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2,452 total results

Comments (2,266)

Hi Meredith, I have the identical symptoms that you have. My problems began at 30 with...

https://connect.mayoclinic.org/comment/73366/

In retrospect, it was Sjogrens. ... I later realized my mother had Sjogrens ... If not, find a Sjogrens support group

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Jun 22, 2012

I have had sjogren's for several years. I use restasis which has helped a lot. I...

https://connect.mayoclinic.org/comment/73361/

I have had sjogren's for several years

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Apr 16, 2012

Hi! I´m from Argentina. I got here since I´m investigating on my own over this syndrome....

https://connect.mayoclinic.org/comment/52832/

Now I´m waiting for the results on Sjorgen

Discussion: Burning Mouth Syndrome. I have it very severe.

Support Group: Skin Health

Posted: Apr 10, 2012

I can totally relate to your story, as I am going through a very similar situation....

https://connect.mayoclinic.org/comment/1104784/

I was negative for Lupus, Sjogren’s,

Discussion: ANA positive result/rare patterns

Support Group: Autoimmune Diseases

Posted: Jul 13, 2024

To be tested for Sjogrens See an ENT have a biopsy of the glands it’s between...

https://connect.mayoclinic.org/comment/1263054/

To be tested for Sjogrens See an ENT ... That led to a positive for Sjogrens. ... yes you can definitely tell you have Sjogrens

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 21 12:40am

Hi there, my name is Melissa, I'm 55 yo. Was diagnosed with NMIBC of the aggressive...

https://connect.mayoclinic.org/comment/1070900/

diseases (Hashimotos, Reynaud's and Sjogrens

Discussion: Bladder Cancer Group: Introduce yourself and connect with others

Support Group: Bladder Cancer

Posted: May 19, 2024

I too have spent $$$ on treatment that doesn’t work! I have Lupus, RA , sjorgrens,...

https://connect.mayoclinic.org/comment/1266446/

I have Lupus, RA , sjorgrens, raynalds

Discussion: Improving neuropathy without spending a fortune - What actually helps?

Support Group: Neuropathy

Posted: Mar 25 10:42am

Your experience is very much like mine. I believe I have had Sjogren's for over 40...

https://connect.mayoclinic.org/comment/1267432/

I believe I have had Sjogren's for

Discussion: Sjogrens and Lung issues

Support Group: Autoimmune Diseases

Posted: Mar 26 2:44pm

I go in a few days to a Rheumatologist who specializes in Sjogren's. I have been...

https://connect.mayoclinic.org/comment/1258453/

Rheumatologist who specializes in Sjogren ... been told for years it sounds like Sjogren

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 15 9:44am

Some people get a lip biopsy to test for Sjogren’s. My rheumatologist didn’t think that was...

https://connect.mayoclinic.org/comment/1258977/

people get a lip biopsy to test for Sjogren

Discussion: Possible Sjogrens Disease

Support Group: Autoimmune Diseases

Posted: Mar 15 8:26pm

I have a high titer (1:1280), speckled ANA. But no Sjogren's antibodies, which I'm aware a...

https://connect.mayoclinic.org/comment/1008824/

But no Sjogren's antibodies, which ... I'm aware a lot of Sjogren'

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 3, 2024

I’m not a doctor, this is just a support group. Having said that….Why don’t you see...

https://connect.mayoclinic.org/comment/1008704/

If it is Sjogrens , a significant number ... of Sjogrens patients don’t get diagnosed

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 3, 2024

marpar123, I am going to be tested for secondary Sjogrens soon (blood test). At my early...

https://connect.mayoclinic.org/comment/1231633/

am going to be tested for secondary Sjogrens

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 7 1:53pm

I know this doesn’t answer your question but, have you tried Biotene and avocado oil? You...

https://connect.mayoclinic.org/comment/1231254/

at the stage in my progression of Sjorgren

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 7 6:50am

I have Sjogren's also and am taking IvIg for over a year. I have recently lost...

https://connect.mayoclinic.org/comment/1232183/

I have Sjogren's also and am taking ... Small Fiber) has a family member with Sjogren

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 8 11:03am

Have you considered an autonomic disorder? POTS is a well-documented outcome of COVID. Here is a...

https://connect.mayoclinic.org/comment/1225116/

Although this website targets those with Sjogrens

Discussion: Possiblity of GastroCardiac syndrome?

Support Group: Heart Rhythm Conditions

Posted: Jan 30 5:37am

That’s what’s happening to me. The rheumatologist said I have fibromyalgia, but I have every symptom...

https://connect.mayoclinic.org/comment/1249656/

fibromyalgia, but I have every symptom of Sjogren

Discussion: Which autoimmune disease?

Support Group: Eye Conditions

Posted: Mar 3 3:26pm

I replied on the other tread..I tried Hydroxyzine as well and it just dries me out...

https://connect.mayoclinic.org/comment/1229194/

well and it just dries me out (I have sjogrens

Discussion: Any positive stories about Benzo tapering? I need hope

Support Group: Depression & Anxiety

Posted: Feb 4 9:38am

I have had Sjögren’s syndrome for at least 20 years. How did you know you had...

https://connect.mayoclinic.org/comment/1239947/

I have had Sjögren’s syndrome for at

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 18 12:49pm

Have you ever been tested for either scleroderma or sjogrens? You seem to be symptomatic for...

https://connect.mayoclinic.org/comment/1211590/

been tested for either scleroderma or sjogrens

Discussion: Controversial medical diagnosis: overactive gallbladder (hyperkinetic)

Support Group: Digestive Health

Posted: Jan 14 6:49pm