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75 total results

Comments (69)

Sorry for rambling, but by sharing my experience I hope to provide some insight and respond...

https://connect.mayoclinic.org/comment/684686/

and the disease does not progress to Pmf ... Progression from CLL, to ET to Pmf and

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2022

Hmm, I think @1pearl mentioned that her platelet levels are dropping without meds and that she...

https://connect.mayoclinic.org/comment/1248005/

If you have the CALR mutation, ET, PMF

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

Pattitoo.... Let me share my three years of experience in chasing my diagnosis. First, high platelets...

https://connect.mayoclinic.org/comment/328589/

I have PMF which IF it progresses might

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2021

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

thrombocythemia (ET), and primary myelofibrosis (PMF

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

I'm waiting for a bone marrow transplant. Also waiting to see if one of my siblings...

https://connect.mayoclinic.org/comment/890177/

Thrombocythemia and it morphed into PMF

Discussion: Can anyone share their bone marrow transplant caregiver experience?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 4, 2023

hello. I was diagnosed with ET over 25 years ago, while young and in the Service...

https://connect.mayoclinic.org/comment/890155/

Same with PMF, its like a malfunction

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

I was recently diagnosed with Osteopenia/Osteoporosis...depending if you go with the Holologic or GE Lunar analysis....

https://connect.mayoclinic.org/comment/1100303/

am exploring the possibility of a PMF

Discussion: Bone Coach - How do you know it works?

Support Group: Osteoporosis & Bone Health

Posted: Jul 6, 2024

Hi again nohrt4me, Thanks again for posting. It was so nice to have someone just listen...

https://connect.mayoclinic.org/comment/1247717/

she thought I have and came up with PMF

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2025

Please listen to this podcast where Dr Keith McCormick (author of Great Bones, an “encyclopedia” about...

https://connect.mayoclinic.org/comment/1372081/

si=vYYLU0ua0PMf_USF Hope this helps

Discussion: Do I need to start Prolia? or can I wait and follow my lab results to

Support Group: Osteoporosis & Bone Health

Posted: Aug 16, 2025