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228 total results
Comments (211)
Thank you for recommending a consult with a a Mayo doctor specializing in both WM and...
https://connect.mayoclinic.org/comment/687250/
a Mayo doctor specializing in both WM
Thanks for tagging Colleen. I have not bee very active on the site. I have been...
https://connect.mayoclinic.org/comment/969815/
Brukinsa just over a year. 160 mg BID for WM ... Really no WM symptoms or side effects
I am sorry you are experiencing multiple issues to balance with a new treatment. I have...
https://connect.mayoclinic.org/comment/845421/
I have WM and have not had Brukinsa.
I am sorry to hear about your husband's diagnosis and wish him the best. If you...
https://connect.mayoclinic.org/comment/975036/
allow family members, caregivers, and WM ... It has 6300 WM members around the world ... knowledgeable group of folks than this WM
Hi @mrperezy50 Welcome to Mayo Clinic Connect. It’s easy to feel alone when you’ve been diagnosed...
https://connect.mayoclinic.org/comment/787456/
ejrquast who is a font of information on WM ... List of Doctors who specialize in WM ... several discussions in the forum for WM ... find more discussions, simply type in WM
Welcome JProctor. How long ago was your husband diagnosed with Waldenstrom macroglobulinemia (WM)? What treatment has...
https://connect.mayoclinic.org/comment/624191/
with Waldenstrom macroglobulinemia (WM
Hi All! Thought this article would be of interest. Ronnie (GRANDMAr) https://mail.google.com/mail/u/0/?tab=wm#inbox/FMfcgxvzLNVJQZwnjSGFDWfzZCSggPlc
https://connect.mayoclinic.org/comment/119547/
tab=wm#inbox/FMfcgxvzLNVJQZwnjSGFDWfzZCSggPlc
Welcome to Connect @kirk86! Thank you for sharing your experience with having WM and your treatment...
https://connect.mayoclinic.org/comment/996010/
sharing your experience with having WM ... who was just recently diagnosed with WM
I hope you find some answers in this group. My daughter has just been diagnosed with...
https://connect.mayoclinic.org/comment/855044/
daughter has just been diagnosed with WM
I was diagnosed with WM in Dec 2023. I have completed 5 rounds of B-R and...
https://connect.mayoclinic.org/comment/1074365/
I was diagnosed with WM in Dec 2023.
Thankful Zanu is improving your PN. Please keep in mind that Zanubrutinib is not a treatment...
https://connect.mayoclinic.org/comment/1149712/
regarding Zanubrutinib on the HELPLINE
WM ... and treatments recommended by the WM
Reaching out for those with WM experience is extremely helpful for a rare lymphoma. I was...
https://connect.mayoclinic.org/comment/691691/
Reaching out for those with WM experience ... I was diagnosed with WM in 2014 and
I was officially diagnosed with MGUS quite by accident after having bloodwork done to help explain...
https://connect.mayoclinic.org/comment/1055475/
initially to confirm diagnosis of WM ... and informed me that it is indeed WM ... blood cancer doctor familiar with WM
Hi @champ9810 Thanks for sharing your positive experience with the Rituxin infusions for WM. I’m glad...
https://connect.mayoclinic.org/comment/1209713/
experience with the Rituxin infusions for WM ... just beginning her treatments for WM
Welcome, @66andcounting. I hope you and @dcp45 will connect. dcp also recently joined Connect. 66andcounting, with...
https://connect.mayoclinic.org/comment/70604/
with not having any symptoms, how was WM
I had similar experience. I have IgM MGUS, anti-MAG and WM but after almost two years...
https://connect.mayoclinic.org/comment/1001641/
I have IgM MGUS, anti-MAG and WM but ... ordered a brain MRI (small chance but my WM
I was sorry to hear about your new symptoms. I was diagnosed with WM in 2014...
https://connect.mayoclinic.org/comment/1011813/
I was diagnosed with WM in 2014 and
I wake up with this problem, so it doesn't come on with my doing anything physical....
https://connect.mayoclinic.org/comment/984581/
My doctor said that WM causes anemia
I am sorry to hear that you are not able to view your recent test results...
https://connect.mayoclinic.org/comment/841545/
May I ask if you are seeing a WM specialist ... for assistance with second opinion WM
Hi Lori, Many thanks for your welcoming message 🙂 I'll definitely check out the links including...
https://connect.mayoclinic.org/comment/1248149/
links including international site for WM ... bone marrow biopsy which confirmed WM
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