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Comments (2,482)

I have been tested by 4 different rheumatologists for 12 years. They thought I had Lupus,...

https://connect.mayoclinic.org/comment/1341333/

They thought I had Lupus, but I was ... rheumatologist who stated that I don't have Lupus

Discussion: Can glucosamine and chondroitin help relieve fibromyalgia pain?

Support Group: Fibromyalgia

Posted: Jul 5 5:54am

I’m both a patient with 6 autoimmune disorders and a retired/disabled healthcare provider. I have seen...

https://connect.mayoclinic.org/comment/1190013/

decade to get my first diagnosis of lupus ... Some people with lupus have no other ... fatigue and is thought to trigger lupus ... suggest reviewing the symptoms of lupus

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 13, 2024

@dp5wheels25 Did you have any abnormalities show up in your bloodwork (anything outside reference ranges or...

https://connect.mayoclinic.org/comment/1384750/

tuberculosis) -Autoimmune Disorders (RA/lupus

Discussion: Still No Answers..Is it Just Me?

Support Group: Autoimmune Diseases

Posted: Sep 2 6:25am

You need to see a neuromuscular neurologist and a neuromuscular physical therapist. Neuromuscular helps with muscles...

https://connect.mayoclinic.org/comment/1313283/

I have lupus Hashimotos Sjogrens and

Discussion: Periferal neuropathy and loss odbalance and walking ability

Support Group: Neuropathy

Posted: May 26 11:31am

@lylii for me it is drug side effects vs fracture side effects (I have 7). Fractures...

https://connect.mayoclinic.org/comment/1159688/

I have kidney disease, afib and lupus

Discussion: Does anyone have a solution to help manage Reclast side effects?

Support Group: Osteoporosis & Bone Health

Posted: Oct 19, 2024

I have tested positive for Autoimmune Disease. However I have no idea which one. I have...

https://connect.mayoclinic.org/comment/225357/

First it was Sjogrens, maybe Lupus,

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Apr 4, 2020

I have systemic lupus, arthritis everywhere - according to my orthopedic doc - and degenerative disc...

https://connect.mayoclinic.org/comment/242919/

I have systemic lupus, arthritis everywhere

Discussion: Anyone had experience with OsteoStrong, who is not a franchisee?

Support Group: Osteoporosis & Bone Health

Posted: Feb 1, 2020

After my Covid vaccine, I too suffered a STEMI and had 5 cardiac stents placed. I...

https://connect.mayoclinic.org/comment/1361518/

rheumatoid arthritis (with possible lupus

Discussion: ANA test follow up results - anyone else experience this

Support Group: Autoimmune Diseases

Posted: Aug 1 1:09pm

This is my update. I did see my doctor first part on June. He did a...

https://connect.mayoclinic.org/comment/1357957/

disease but 2 sisters had markers for lupus

Discussion: Endometrial adenocarcinoma

Support Group: Gynecologic Cancers

Posted: Jul 27 6:59pm

In reading your history translations is there polyarteritis and pneumonitis that did not transcribe well.? I...

https://connect.mayoclinic.org/comment/1093724/

The lupus anticoagulant and lung nodules

Discussion: Sedimentación Rate elevated, Proteína C Reactive elevated for 3 years

Support Group: Autoimmune Diseases

Posted: Jun 25, 2024

I know some people disagree with me on this, and that's ok. My Fibro ramped up...

https://connect.mayoclinic.org/comment/868590/

and then I am now being treated for Lupus

Discussion: Thought I was over, but I'm back with PostCovid

Support Group: Post-COVID Recovery & COVID-19

Posted: May 29, 2023

Hello everyone, I am on this site due to an infusion I received on Nov. 12,...

https://connect.mayoclinic.org/comment/193150/

I have Lupus but they gave me this treatment

Discussion: Reclast Infusions: Side-effects & Recovery time

Support Group: Osteoporosis & Bone Health

Posted: Nov 20, 2018

Good point @meeshodge. My daughter and I both did an elimination diet 20 years ago and...

https://connect.mayoclinic.org/comment/1180281/

I have a diagnosis of lupus and had

Discussion: Since 2005 my ANA titre is 1:5147; docs can’t find which disease

Support Group: Autoimmune Diseases

Posted: Nov 26, 2024

I have both Hoshimotos and Graves’ disease. Most of the endo’s i’ve seen don’t take hoshimotos...

https://connect.mayoclinic.org/comment/1083530/

threatening autoimmune disease including lupus

Discussion: Hashimoto's Thyroiditis and IVIG Treatment?*

Support Group: Autoimmune Diseases

Posted: Jun 9, 2024

Forgive the intrusion: not a transplant patient but taking Cellcept 1000mg 2x day +prednisone bursts as...

https://connect.mayoclinic.org/comment/308581/

day +prednisone bursts as needed for lupus

Discussion: Transplant anti-rejection medications. What's your advice?

Support Group: Transplants

Posted: Apr 26, 2020

I started having all over body pain about a year ago. Started with rheumatologist local clinic,...

https://connect.mayoclinic.org/comment/102134/

at 7 AM I had no pain and my tumid lupus ... The muscle pain and tumid lupus spots ... My tumid lupus spots have returned and

Discussion: Diagnosed with PMR 2 1/2 years ago. How do I manage the extreme pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2018

@sandpiper09, I have several autoimmune diseases - the latest of which to be diagnosed is Lupus....

https://connect.mayoclinic.org/comment/146231/

latest of which to be diagnosed is Lupus ... other doctor who diagnosed you with Lupus ... will affect you - especially with Lupus

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Jul 5, 2017

I have the face thing too. Tinnitus, hyperacusis and eustachian tube issues and vertigo. And cancer,...

https://connect.mayoclinic.org/comment/910873/

And cancer, lupus, osteoporotic fractures

Discussion: Sounds/ringing Tinnitus!

Support Group: Ear, Nose & Throat (ENT)

Posted: Aug 10, 2023

Sorry to hear about your issues, hopefully you find cause soon but did your physicians think...

https://connect.mayoclinic.org/comment/788587/

your physicians think you might have Lupus

Discussion: Post COVID: Anyone experiencing internal vibrations?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 25, 2022

Yes, I have asked. It is not lupus. That was the first thing they thought about....

https://connect.mayoclinic.org/comment/696010/

It is not lupus.

Newsfeed Post: Diagnostic testing, precision medicine and what it means for patients

Posted: Apr 4, 2022