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124 total results

Comments (115)

@hannahbernard1 I use a gel I buy at Walmart for the nose called Ayr I use...

https://connect.mayoclinic.org/comment/1180889/

My rheumatologist has me on Pilocarpine ... when Covid hit and I just started the pilocarpine ... 3 times worse so I’m back on the pilocarpine

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 27, 2024

I can relate to the loss of taste, it takes the joy out of life. It...

https://connect.mayoclinic.org/comment/1249310/

Have you tried pilocarpine or cevimeline

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Mar 3 9:25am

Thank you! Will be reading for sure. No one has said nothing is wrong, rheumatologist just...

https://connect.mayoclinic.org/comment/1186129/

Day 2 of pilocarpine, so I’m giving

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 7, 2024

I was diagnosed with small fiber neuropathy a few years ago. I don’t have tooth pain...

https://connect.mayoclinic.org/comment/1016594/

He prescribed Pilocarpine 5 mg three ... diagnosis, so I’ve been taking the Pilocarpine

Discussion: Tooth pain and Neuropathy

Support Group: Neuropathy

Posted: Feb 16, 2024

At age 78 I have been fighting glaucoma for over 30 years. I'm currently on preservative...

https://connect.mayoclinic.org/comment/883437/

currently on preservative free cosopt plus pilocarpine ... My eyes are red all the time from pilocarpine

Discussion: glaucoma drops sideeffects or dry eye

Support Group: Eye Conditions

Posted: Jun 23, 2023

He was considering Sjogrens but due to the negative workup that is no longer being considered....

https://connect.mayoclinic.org/comment/1185508/

Took pilocarpine first day this morning ... Just hope pilocarpine helps my mouth

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 6, 2024

Well, that could be true for me! I think I’ve been taking it for about four...

https://connect.mayoclinic.org/comment/1103946/

But I never paid attention to the pilocarpine ... The pilocarpine is effective for up

Discussion: Support for small fiber neuropathy with cold intolerance sensory nerve

Support Group: Neuropathy

Posted: Jul 11, 2024

Hi Rostrevor I have Sjogren's Syndrome and this includes a dry mouth. I have been prescribed...

https://connect.mayoclinic.org/comment/210133/

I have been prescribed Pilocarpine or

Discussion: Dry mouth: Any ideas on how to help?

Support Group: Ear, Nose & Throat (ENT)

Posted: Jul 30, 2018

Gald the surgery is done. I'm sure it will take a day or two for the...

https://connect.mayoclinic.org/comment/700261/

addition to Cosopt, Rocklatan, and Pilocarpine

Discussion: Low Vision: Let's share about coping day to day

Support Group: Eye Conditions

Posted: Apr 18, 2022

I've been fighting glaucoma for over 30 years now. I've had multiple laser treatments to try...

https://connect.mayoclinic.org/comment/901515/

m now on 3 eye drops for glaucoma: pilocarpine

Discussion: Glacoma SLT laser complications?

Support Group: Eye Conditions

Posted: Jul 24, 2023

I did some reading. Pilocarpine starts to work in about 20 minutes. If you pay attention,...

https://connect.mayoclinic.org/comment/1104405/

Pilocarpine starts to work in about

Discussion: Support for small fiber neuropathy with cold intolerance sensory nerve

Support Group: Neuropathy

Posted: Jul 12, 2024

I was diagnosed by lip biopsy and I have a dry mouth and dry eyes. I...

https://connect.mayoclinic.org/comment/111338/

use eyedrops regularly and also take Pilocarpine

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jul 14, 2018

Hi @sepdvm, I appreciate hearing from you. So far my husband has tried biotene spray, pilocarpine...

https://connect.mayoclinic.org/comment/1275532/

my husband has tried biotene spray, pilocarpine

Discussion: Does acupuncture help saliva glands damaged from radiation?

Support Group: Head & Neck Cancer

Posted: Apr 6 10:55am

Hello, I also have this disease. Mine is secondary due to my Rheumatoid Arthritis. I found...

https://connect.mayoclinic.org/comment/1237049/

I found Pilocarpine to make me feel

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 14 6:51pm

This is my first time in this group.... but unfortunately OLP has been part of my...

https://connect.mayoclinic.org/comment/1244465/

Pilocarpine for dry mouth, Hydroxychloroquine ... have a flare only ...but take the Pilocarpine

Discussion: Oral lichen Planus: What home remedies or medications help you?

Support Group: Autoimmune Diseases

Posted: Feb 24 10:21am

My mom has Sjogren's and takes pilocarpine. She says it helps her eyes some, but her...

https://connect.mayoclinic.org/comment/1008900/

My mom has Sjogren's and takes pilocarpine

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 3, 2024

Hello suetex, Very difficult moving bowels so I think somehow pressing on my bladder? It's awful....

https://connect.mayoclinic.org/comment/1221582/

drink so much, I try not to, I take,Pilocarpine

Discussion: I have Sjogren's neuropathy of my legs. Anyone try Rituximab?

Support Group: Neuropathy

Posted: Jan 25 4:05pm

I have been fighting glaucoma for over 30 years. That just meain I need eye drops...

https://connect.mayoclinic.org/comment/960356/

I am currently on 3 eye drops: Pilocarpine

Discussion: My eye specialist says my presure is very high, 19 right eye, 17 left

Support Group: Eye Conditions

Posted: Nov 7, 2023

I have dry eyes and mouth. I have been tested for Sjoren’s. If I don’t keep...

https://connect.mayoclinic.org/comment/1103438/

For mouth, an ENT prescribed pilocarpine

Discussion: Support for small fiber neuropathy with cold intolerance sensory nerve

Support Group: Neuropathy

Posted: Jul 11, 2024

I use Restasis eye drops twice a day (prescription). I also have oral Pilocarpine to use...

https://connect.mayoclinic.org/comment/905698/

I also have oral Pilocarpine to use

Discussion: Learning Past Cause vs. Quality of Present Life?

Support Group: Neuropathy

Posted: Aug 1, 2023