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1,041 total results
Comments (925)
Bless you. I am so sorry. The medical field has changed a lot since COVID. I...
out MS, Rheumatoid Arthritis & Lupus ... Your primary doctor could run a sed. ... something like, "Do you think I could
Support Group: Just Want to Talk
Posted: Jun 23, 2024
So sorry to hear about your mom. Seems kind of like seizures with cumulative damage to...
That would not necessarily show up, ... culprits being Sjogren's Syndrome, Lupus ... have an autoimmune disease, which could
Support Group: Autoimmune Diseases
Posted: Jun 22, 2024
I relate. It was since my early 20’s until about 5 years ago. Even then, my...
, my doctor did NOT do the ANA for Lupus ... but just a glance to the face and would ... smile and say “You don’t have Lupus
Support Group: Autoimmune Diseases
Posted: Jun 7, 2024
It is so bizarre.So at the very beginning I could not swallow at all.The specialists were...
bizarre.So at the very beginning I could ... nothing was working.The GI Doctors could ... That might help your vocal chord.I could ... disease called LEMS.I thought I had Lupus ... the vagus nerve when you get time.I could
Posted: May 17, 2024
I always feel calm. It's weird. Maybe it is a physical effect. But I am not...
my rate were to come down, if they would ... breathing, with bearing down, with cold ... But I could get the bolus of diltiazem ... had been lower with my home cuff I would ... diltiazem to help me take steroids (lupus
Hey Woody319, I have Raynaud's and doctors do not seem to be concerned about it at...
My hands and feet stay cold (I have ... When I pick up anything cold, such as ... other autoimmune diseases such as Lupus
Support Group: Autoimmune Diseases
Posted: May 4, 2024
I too suffered for years not knowing what was wrong. Similar symptoms and every neurologist said...
definitely something going on either Lupus ... my legs and hips and at one point could ... a Rheumatologist in UCLA and they couldn ... No one could figure it out. ... It was horrible and I could not function
Mine have been hazy since 2002 when I had bacterial spinal meningitis. No on would listen...
No on would listen to me about my feet ... No one would try IVIG therapy so I have ... In my chart one doctor says Lupus another
Support Group: Neuropathy
Posted: May 2, 2024
I have had sle for 40+ years and have studied and experienced it in depth. Here’s...
Could you elaborate on those with a ... wondering if you have had symptoms of lupus ... Symptoms of lupus can precede the lab ... A skin biopsy by a dermatologist would ... I would encourage you to be proactive
Support Group: Autoimmune Diseases
Posted: Apr 14, 2024
Glad I found this thread. I was vaccinated in Feb 2022 and in March 2023, I...
After COVID, I would wake up every morning ... that affects the neurological system (Lupus
Support Group: Sleep Health
Posted: Apr 3, 2024
@sunscominup I meant to also say that it is concerning your doctor is dismissing you and...
I would get a new doctor for sure and ... My mom had RA/lupus/Hashimotos/fibromyalgia ... The only way I could get officially ... rose above 4+ and at that point I could
I will be truthful. I have had several neurologist tell me this mimics Parkinson’s and MS....
The doctors have it narrowed to RA, lupus ... hot they feel good when he puts his cold ... A regular neurologist could not answer ... but it explained why no neurologist could ... up in the middle of the night and could
Support Group: Neuropathy
Posted: Mar 11, 2024
Gosh, I feel like I'm late to the party.....all the posts are from 2023! I was...
For symptoms, I could cut and paste ... something I've never heard of that could ... platelets, tested positive for both lupus ... I would be interested in talking to
Support Group: Autoimmune Diseases
Posted: Feb 29, 2024
No, you are not crazy. It isn't "you". Sometimes it isn't even the doctors. I posted...
doctors who also get frustrated, I could ... while but by the fourth injection, I could ... him personally and asked him if he would ... I have Lupus. ... It couldn't all be aging.
Support Group: Autoimmune Diseases
Posted: Feb 25, 2024
I lost my job because I could not get into a Neurologist in Michigan. After many...
I lost my job because I could not get ... She had Migraines, Lupus, Kidney and ... I would walk crushed glass to get to
Your platelets, if low as well, might cause nosebleeds. I would avoid aspirin, ibuprofen and naproxen...
I would avoid aspirin, ibuprofen and ... Lupus is the main autoimmune condition ... but I would caution you not to try
Posted: Feb 12, 2024