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75 total results
Comments (69)
@gset I was diagnosed with PMF in January of this Year 2026: in what year was...
https://connect.mayoclinic.org/comment/1561165/
@gset I was diagnosed with PMF in January ... what year was your diagnosis for MF(PMF
@hughp Thank you for sharing your story about your diagnosis with PMF (primary myelofibrosis). It can...
https://connect.mayoclinic.org/comment/1529843/
your story about your diagnosis with PMF ... get you started to meet members with PMF ... search=PMF
How have you been feeling
I don't know what white coat syndrome is. For a while, MPN researchers were looking at...
https://connect.mayoclinic.org/comment/1247160/
looking at all ET-CALR patients as PMF ... if he considers all CALR patients PMF ... explain the waffling between ET and PMF
I was wondering about that. I donated also. Guess it's all over with PMF
https://connect.mayoclinic.org/comment/982757/
Guess it's all over with PMF
@mw2023 Hi. Yes it was after my second BMB for ET. I am not diagnosed with...
https://connect.mayoclinic.org/comment/1584946/
I am not diagnosed with PMF, MF or PV
@eloise999 I've had PMF for a year (Hydroxy 1,000mg/day) after platelets at 1.4 million and have...
https://connect.mayoclinic.org/comment/1550126/
@eloise999
I've had PMF for a ... fixing anything while focused on the PMF
I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...
https://connect.mayoclinic.org/comment/1087422/
600mgs of HU(Droxia formulation) since PMF ... hematologist says it's just a result of PMF
I have a different diagnosis than you so you can look at my list and substitute...
https://connect.mayoclinic.org/comment/1308354/
Clinic to a Primary Myelofibrosis (PMF ... tell me about
Are there stages of PMF ... * How likely is it that my PMF will ... types of research are being done for PMF ... * Have you had other cases of PMF
*
@mickie6 That is great news! I also have PMF - and have not heard of the...
https://connect.mayoclinic.org/comment/1552681/
I also have PMF - and have not heard
I have been low risk PMF several years now. Because I had not real symptoms, the...
https://connect.mayoclinic.org/comment/1404251/
I have been low risk PMF several years ... platelets got high the specialist for PMF
All facilities are excellent. I see Dr. Palmer at Scottsdale. I have pMF. You can also...
https://connect.mayoclinic.org/comment/330833/
I have pMF.
He told me I need big something,big evidence to diagnose you with pmf and starts treatment...
https://connect.mayoclinic.org/comment/1044423/
,big evidence to diagnose you with pmf
Getting to the bottom of these things is a process, and everything about MPNs seems to...
https://connect.mayoclinic.org/comment/1234259/
MF or PMF might explain that 400 point
I just called Mayo and told them I wanted a 2nd opinion. I have PMF. I...
https://connect.mayoclinic.org/comment/1044023/
I have PMF. I got one right away.
Bad news last time at the doc office, the doctor told me that I suffer from...
https://connect.mayoclinic.org/comment/1044397/
doctor told me that I suffer from pmf
I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...
https://connect.mayoclinic.org/comment/1087439/
600mgs of HU(Droxia formulation) since PMF ... says it's often associated with PMF ... side effects from the Droxia, and my PMF
Still no definitive answers. I met with the hematologist yesterday. She is an MPN specialist. She...
https://connect.mayoclinic.org/comment/792126/
can be made. she suspects ET or Pre-PMF ... I really dread a diagnosis of pre-PMF
Hello,how are you all ?❤️ Well ,my biopsy results:no evidence of granuloma or abnormal lymphoid cell...
https://connect.mayoclinic.org/comment/1049809/
that I have primary myelofibrosis (PMF ... doc sees no prove at all that I have PMF
Hello ,I wish you a speedy recovery ,my doctor told me that I have PMF but...
https://connect.mayoclinic.org/comment/1044469/
recovery ,my doctor told me that I have PMF ... something to officially diagnose me as PMF
Good morning @ruthiek519 Well, of all the gifts you could have gotten for your 72nd b-day,...
https://connect.mayoclinic.org/comment/1312373/
b-day, you’re wishing the diagnosis of PMF ... discussions with other members who have MF (PMF ... search=PMF
Your current hematologist
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