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80 total results
Comments (71)
Hello, I just wanted to say that I am having the exact same issue. I started...
https://connect.mayoclinic.org/comment/700848/
heart murmur and am getting tested for Marfan ... 's syndrome.
Hello to All! Nice to connect here with ones with similar diagnosis and see how we...
https://connect.mayoclinic.org/comment/185360/
ve done 24 gene tests but no known Syndrome ... , ruled out Marfan's, etc.
Really? I've never heard of anyone surviving aortic dissection. I know that it is often a...
https://connect.mayoclinic.org/comment/128100/
that it is often a cause of death in Marfan's ... syndrome. ... aortic dissection -- they all had Marfan's ... syndrome.
Hi, I was diagnosed in 2008 along with my son who was 22. We realized my...
https://connect.mayoclinic.org/comment/82576/
He was referred to genetics where Marfan's ... criteria for all types of Ehlers Danlos Syndrome
I was suspected of having Marfans syndrome. My doctor at the Mayo Clinic in Florida ordered...
https://connect.mayoclinic.org/comment/645975/
I was suspected of having Marfans syndrome ... that covers just Ehler's-Danlos syndrome
Hello. Marfan.org has been extremely useful in helping me with my hEDS problems. They are authorities...
https://connect.mayoclinic.org/comment/1130993/
Marfan.org has been extremely useful ... authorities in EDS, and other related syndromes ... , besides Marfans.
I am 64 year male. From what I've read and my general cardiologist ( nor surgeon...
https://connect.mayoclinic.org/comment/1106569/
protocol for healthy candidates with Marfans ... Syndrome.
Please contact The Marfan Foundation. marfan.org. They are the people to help you get to the...
https://connect.mayoclinic.org/comment/1044087/
Please contact The Marfan Foundation ... marfan.org. ... EDS is another syndrome that is included
My aortic aneurysm is 4.3 steady last 2 6month scans. But it was 3.9 in 2018...
https://connect.mayoclinic.org/comment/891726/
much info out there, but similar to Marfans ... , Loeys-Dietz syndrome which "is
The genetic panels can be very limited and there are MANY hypermobility syndromes. They will likely...
https://connect.mayoclinic.org/comment/893182/
limited and there are MANY hypermobility syndromes ... likely only check for the obvious: Marfan
Be careful, you can have both. I did. Had a c6-c7 surgery and the Eagles got...
https://connect.mayoclinic.org/comment/196949/
They can test by injecting marcane, ... If the marcane gives you improvement ... my throat and sometimes first bite syndrome
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