To narrow your search, try adding quotation marks around phrases.
Search tips
- Search by keywords or complete phrases.
- To narrow your search, try adding quotation marks around phrases.
- Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
80 total results
Comments (71)
Hello to All! Nice to connect here with ones with similar diagnosis and see how we...
https://connect.mayoclinic.org/comment/185360/
ve done 24 gene tests but no known Syndrome ... , ruled out Marfan's, etc.
@lazyironman welcome to the group! I am not familiar with multiple bleb-induced phemothoraces, do you know...
https://connect.mayoclinic.org/comment/173260/
do you know if they are common with Marfans ... , we were looking for Ehler-Danlos syndrome ... Did you them for Marfans? ... Fibromuscular Dysplasia, Ehlers Danlos Syndrome
Really? I've never heard of anyone surviving aortic dissection. I know that it is often a...
https://connect.mayoclinic.org/comment/128100/
that it is often a cause of death in Marfan's ... syndrome. ... aortic dissection -- they all had Marfan's ... syndrome.
Hi, I was diagnosed in 2008 along with my son who was 22. We realized my...
https://connect.mayoclinic.org/comment/82576/
He was referred to genetics where Marfan's ... criteria for all types of Ehlers Danlos Syndrome
I was suspected of having Marfans syndrome. My doctor at the Mayo Clinic in Florida ordered...
https://connect.mayoclinic.org/comment/645975/
I was suspected of having Marfans syndrome ... that covers just Ehler's-Danlos syndrome
Hello. Marfan.org has been extremely useful in helping me with my hEDS problems. They are authorities...
https://connect.mayoclinic.org/comment/1130993/
Marfan.org has been extremely useful ... authorities in EDS, and other related syndromes ... , besides Marfans.
I am 64 year male. From what I've read and my general cardiologist ( nor surgeon...
https://connect.mayoclinic.org/comment/1106569/
protocol for healthy candidates with Marfans ... Syndrome.
Please contact The Marfan Foundation. marfan.org. They are the people to help you get to the...
https://connect.mayoclinic.org/comment/1044087/
Please contact The Marfan Foundation ... marfan.org. ... EDS is another syndrome that is included
My aortic aneurysm is 4.3 steady last 2 6month scans. But it was 3.9 in 2018...
https://connect.mayoclinic.org/comment/891726/
much info out there, but similar to Marfans ... , Loeys-Dietz syndrome which "is
Be careful, you can have both. I did. Had a c6-c7 surgery and the Eagles got...
https://connect.mayoclinic.org/comment/196949/
They can test by injecting marcane, ... If the marcane gives you improvement ... my throat and sometimes first bite syndrome
The genetic panels can be very limited and there are MANY hypermobility syndromes. They will likely...
https://connect.mayoclinic.org/comment/893182/
limited and there are MANY hypermobility syndromes ... likely only check for the obvious: Marfan
- First
- Previous
- 1
- 2
- 3
- 4
- Last