PV – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

1,156 total results

Comments (1,069)

Good morning! I wish we could have a cup of coffee together. Your post sounds familiar...

https://connect.mayoclinic.org/comment/1279837/

Diagnosed with PV 2 years ago at age ... and a bone marrow biopsy indicated PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2025

I'm right there with you but have different medical conditions to juggle.. I have a heart...

https://connect.mayoclinic.org/comment/1196509/

condition(stent placement in 2011), PV ... PV as do NOT want this to morph into

Discussion: Am I alone with so many maladies?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2024

Yes, sick stomach from Hydrea, massive hair loss after 2 years of taking the stuff, initially...

https://connect.mayoclinic.org/comment/951861/

why I am on warfarin is prior to my PV ... developed lung clot, blood test sent for PV ... check, result..PV diagnosed with a

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

I couldn't agree more, Lori has and I know will continue to be a huge support...

https://connect.mayoclinic.org/comment/912870/

That had kept my PV in check, who knew ... Vampire Visits 😉 Prior to the PV ... and other not great side affects of PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Lori, What a blessing !!! Thank you !!! Hospital missed PV Nov 2020 but; Hospitalized same...

https://connect.mayoclinic.org/comment/795959/

Hospital missed PV Nov 2020 but; Hospitalized

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

I haven't watched it, but all those thoughts flit through my mind, for sure. I, who...

https://connect.mayoclinic.org/comment/1236773/

The other local PV patients I know are

Discussion: Blame, guilt, false hope: Anyone watch "Apple Cider Vinegar"

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2025

I had one doctor tell me I had secondary PV and another tell me I did...

https://connect.mayoclinic.org/comment/944287/

one doctor tell me I had secondary PV

Discussion: Wow, a boomerang with a doctor.

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023

Hello friends! I have PV NOW PROGRESSED TO MF MYELOFIBROSIS ! Hot humid weather is brutal...

https://connect.mayoclinic.org/comment/1336577/

I have PV NOW PROGRESSED TO MF MYELOFIBROSIS

Discussion: Hot weather & Chemo/Treatments

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2025

First, Im sorry for your loss. Second, thank God for your husband. Now, and I will...

https://connect.mayoclinic.org/comment/1277843/

and you’re scared and if you have PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2025

Thanks for comment. Joe has polycythemia vera (PV Platelets go high sometimes the red blood cells...

https://connect.mayoclinic.org/comment/1067692/

Joe has polycythemia vera (PV Platelets

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2024

Hello, Did you say skier? Are you aware that being in high altitudes thickens your blood...

https://connect.mayoclinic.org/comment/1024673/

I was diagnosed with PV 13 months ago

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 29, 2024

Hi All — I’m new here. I was diagnosed with PV in Nov ‘22 (I was...

https://connect.mayoclinic.org/comment/892975/

I was diagnosed with PV in Nov ‘22 (

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2023

Hi back buckaroobanzai, I truly get the pacing one's self. Law school awesome learning category. I...

https://connect.mayoclinic.org/comment/891149/

research on eating for and managing PV

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

Yes, I take 500mg of hydroxyrea daily but have not required phlebotomies for nearly a year...

https://connect.mayoclinic.org/comment/848905/

While the PV blood chemistry seems to

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

I had a doctor in Houston that I really liked and who believed I have secondary...

https://connect.mayoclinic.org/comment/889376/

I have secondary or non cancerous PV

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2023

Did not know about sun impact, I always lather it on being fair with blue eyes...

https://connect.mayoclinic.org/comment/883029/

that point out the dangers of sun and PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

Thank so much for sharing It sounds like this is not easy fix for fatigue! I...

https://connect.mayoclinic.org/comment/1360256/

HCT AND RED BLOOD CELLS I HAVE HAD PV

Discussion: Iron Infusions/Side Effects

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2025

I have been seeing Dr. Palmer for PV and she is all that. And, she is...

https://connect.mayoclinic.org/comment/1315708/

Palmer for PV and she is all that.

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 29, 2025

albertedward and dale1k , Thank you so much for the information and support (I would have...

https://connect.mayoclinic.org/comment/813462/

(AS JUST NORMAL FOR ME BECAUSE OF PV

Discussion: Your tips as I prepare for first phlebotomy

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

It's my understanding that PV IS a blood cancer, it's a progressive disease with no cure..There...

https://connect.mayoclinic.org/comment/1086347/

It's my understanding that PV IS

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024