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Comments (398)
Excellent-thanks again. And the Ehlers Danlos Society continues to be another good reference site: https://www.ehlers-danlos.com/ Take...
https://connect.mayoclinic.org/comment/1142342/
And the Ehlers Danlos Society continues ... good reference site:
https://www.ehlers-danlos.com
Hi @jholland, Have you seen The Ehlers-Danlos Society website? --- https://www.ehlers-danlos.com/
https://connect.mayoclinic.org/comment/848358/
Hi @jholland, Have you seen The Ehlers-Danlos ... --- https://www.ehlers-danlos.com/
Look into Ehlers-Dalmos connective tissue disease. We think my 34 son has it.
https://connect.mayoclinic.org/comment/789372/
Look into Ehlers-Dalmos connective tissue
If someone is diagnosed with Vascular Ehlers-Danlos Syndrome can or should the person have aorta repair?
https://connect.mayoclinic.org/comment/381498/
someone is diagnosed with Vascular Ehlers-Danlos
@badbodybabe, as you research your health issues, I thought you might find useful posts in these...
https://connect.mayoclinic.org/comment/853895/
need-reassurance-of-symptomsibs-gerd-gastritis-sm-hiatal-hernia/
- Ehlers ... in this expert Mayo Clinic blog:
- Ehlers-Danlos ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Try cabs gummies or oils or balm. My sister has it bad in her feet and...
https://connect.mayoclinic.org/comment/729762/
I also use them for my conditions (Ehlers ... surgeries and a neck surgery due to Ehlers
Hi @lilybell, in addition to the encouragement you are getting from the group, I thought I'd...
https://connect.mayoclinic.org/comment/913095/
Mayo Clinic Connect as well:
- Ehlers-Danlos ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
@akalsas, it is best to consult with a medical professional who specializes in Ehlers-Danlos syndrome to...
https://connect.mayoclinic.org/comment/1115988/
medical professional who specializes in Ehlers-Danlos ... Professional database managed by the Ehlers-Danlos ... Professionals Directory https://www.ehlers-danlos.com
Hi Bailey, has a diagnosis of Ehlers-Danlos Syndrome been considered or ruled out in your case?
https://connect.mayoclinic.org/comment/751177/
Hi Bailey, has a diagnosis of Ehlers-Danlos
Hi @timtoby, I'm sorry to hear that your pain is not being recognized by others. Of...
https://connect.mayoclinic.org/comment/877900/
spectrum disorders (HSD) https://www.ehlers-danlos.com ... /what-is-hsd/
- Ehlers-Danlos syndromes ... (EDS) https://www.ehlers-danlos.com ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... newsfeed-post/yoga-for-hypermobility/
- Ehlers-Danlos
According to my doctors, Cervical Dystonia is a common comorbidity with Ehlers Danlos patients. My neurologist...
https://connect.mayoclinic.org/comment/1134499/
Dystonia is a common comorbidity with Ehlers
Hi @derrickbff, welcome to Connect where you can meet other patients talking about Ehlers-Danlos Syndrome like...
https://connect.mayoclinic.org/comment/217824/
meet other patients talking about Ehlers-Danlos ... rarediseases.info.nih.gov/diseases/6322/ehlers-danlos-syndromes
Hi @meganmuller2001 and welcome! I moved your question about the TNXB gene and its relevance in...
https://connect.mayoclinic.org/comment/969155/
hEDS to this existing discussion:
- Ehlers ... follow the EDS expert blog here:
- Ehlers-Danlos ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Welcome, Nykki. Do you have Ehlers-Danlos Syndrome? What kind of GI issues are you experiencing?
https://connect.mayoclinic.org/comment/661586/
Do you have Ehlers-Danlos Syndrome?
@maj7499, you're right that the EDS Specialty Clinic at Mayo Clinic in Florida exists and is...
https://connect.mayoclinic.org/comment/1079814/
Knight and team:
- Ehlers-Danlos Syndrome ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Eds body like Ehlers Danlos Syndrome ? I too have Ehlers Danlos and have had the...
https://connect.mayoclinic.org/comment/80609/
Eds body like Ehlers Danlos Syndrome ... I too have Ehlers Danlos and have had
I am curious to know if anyone has Ehlers-Danlos of any type. I likely have Hypermobility...
https://connect.mayoclinic.org/comment/114656/
I am curious to know if anyone has Ehlers-Danlos
I just got diagnosed with a connective tissue disorder...told it was in the Ehlers Danlos family...
https://connect.mayoclinic.org/comment/275527/
tissue disorder...told it was in the Ehlers
Your PT sounds correct about ehlers danlos and your PCP should refer you for genetic testing...
https://connect.mayoclinic.org/comment/661937/
Your PT sounds correct about ehlers
Should a marfan syndrome and vascular Ehlers-Danlos Syndrome and has PVL and is highly fuctional CP....
https://connect.mayoclinic.org/comment/381516/
Should a marfan syndrome and vascular Ehlers-Danlos
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