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Comments (742)

Hi @patc55, Welcome to Mayo Clinic Connect. I have SFPN which started in the toes in...

https://connect.mayoclinic.org/comment/321697/

rheumatoid arthritis, sarcoidosis, vasculitis

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Mar 4, 2021

Hello, everyone I have crazy petechiae situation and need your opinion. I initially got petechiae (a...

https://connect.mayoclinic.org/comment/1086408/

Tuesday, he said that it looked like vasculitis

Discussion: Has anyone experienced Petechiae

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 13, 2024

Hi there - I have Behçet’s Disease, another rare vasculitis Disease. Stopping smoking is a large...

https://connect.mayoclinic.org/comment/269246/

have Behçet’s Disease, another rare vasculitis

Discussion: Raynaud's with Buerger's Disease and Severe Chronic Fatigue

Support Group: Autoimmune Diseases

Posted: Jul 17, 2019

I was changed to Xarelto and it gave me a fresh batch of ulcers. so I...

https://connect.mayoclinic.org/comment/324299/

this was biopsied as Leukocytoclastic Vasculitis

Discussion: What is the best dosage of Xarelto for Livedoid Vasculopathy?

Support Group: Skin Health

Posted: Oct 6, 2020

@kseanob, I had a bone marrow transplant 4+ years ago and have my ear on the...

https://connect.mayoclinic.org/comment/949323/

GvHD can cause vasculitis of the blood

Discussion: Anyone have an arterial bleed because of Graft Vs Host

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Oct 17, 2023

It's only the discharge of clots from the left atrial appendage that is the great risk...

https://connect.mayoclinic.org/comment/1167661/

Vasculitis, vascular disease, peripheral

Discussion: Cerebral Small Vessel Disease after catheter ablation

Support Group: Heart Rhythm Conditions

Posted: Nov 4, 2024

Hi. I have, or had ( I stay on a low dose of medications to prevent...

https://connect.mayoclinic.org/comment/167503/

I think they changed the name to Vasculitis

Discussion: Anyone have granulomatosis with polyangiitis (GPA) or Wegener's?

Support Group: Autoimmune Diseases

Posted: Aug 3, 2018

Hi Colleen. I had primary CNS vasculitis 11 years ago that attacked my brain. I was...

https://connect.mayoclinic.org/comment/700919/

I had primary CNS vasculitis 11 years

Discussion: Central Nervous System Vasculitis and dealing with brain fog

Support Group: Autoimmune Diseases

Posted: Apr 21, 2022

Greetings. Two weeks ago I woke up one morning having lost sight in my right eye....

https://connect.mayoclinic.org/comment/151190/

of AFIB and beginning to have some vasculitis

Discussion: Giant cell arteritis:I’m afraid and would appreciate any advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2020

As I remember it, they reduced the Cipro dose by 1/2 so it wouldn't build up...

https://connect.mayoclinic.org/comment/920271/

It is a kind of vasculitis.

Discussion: Have Bronchiectasis, recently diagnosed with pseudomonas

Support Group: MAC & Bronchiectasis

Posted: Aug 28, 2023

@jasoncollins - I can’t imagine what your life is like with so many different problems making...

https://connect.mayoclinic.org/comment/131777/

possible that you have small vessel vasculitis

Discussion: Median Arcuate Ligament Syndrome (MALS)

Support Group: Digestive Health

Posted: Sep 20, 2020

Thank you for all the comments and information. Back home now from ER where they did...

https://connect.mayoclinic.org/comment/904921/

CT scan didn't find any vasculitis

Discussion: PMR diagnosed but now headache for almost a month.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31, 2023

@mcd123 hello, Cathy. I am surely doing well re RLS and since getting off the several...

https://connect.mayoclinic.org/comment/627215/

, I have just been diagnosed with Vasculitis

Discussion: Is restless leg (RLS) related to serotonin syndrome? Tips for relief?

Support Group: Brain & Nervous System

Posted: Aug 17, 2021

@johnbishop. Is that a woodchuck? Your woodchuck, John, Jr.? MY, he's precious and a big boy!...

https://connect.mayoclinic.org/comment/623280/

years, referred by nephrology for Vasculitis ... Looks like Vasculitis, Also, pulmonary

Discussion: What's outside of your picture window today?

Support Group: Just Want to Talk

Posted: Aug 4, 2021

@tsc. Thankyou for your post. In answer to your questions, yes, I had symptoms of extreme...

https://connect.mayoclinic.org/comment/646659/

were likely the result of the GCA vasculitis

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2021

Hello @grandmaabby, I'm so sorry to learn about your condition, and I'm glad that you've come...

https://connect.mayoclinic.org/comment/52478/

conditions associated with livedoid vasculitis

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2017

I was diagnosed with Cerebral Vasculitis of the brain following my first major stroke in September,2000...

https://connect.mayoclinic.org/comment/382292/

I was diagnosed with Cerebral Vasculitis ... reached the diagnosis of Cerebral Vasculitis

Event: #MayoClinicNeuroChat about Aneurysms and 3D Modeling

Posted: Jul 11, 2017

Uveitis was just the start of things to come when I was 32 years old. I...

https://connect.mayoclinic.org/comment/1176552/

------- I might have large vessel vasculitis

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2024

@delia74 your story and mine are almost identical! Over the last 7 years I have been...

https://connect.mayoclinic.org/comment/986105/

through several diseases including Vasculitis

Discussion: What does having ataxia do to your life?

Support Group: Brain & Nervous System

Posted: Dec 24, 2023

Hello @astaingegerdm. I'm a bit shy to post this msg online since many of the Mayo...

https://connect.mayoclinic.org/comment/712583/

My own research queried 'vasculitis

Discussion: Five days in hospital, no answers: Leg pain and bruising

Support Group: Autoimmune Diseases

Posted: May 29, 2022