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181 total results
Comments (160)
Good morning, @vmarra, the best thing that’s happened is that your mom is now in the...
https://connect.mayoclinic.org/comment/726680/
information from Mayo Clinic’s site for AL ... discussions with members who have AL ... Amyloidosis. ... Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
dnp, sorry about your symptoms & frustration of not knowing cause. I too have this experience...
https://connect.mayoclinic.org/comment/821070/
peripheral neuropathy, but I have AL ... amyloidosis which can impact the central
Hi @jan52241. Welcome to Connect! I'm sorry to hear you have felt alone in this diagnosis...
https://connect.mayoclinic.org/comment/104684/
mvpdda and @tmousetis who also have amyloidosis ... also want to look at this thread on AL ... Amyloidosis: https://connect.mayoclinic.org ... /discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
The mature and updated results of CAN2007, a phase 1/2 study of once- and twice-weekly single-agent...
https://connect.mayoclinic.org/comment/381224/
single-agent bortezomib in relapsed AL ... amyloidosis by Donna Reece et al. were
Hi Nancy, Yes, you are replying right and using the forum as it is intended. I'm...
https://connect.mayoclinic.org/comment/971450/
If the suspicion is proven to be AL ... amyloidosis, I can direct you to related
Just be careful. I was on Coumadin, but was taken off it when I discovered that...
https://connect.mayoclinic.org/comment/89585/
autoimmune disease I appear to have, AL ... amyloidosis and aplastic anemia, can
Hi @jewel8888 You can connect with other members who have amyloidosis in these discussions on Connect....
https://connect.mayoclinic.org/comment/59720/
connect with other members who have amyloidosis ... - Current diagnosis is Amyloidosis ... mayocl.in/2bAqF5j
- Diagnosed with AL ... Amyloidosis. ... webinar with Mayo Clinic experts "Amyloidosis
know the AL amyloidosis is in his kidneys and the neuropathy but is systemic so where...
https://connect.mayoclinic.org/comment/113912/
know the AL amyloidosis is in his kidneys
You're welcome. I hope you find some answers. I have AL Amyloidosis, there is another type...
https://connect.mayoclinic.org/comment/1120802/
I have AL Amyloidosis, there is another ... type called TTR Amyloidosis that has
@divyanshi, macular amyloidosis sounds like it is quite rare. If you'd like, there are a few...
https://connect.mayoclinic.org/comment/244392/
@divyanshi, macular amyloidosis sounds ... other discussions on Connect regarding amyloidosis ... members have discussed other types of amyloidosis ... /connect.mayoclinic.org/discussion/al-amyloidosis ... diagnosis is multiple myeloma and amyloidosis
Hello. Old Karl here. Lots of issues. Probably AL amyloidosis, systemic, hereditary. Constant headache pain for...
https://connect.mayoclinic.org/comment/94815/
Probably AL amyloidosis, systemic, hereditary
Hello, @bob100! My name is also Sherry, and I was also diagnosed with AL amyloidosis in...
https://connect.mayoclinic.org/comment/1041681/
Sherry, and I was also diagnosed with AL ... amyloidosis in 2019 after six years ... would love to know if others with AL ... amyloidosis have had experience with
Hah. Whatever works, eh? 😂 You made me laugh out loud this morning. I intended to...
https://connect.mayoclinic.org/comment/726708/
tag you in this conversation about AL ... Amyloidosis.
Yes, thanks. She has AL amyloidosis. She got her stem cells back Friday. When she is...
https://connect.mayoclinic.org/comment/273513/
She has AL amyloidosis.
@brad830, sorry to hear of your most recent diagnosis. If you are comfortable sharing, has it...
https://connect.mayoclinic.org/comment/994501/
been shared with you which type of amyloidosis ... quite a few discussions dedicated to amyloidosis ... /connect.mayoclinic.org/discussion/amylodosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis ... /connect.mayoclinic.org/discussion/al-amyloidosis-maybe
Julie, I moved your message to the Cancer group where you can meet others who may...
https://connect.mayoclinic.org/comment/113902/
discussion called "Diagnosed with AL ... Amyloidosis. ... treatments you've been getting for amyloidosis
I was diagnosed with AL Amyloidosis in December 2016 and in the last 9 months I...
https://connect.mayoclinic.org/comment/377983/
I was diagnosed with AL Amyloidosis ... drugs but none of them have put the Amyloidosis
Hi. I was diagnosed with Al Amyloidosis that is affecting my kidneys. They started me on...
https://connect.mayoclinic.org/comment/1350233/
I was diagnosed with Al Amyloidosis
Hi @azjulie, welcome to the caregivers group on Connect. We have members here who have experience...
https://connect.mayoclinic.org/comment/112032/
discussion:
- Current diagnosis is Amyloidosis ... mayocl.in/2cpKVI7
- Diagnosed with AL ... Amyloidosis.
Hi @colorslides25 Welcome to Connect! I remember my transplant doctor telling me it is better to...
https://connect.mayoclinic.org/comment/1282334/
what I’m understanding, the SCT for AL ... Amyloidosis is an Autologous Stem Cell ... @countrygirlusa…who had an SCT for AL ... Amyloidosis.
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