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2,659 total results

Comments (2,428)

Hello everyone, I am on this site due to an infusion I received on Nov. 12,...

https://connect.mayoclinic.org/comment/193150/

I have Lupus but they gave me this treatment

Discussion: Reclast Infusions: Side-effects & Recovery time

Support Group: Osteoporosis & Bone Health

Posted: Nov 20, 2018

I started having all over body pain about a year ago. Started with rheumatologist local clinic,...

https://connect.mayoclinic.org/comment/102134/

at 7 AM I had no pain and my tumid lupus ... The muscle pain and tumid lupus spots ... My tumid lupus spots have returned and

Discussion: Diagnosed with PMR 2 1/2 years ago. How do I manage the extreme pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2018

@sandpiper09, I have several autoimmune diseases - the latest of which to be diagnosed is Lupus....

https://connect.mayoclinic.org/comment/146231/

latest of which to be diagnosed is Lupus ... other doctor who diagnosed you with Lupus ... will affect you - especially with Lupus

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Jul 5, 2017

I have the face thing too. Tinnitus, hyperacusis and eustachian tube issues and vertigo. And cancer,...

https://connect.mayoclinic.org/comment/910873/

And cancer, lupus, osteoporotic fractures

Discussion: Sounds/ringing Tinnitus!

Support Group: Ear, Nose & Throat (ENT)

Posted: Aug 10, 2023

Sorry to hear about your issues, hopefully you find cause soon but did your physicians think...

https://connect.mayoclinic.org/comment/788587/

your physicians think you might have Lupus

Discussion: Post COVID: Anyone experiencing internal vibrations?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 25, 2022

Yes, I have asked. It is not lupus. That was the first thing they thought about....

https://connect.mayoclinic.org/comment/696010/

It is not lupus.

Newsfeed Post: Diagnostic testing, precision medicine and what it means for patients

Blog: Podcasts

Posted: Apr 4, 2022

Hello All, I just happened to stumble across this site. I too have had hives for...

https://connect.mayoclinic.org/comment/1325767/

I tested positive for Lupus SLE but ... Is there anyone else with either Lupus

Discussion: Hives at night: Alpha-gal syndrome?

Support Group: Skin Health

Posted: Jun 12 2:23pm

Good morning! I say I was misdiagnosed because my rheumatologist said I was misdiagnosed and that...

https://connect.mayoclinic.org/comment/1238850/

She said that patients with lupus have

Discussion: What could my doctor be overlooking? ANA 1:1280

Support Group: Autoimmune Diseases

Posted: Feb 17 7:11am

@slkanowitz , What an encouraging letter! Made ME feel better and I'm not even part of...

https://connect.mayoclinic.org/comment/1170632/

really understand, not having had GBS, Lupus

Discussion: CIDP diagnosis after severe GBS long ago, where do I start?

Support Group: Neuropathy

Posted: Nov 9, 2024

I too have MGUS and have intermittent M spikes on labs. Mine is lambda FLC also....

https://connect.mayoclinic.org/comment/1134423/

autoimmune conditions, like ITP and lupus

Discussion: How high has anyone seen Lambda free light chain go with Mgus?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2024

Yes my free light chain tests were abnormal. I have always had a very positive ANA...

https://connect.mayoclinic.org/comment/1064895/

I have a lupus diagnosis and a neuropathy

Discussion: Kappa and Lampda Serum Levels

Support Group: Neuropathy

Posted: May 9, 2024

Female here, I have the same problem you do. Large fiber PN and it is all...

https://connect.mayoclinic.org/comment/960710/

I have it from lupus.

Discussion: Frequent Urination and Large Fiber Neuropathy

Support Group: Neuropathy

Posted: Nov 7, 2023

Hi I have been tested for almost everything. They said no autoimmune markers. No arthritis no...

https://connect.mayoclinic.org/comment/714761/

No arthritis no lupus.

Discussion: Chronic pain and other joint issues: Looking for answers

Support Group: Bones, Joints & Muscles

Posted: Jun 6, 2022

You know it is just amazing to find your own journey in these posts. I have...

https://connect.mayoclinic.org/comment/705595/

By diagnosing Lupus.

Discussion: Dismissing doctors: How do you find a doctor who can help?

Support Group: Bones, Joints & Muscles

Posted: May 5, 2022

@JustinMcClanahan we really dont know where we are in this thing. He's started steroids and the...

https://connect.mayoclinic.org/comment/290957/

is a rare type of arthritis or even lupus

Discussion: Extreme Swelling in the Hand

Support Group: Bones, Joints & Muscles

Posted: Jan 30, 2020

@gemmax, Hello Gem. Thank you for sharing your Sjogren experience. My sister also has Sjogren's along...

https://connect.mayoclinic.org/comment/111312/

Sjogren's along with Systemic Lupus

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 6, 2018

@gailb Thank you for responding. Recently they have thrown an autoimmune disease into the mix but...

https://connect.mayoclinic.org/comment/95222/

They have apparently ruled out Lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Mar 10, 2017

Ask your Dr about hydroxychloroquine. That’s what they use for lupus. I’ve been dealing with long...

https://connect.mayoclinic.org/comment/804816/

That’s what they use for lupus.

Discussion: Anyone experience Post-Covid Inflammatory Arthritis?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 1, 2023

I have been in a Lupus flare since Christmas. On 2× 200 hydroxychloroquine and 7×2.5 methatrexate...

https://connect.mayoclinic.org/comment/1231297/

I have been in a Lupus flare since Christmas

Discussion: 20 years of plaquenil is affecting my sight. Thoughts?

Support Group: Autoimmune Diseases

Posted: Feb 7 7:39am

Hi Colleen, thank you so much for acknowledging my email. Yes I have been diagnosed with...

https://connect.mayoclinic.org/comment/221454/

Yes I have been diagnosed with lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Sep 5, 2020