

I tested positive for Lupus SLE last

Discussion: Anyone with autoimmune problems taking Prolia for osteoporosis?

Support Group: Autoimmune Diseases

Posted: Jul 3 10:52am

I saw my PCP yesterday June 20 and told him about my hand and wrist pain...

https://connect.mayoclinic.org/comment/1090841/

Could be PMR, arthritis, lupus, etc.

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 21, 2024

Hello @twinkie23, I know it must be difficult for you now with your recent symptoms and...

https://connect.mayoclinic.org/comment/1069985/

being diagnosed with Neuropsychiatric Lupus

Discussion: Neuropsychiatric Lupus

Support Group: Autoimmune Diseases

Posted: May 18, 2024

Yes my doctor did because he wasn't convinced it was PMR at first but I've been...

https://connect.mayoclinic.org/comment/973724/

Why do they keep testing me for Lupus

Discussion: PMR flare at a drop from 8 to 7 mg of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 2, 2023

My neurologist is awesome and I just had an MRI today. My rheumotologist is not so...

https://connect.mayoclinic.org/comment/722524/

the basic tests for Sjogren's, Lupus

Discussion: Seeking Help for Unknown Medical Issue

Support Group: Autoimmune Diseases

Posted: Jun 30, 2022

I was accepted and waitlisted at Mayo neurology. It was told that it would be a...

https://connect.mayoclinic.org/comment/1184594/

I also have lupus and have been denied

Discussion: Accepted for by Neurology at Mayo Clinic. How to be seen sooner?

Support Group: Visiting Mayo Clinic

Posted: Dec 4, 2024

Diagnosed with tumid lupus in 2007, confirmed via biopsy 3x. Diagnosed with rosacea 1998, yet it...

https://connect.mayoclinic.org/comment/146267/

Diagnosed with tumid lupus in 2007, ... yet it was the butterfly rash from lupus ... Proof it's tumid lupus with SLE ... rheumatologist he doesn't think it's lupus ... more doctors educated to what Tumid Lupus

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Aug 28, 2019

Ha! never tried sneezing on a frog yet! I'm on warfarin and my INR nurse does...

https://connect.mayoclinic.org/comment/299227/

neuropathy and none of the ones for lupus

Discussion: Lyrica - Looking for Patient Experiences

Support Group: Neuropathy

Posted: May 10, 2020

Thank you for your replies! (Sorry for the delay in saying so.) I'm on methotrexate and...

https://connect.mayoclinic.org/comment/308768/

UCTD that's then evolved into lupus