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cdcc
@cdcc

Posts: 134
Joined: Nov 28, 2017

Tapering off Lyrica gave me panic, nausea, extreme anxiety

Posted by @cdcc, Nov 28, 2017

I have been taking Lyrica 150 mg two times a day for four years for trigeminal nerve neuralgia from shingles. Since I am now beginning to loose my teeth from this medication I decided to go off it. Folding my doctors withdrawal program I became very sick. Panic, extreme anxiety, nausea, could not eat and lost 17 pounds in 7 weeks, not good I’m tiny as it is. Ended in the ER for I’ve fluids, nausea medications. Back to the family doctor. He put me back on 50mg a day because he felt I needed a long withdrawal from the medications then also said you may have to go back on your full dosing which after all this suffering I am doing I don’t want to do that. I have even made an appoint with a psychiatrist to help with the anxiety although my family doctor gave me Ativan 0:5mg to take twice daily. I don’t even wan5 to go outside the house, haven’t driven in 7 weeks afraid my anxiety or panic will take over. Has anyone experienced these conditions with coming off this medication. Thank you

REPLY

Hello @cdcc and welcome to Mayo Connect.

I’m so sorry to hear of the side effects that you were having with Lyrica – I can certainly understand your wanting to go off of it. While I have never taken this med myself, I know from other discussions how important it is to follow a tapering off schedule It is best to allow your doctor to help you develop a plan to taper off this type of med.

I am going to invite @johnbishop and @jimhd to this discussion as they are also volunteer mentors with Mayo Connect and discuss a lot of problems with neuropathy, chronic pain and other nerve disorders. Perhaps they can add to this discussion if they have known of others who have taken this med.

I would also invite you to read the discussion on Trigeminal nerve pain. Many of the members have used Lyrica or other drugs. Here is the link, https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/?pg=9#comment-80086.

I am glad to hear that you have an appointment with a psychiatrist to discuss the problems you are having with the withdrawal process.

Will you keep in touch with us and let us know how you are doing?

Teresa

Hi, @cdcc, and welcome to Mayo Clinic Connect. Sounds like you have been through a lot. I am a moderator here, but taking off that hat, I can identify with having neuralgia following shingles. It was scary since I knew that for some people, the itching/pain is permanent–my husband worked with someone like that. I took gabapentin, and the problem finally disappeared about two months after the shingles went away.

We have many members here who have had real struggles with tapering off various medications. I’m tagging here a few members who have talked about issues like that or who have been on Lyrica specifically: @parus, @sam65, @pcm1957, @thedinnymurph, @ujeeniack @gailb and @confused1955 may have something to say.

That sounds like a wise decision to make an appointment with a psychiatrist. Is your appointment soon?

Hello @cdcc, Teresa (@hopeful33250) is right. It is best to work with your doctor to taper off of Lyrica (pregabalin). Tapering off too quickly can be life threatening with the side effects worse than the original pain/symptoms. I have no medical training or knowledge but know of others that had difficulty tapering off of lyrica and gabapentin and it must be done slowly. The best suggestion I have to work with your doctor to get off of it. Here’s some info on tapering off of Lyrica:

https://www.recovery.org/topics/lyrica/

If possible, please keep in touch with us and let us know how you are doing like Teresa mentioned. I’m sure others are facing similar problems.

John

@johnbishop

Hello @cdcc, Teresa (@hopeful33250) is right. It is best to work with your doctor to taper off of Lyrica (pregabalin). Tapering off too quickly can be life threatening with the side effects worse than the original pain/symptoms. I have no medical training or knowledge but know of others that had difficulty tapering off of lyrica and gabapentin and it must be done slowly. The best suggestion I have to work with your doctor to get off of it. Here’s some info on tapering off of Lyrica:

https://www.recovery.org/topics/lyrica/

If possible, please keep in touch with us and let us know how you are doing like Teresa mentioned. I’m sure others are facing similar problems.

John

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Thank you for the link on Lyrica. Interesting readingand know others suffer like I am. Also that phone numbers are listed to find centers that hold meetings to help you. I think 8 have found the right site for support. Thank you again so very much

@johnbishop

Hello @cdcc, Teresa (@hopeful33250) is right. It is best to work with your doctor to taper off of Lyrica (pregabalin). Tapering off too quickly can be life threatening with the side effects worse than the original pain/symptoms. I have no medical training or knowledge but know of others that had difficulty tapering off of lyrica and gabapentin and it must be done slowly. The best suggestion I have to work with your doctor to get off of it. Here’s some info on tapering off of Lyrica:

https://www.recovery.org/topics/lyrica/

If possible, please keep in touch with us and let us know how you are doing like Teresa mentioned. I’m sure others are facing similar problems.

John

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My problem from the trigeminal nerve shingles is severe itch, I have bumps in my head from all the itching. I’ve had nerve blocks done shots in my eyebrow and many other treatments with no help. That’s why I was put on Lyrica. I even called Pfizer and told them about all the withdrawal symptoms I am having. Their reply “oh I’m sorry” like that helped. Even thought of getting a lawyer. I’m to start now on taking a half capsule of 50mg Lyrica daily…these withdrawal symptoms should be listed on the contraindications,

@johnbishop

Hello @cdcc, Teresa (@hopeful33250) is right. It is best to work with your doctor to taper off of Lyrica (pregabalin). Tapering off too quickly can be life threatening with the side effects worse than the original pain/symptoms. I have no medical training or knowledge but know of others that had difficulty tapering off of lyrica and gabapentin and it must be done slowly. The best suggestion I have to work with your doctor to get off of it. Here’s some info on tapering off of Lyrica:

https://www.recovery.org/topics/lyrica/

If possible, please keep in touch with us and let us know how you are doing like Teresa mentioned. I’m sure others are facing similar problems.

John

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@cdcc It is quite bothersome that our medical staff does not tell us about the process of stopping a medication. I have not had any problems with Lyrica but I have had it with anti depressants and opiates. I am glad that you are one of few I know who read the fine print so to speak…the literature that is given with our drugs. Please check back in if you do attend any of the meetings you mentioned above. I’d like to hear if they are helpful.
Jen

@cdcc I was put on Gabapenton 300mg 3xday, Baclofen, and Tramadol 50mg 4xday when I had a laminectomy back surgery last December. I decided to stop taking both the Baclofen and the Gabapenton this last spring. I was having problems with losing large amounts of memory and just feeling goofy all the time. I talked with my pain management doctor about withdrawing from both meds and he was not helpful. In fact, I got more information from this site than from him. I talked to my pharmacist who was more helpful. He said I should go down 1 pill for 2 or more weeks before I try to reduce another pill. I think I actually took a month to adjust to the first drop, and 2 months to drop the second pill. I was able to get off all the Gabapenton by the end of 4 months. I felt So much better without it. I also stopped the Baclofen during that time. I’m still taking 1/2 the amount of Tram a dollar for now.

I don’t think doctors should give Gabapenton or Lyrica to anyone. I will never take either of them again.

I really didn’t have too hard a time withdrawing from the Gabapenton. But, that’s why I went very slowly and gave my body time to get over each change. Let me know if you have specific questions that I can help you with. Good luck and just go slow.

@johnbishop

Hello @cdcc, Teresa (@hopeful33250) is right. It is best to work with your doctor to taper off of Lyrica (pregabalin). Tapering off too quickly can be life threatening with the side effects worse than the original pain/symptoms. I have no medical training or knowledge but know of others that had difficulty tapering off of lyrica and gabapentin and it must be done slowly. The best suggestion I have to work with your doctor to get off of it. Here’s some info on tapering off of Lyrica:

https://www.recovery.org/topics/lyrica/

If possible, please keep in touch with us and let us know how you are doing like Teresa mentioned. I’m sure others are facing similar problems.

John

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Oh Mr John I woke up not feeling bad this mornings and after a ate a small breakfast the panic and anxiety set in full force. Had to take an 0.5 Ativan to help which is finally kicking in. But I am so nauseous so having ginger ale with ice chips. Thinking I can’t keep feeling keep Feeling like this I’ve had enough

@johnbishop

Hello @cdcc, Teresa (@hopeful33250) is right. It is best to work with your doctor to taper off of Lyrica (pregabalin). Tapering off too quickly can be life threatening with the side effects worse than the original pain/symptoms. I have no medical training or knowledge but know of others that had difficulty tapering off of lyrica and gabapentin and it must be done slowly. The best suggestion I have to work with your doctor to get off of it. Here’s some info on tapering off of Lyrica:

https://www.recovery.org/topics/lyrica/

If possible, please keep in touch with us and let us know how you are doing like Teresa mentioned. I’m sure others are facing similar problems.

John

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@cdcc,

I’m so sorry that you are having such a bad day. Might it be a good idea to call your doctor and see if there some other help he could give you? When is your next appointment scheduled?

Teresa

@johnbishop

Hello @cdcc, Teresa (@hopeful33250) is right. It is best to work with your doctor to taper off of Lyrica (pregabalin). Tapering off too quickly can be life threatening with the side effects worse than the original pain/symptoms. I have no medical training or knowledge but know of others that had difficulty tapering off of lyrica and gabapentin and it must be done slowly. The best suggestion I have to work with your doctor to get off of it. Here’s some info on tapering off of Lyrica:

https://www.recovery.org/topics/lyrica/

If possible, please keep in touch with us and let us know how you are doing like Teresa mentioned. I’m sure others are facing similar problems.

John

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I don’t have any follow up appointments. At the last visit when he put me back on 50mg Lyrica daily he just said take it for awhile then start decrease 1/2 capsule in applesauce daily. He said there is nothing that can be given for the withdrawals you just have to suffer them out

@johnbishop

Hello @cdcc, Teresa (@hopeful33250) is right. It is best to work with your doctor to taper off of Lyrica (pregabalin). Tapering off too quickly can be life threatening with the side effects worse than the original pain/symptoms. I have no medical training or knowledge but know of others that had difficulty tapering off of lyrica and gabapentin and it must be done slowly. The best suggestion I have to work with your doctor to get off of it. Here’s some info on tapering off of Lyrica:

https://www.recovery.org/topics/lyrica/

If possible, please keep in touch with us and let us know how you are doing like Teresa mentioned. I’m sure others are facing similar problems.

John

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@cdcc

If it were me, I would get a second opinion on that advice. In your first post you mentioned an appointment with a psychiatrist.

Is that coming up soon?

Teresa

Oh no I’m on Lyrica 150 mg. I’m so afraid to get off of this drug. I did get off of gab. I had no side effects at all ! I’m also on vanflaxin . I’m really scared to get off of it, the side effects are really bad I’m told.

@cdcc – Welcome to Connect.

I only took Lyrica for a few weeks, and stopped it abruptly when I was in the hospital because of my severe reaction to it. I was incoherent, among other things. I hope you find a solution to the best treatment for without having to live with the symptoms you describe.

I wish I had been able to take it because it was the only med that relieved my peripheral neuropathy pain in my feet.

Jim

@texas1950

Oh no I’m on Lyrica 150 mg. I’m so afraid to get off of this drug. I did get off of gab. I had no side effects at all ! I’m also on vanflaxin . I’m really scared to get off of it, the side effects are really bad I’m told.

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Hello @texas1950, welcome to Connect! This is a good place to see what others with similar health concerns are doing for treatments by sharing their stories. While some of the stories you read or hear about are pretty awful, everyone’s body reacts differently to the drug. I would work closely with your doctor to taper off of the drug if that is what you are trying to do. I have no medical training or background but think that the problem relates to trying to taper off too quickly and that’s where everyone is different.

If you don’t mind my asking, can you share a little more about your diagnosis being treated by Lyrica?

John

@johnbishop

Hello @cdcc, Teresa (@hopeful33250) is right. It is best to work with your doctor to taper off of Lyrica (pregabalin). Tapering off too quickly can be life threatening with the side effects worse than the original pain/symptoms. I have no medical training or knowledge but know of others that had difficulty tapering off of lyrica and gabapentin and it must be done slowly. The best suggestion I have to work with your doctor to get off of it. Here’s some info on tapering off of Lyrica:

https://www.recovery.org/topics/lyrica/

If possible, please keep in touch with us and let us know how you are doing like Teresa mentioned. I’m sure others are facing similar problems.

John

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My appointment with the psychiatrist isn’t until Jan, along way off. They did put me on their cancellation list. Hopefully I’ll get a call before Jan. I just feel like crap all the time

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