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176 total results
Comments (156)
Hi @jan52241. Welcome to Connect! I'm sorry to hear you have felt alone in this diagnosis...
mvpdda and @tmousetis who also have amyloidosis ... also want to look at this thread on AL ... Amyloidosis: https://connect.mayoclinic.org ... /discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Just be careful. I was on Coumadin, but was taken off it when I discovered that...
autoimmune disease I appear to have, AL ... amyloidosis and aplastic anemia, can
Discussion: AFib questions
Posted: Sep 4, 2017
Hi @jewel8888 You can connect with other members who have amyloidosis in these discussions on Connect....
connect with other members who have amyloidosis ... - Current diagnosis is Amyloidosis ... mayocl.in/2bAqF5j - Diagnosed with AL ... Amyloidosis. ... webinar with Mayo Clinic experts "Amyloidosis
@divyanshi, macular amyloidosis sounds like it is quite rare. If you'd like, there are a few...
@divyanshi, macular amyloidosis sounds ... other discussions on Connect regarding amyloidosis ... members have discussed other types of amyloidosis ... /connect.mayoclinic.org/discussion/al-amyloidosis ... diagnosis is multiple myeloma and amyloidosis
Posted: Feb 6, 2019
Hello, @bob100! My name is also Sherry, and I was also diagnosed with AL amyloidosis in...
Sherry, and I was also diagnosed with AL ... amyloidosis in 2019 after six years ... would love to know if others with AL ... amyloidosis have had experience with
Posted: Mar 28, 2024
@brad830, sorry to hear of your most recent diagnosis. If you are comfortable sharing, has it...
been shared with you which type of amyloidosis ... quite a few discussions dedicated to amyloidosis ... /connect.mayoclinic.org/discussion/amylodosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis ... /connect.mayoclinic.org/discussion/al-amyloidosis-maybe
Support Group: Chronic Pain
Posted: Jan 9, 2024
Julie, I moved your message to the Cancer group where you can meet others who may...
discussion called "Diagnosed with AL ... Amyloidosis. ... treatments you've been getting for amyloidosis
Posted: Sep 8, 2016
Hi @azjulie, welcome to the caregivers group on Connect. We have members here who have experience...
discussion: - Current diagnosis is Amyloidosis ... mayocl.in/2cpKVI7 - Diagnosed with AL ... Amyloidosis.
Support Group: Caregivers
Posted: Aug 30, 2016
Hi @colorslides25 Welcome to Connect! I remember my transplant doctor telling me it is better to...
what I’m understanding, the SCT for AL ... Amyloidosis is an Autologous Stem Cell ... @countrygirlusa…who had an SCT for AL ... Amyloidosis.