Can anyone share their bone marrow transplant caregiver experience?
I will be the caregiver when my dad gets a bone marrow transplant since we were lucky enough to find a 100% match. Can anyone share their experience regarding being a caregiver for a bone marrow transplant? I will be moving from Dallas, TX into to his Hospital room for 2 months followed by some months in the patient housing or a hotel. I'm trying to plan for what to bring and what to expect while living in the hospital room and then the housing. I was told that due to his lack of sufficient immune system, it will be like a lock down type of environment.
Can anyone describe living in the hospital room such as:
the sleeping arrangements such as a couch. Chair, or bed. Is there a plug nearby for a cpap machine. Can I bring extra pillows?
how large are the rooms?
is there somewhere to store 3 luggage bags?
what did you eat and where, did you mostly stay in the room. How often did you leave the room?
is there a TV to hook up streaming or Xbox?
Is there anywhere to do any type of workout?
Did you stay in the room the whole time without leaving and if so is this only during the patients most vulnerable times.?
Did you wear a mask all the time all day long?
Did you leave the area to refill medicines or buy supplies and groceries??
What was the most challenging part of living there
Any other details that you think would help me so I know what to expect.