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364 total results
Comments (338)
I have some experience with it. What do you mean by “relatively stable”? It’s my understanding...
https://connect.mayoclinic.org/comment/1141904/
s my understanding that one reason MCAS ... trial and error) and if they suspect MCAS ... I have POTS and HSD/hEDS, and MCAS is ... an allergist with experience with MCAS ... as many people affected by MCAS do
Discussion: tryptase labs
Support Group: Post-COVID Recovery & COVID-19
Posted: Sep 15, 2024
Have you looked into mast cell activation syndrome? It is becoming more common with Covid long...
https://connect.mayoclinic.org/comment/733786/
eliminate or confirm…written by the top MCAS ... www.ehlers-danlos.com/wp-content/uploads/MCAS-Primer-for-the-Gastroenterologist.pdf
Discussion: Running out of hope
Support Group: Just Want to Talk
Posted: Aug 3, 2022
I have MCAS with co-morbid POTS, IBS, Narcolepsy, and a lot of skin flushing/cold sweating. Symptom...
https://connect.mayoclinic.org/comment/805566/
I have MCAS with co-morbid POTS, IBS ... million good things about VNS for pots/mcas ... Like most people with MCAS I'm at
Discussion: Vagus Nerve and TENS unit
Support Group: Brain & Nervous System
Posted: Feb 2, 2023
I'm still not dx'd. I was traumatized by my experience with medical professionals during my first...
https://connect.mayoclinic.org/comment/742116/
books on Histamine Intolerance and MCAS ... I noticed that many of the MCAS medications ... are used for Asthma and many MCAS patients
Discussion: Mast Cell Activation Syndrome: What treatments help you?
Support Group: Blood Cancers & Disorders
Posted: Aug 26, 2022
Glad it was helpful, and I’m glad it sounds like you have a doctor who’s aware...
https://connect.mayoclinic.org/comment/1142213/
s aware of more of the nuance with MCAS ... Since antihistamines are treatment for MCAS
Discussion: tryptase labs
Support Group: Post-COVID Recovery & COVID-19
Posted: Sep 16, 2024
Hi. I can relate to your frustration of not having a diagnosis. It took 6 years...
https://connect.mayoclinic.org/comment/239830/
latest: mast cell activation syndrome (MCAS ... I have done a lot of research on MCAS ... main tests that is used to diagnose MCAS ... manage them. there is no cure for MCAS
Discussion: Difficult case, several diagnosis, no solution yet
Support Group: Autoimmune Diseases
Posted: Feb 5, 2019
@nla4625- I've done a bit of research into Mast Cell Activation Syndrome (MCAS). Since I am...
https://connect.mayoclinic.org/comment/203372/
into Mast Cell Activation Syndrome (MCAS ... What I gather about MCAS is that it ... MCAS is also a multi-system disease: ... conditions-and-treatments/related-conditions/mcas ... MCAS is definitely much more complex
Discussion: Mysterious shortness of breath: What has helped you?
Support Group: Lung Health
Posted: Jan 15, 2021
Wow. I had Lyme misdiagnosed for decades, which I expect started my whole downward spiral. I...
https://connect.mayoclinic.org/comment/1041056/
I think it is something related to MCAS ... For the scent allergies (MCAS) I take ... Boston and I have read they have an MCAS ... There is a MCAS Facebook group. ... I am afraid that this MCAS with all
Discussion: Mast Activation Syndrome and Osteoporosis
Support Group: Osteoporosis & Bone Health
Posted: Mar 27, 2024
Orlanda, this is excellent and supportive advice. I just want to mention, as far as diet...
https://connect.mayoclinic.org/comment/772466/
Those who follow the MCAS protocol often ... very good results as well, because MCAS ... https://hoffmancentre.com/treatments/mcas ... treatments-for-lowering-histamine-and-reducing-mcas-symptoms
Discussion: Increasing anger, impatience, grumpiness and brain fog after 2.5 years
Support Group: Post-COVID Recovery & COVID-19
Posted: Nov 12, 2022
Hello. I also have MCAS and have struggled immensely with all drugs since my diagnosis in...
https://connect.mayoclinic.org/comment/1238821/
I also have MCAS and have struggled ... doctor who suspected that I might have MCAS ... With MCAS medications are such a challenge
Discussion: Osteoporosis meds and mast cell activation syndrome
Support Group: Osteoporosis & Bone Health
Posted: Feb 17 6:36am