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1,039 total results
Comments (923)
What a lovely welcome to a new group! I am a newbie here and your comment...
https://connect.mayoclinic.org/comment/1271154/
I was dxd with Fibromyalgia and Lupus ... You could also do beaded jewelry. ... what beads/colors and charms they would
Discussion: Have you found anything to successfully treat fibromyalgia pain?
Support Group: Fibromyalgia
Posted: Mar 31 3:57pm
andromeda4845, there was a good post on antibody testing this week that I can't locate yet....
https://connect.mayoclinic.org/comment/1230739/
might ask for retesting ANA and I would ... text=If%20you%20have%20a%20positive,Lupus ... request handy (as some physicians would
Discussion: MCTD
Support Group: Autoimmune Diseases
Posted: Feb 6 11:30am
Sorry got interrupted. She should be checked for ALL treatable causes of peripheral neuropathy in case...
https://connect.mayoclinic.org/comment/1238795/
other autoimmune disorders such as lupus ... A condition like those would contribute ... drug before/ after plasmapheresis would ... Neurologist could just call it in to ... It could feel like a miracle in terms
Discussion: What are the next steps to take after IVIG has not worked?
Support Group: Autoimmune Diseases
Posted: Feb 17 4:41am
Hi- I've had lupus, fibromyalgia and reynauds for 48 years. I've had many critical times and...
https://connect.mayoclinic.org/comment/1247983/
Hi- I've had lupus, fibromyalgia ... use alternative methods as the drugs would ... the winter at different times as the cold
Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?
Support Group: Autoimmune Diseases
Posted: Mar 1 10:47am
Sounds like me, except for the stones. But no on Lupus. My ana was "small" but...
https://connect.mayoclinic.org/comment/1262982/
But no on Lupus. ... have Raynaud's Syndrome...red, cold ... painful yet numb feet (always) and get cold ... (His uncle's COD was Lupus) and ... only then would his hospital treat him
Discussion: Need Help
Support Group: Autoimmune Diseases
Posted: Mar 20 7:52pm
4 days after getting the vaccine I became suddenly ill. Lost vision in my left eye...
https://connect.mayoclinic.org/comment/1269745/
, tinnitusy sensation so extreme I would ... legs became so heavy one morning I couldn ... have also now been recently dx with Lupus ... I had also tested positive for Lupus ... I found out in January 2025 I have Lupus
Discussion: Post COVID: Anyone experiencing internal vibrations?
Support Group: Post-COVID Recovery & COVID-19
Posted: Mar 30 2:39am
@naturegirl5 Such a thought provoking post. Thank you and all the very best. Reading all comments...
https://connect.mayoclinic.org/comment/1189316/
because I wanted to be as normal as I could ... I have close friends who live with Lupus
Discussion: I am a cancer survivor
Support Group: Cancer
Posted: Dec 12, 2024
Good morning all. I've been reading these posts with interest. I too have issues similar to...
https://connect.mayoclinic.org/comment/1187913/
I have a plethora of issues with Lupus ... OTC medicated cold/allergy spray with ... Maybe this could give you temporary
Discussion: Any answers to rid continual stubborn phlegm from throat?
Support Group: Ear, Nose & Throat (ENT)
Posted: Dec 10, 2024
@Ini888 I wonder if the ice pick headaches on the same side as the blurry eye,...
https://connect.mayoclinic.org/comment/1173727/
on the same side as the blurry eye, could ... If so, could the biopsy have missed ... I do have a lupus diagnosis but that
Discussion: New to Autoimmune Diseases, concerned blurry vision
Support Group: Autoimmune Diseases
Posted: Nov 15, 2024
Welcome Toolman 53! I too have had a combination of GBS and CIDP although my timeline...
https://connect.mayoclinic.org/comment/1170525/
From a drug I took for 25 years for lupus ... later had a severe episode of GBS and couldn ... I would take advantage of virtual appointments
Discussion: CIDP diagnosis after severe GBS long ago, where do I start?
Support Group: Neuropathy
Posted: Nov 9, 2024
Hi 👋 I was diagnosed with Raynauds about 10 years ago. My rheumatologist thought I also...
https://connect.mayoclinic.org/comment/1178546/
thought I also possibly had either lupus ... help as the side effects increase cold ... washing on the line, being out in the cold ... My rheumatologist feels hydroxy would
Discussion: Anyone living with Raynaud's?
Support Group: Autoimmune Diseases
Posted: Nov 23, 2024