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837 total results

Comments (765)

@nanny23 Nanny, at this point I can only add a bit of info. One of the...

https://connect.mayoclinic.org/comment/151328/

do this, such as various forms of Amyloidosis

Discussion: Looking for answers to help with gastroparesis

Support Group: Digestive Health

Posted: Feb 4, 2020

Lori, Yes I appreciate what you are saying. Sometimes it is best to leave well enough...

https://connect.mayoclinic.org/comment/775155/

oncologist with a special interest in amyloidosis

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Judging from the groaning and complaining coming from my monitor when I opened this page a...

https://connect.mayoclinic.org/comment/721438/

I have both Gelsolin (Amyloidosis) and

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jun 27, 2022

@okieshan1 I, too, have to deal with an autoimmune piece that has changed my life. My...

https://connect.mayoclinic.org/comment/216259/

show positive for Hereditary Gelsolin Amyloidosis

Discussion: Need TKR and had positive allergy testing / Bone Cement and Metals

Support Group: Joint Replacements

Posted: Sep 22, 2018

My understanding of Waldenstroms and amyloidosis is that it is a genetic disease that strikes primarily...

https://connect.mayoclinic.org/comment/113909/

understanding of Waldenstroms and amyloidosis

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2016

Hi Andrea @monce1189, Welcome to Connect. I'm glad you found Connect and I'm hoping some other...

https://connect.mayoclinic.org/comment/157940/

Disorders > Current diagnosis is Amyloidosis

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 3, 2019

@whiterose67 Hi, friend. My " painful feet and calves due to hypothyroidism bought on from thyroid...

https://connect.mayoclinic.org/comment/110672/

cancer brought on by my Light Chain Amyloidosis

Discussion: Hypothyroidism and Thyroid Cancer

Support Group: Thyroid Cancer

Posted: Mar 31, 2018

Hi, Darlia. Two quick notes. 1. I agree with @Jimhd. Sleep Study and potential narcolepsy. However,...

https://connect.mayoclinic.org/comment/92035/

Like Amyloidosis but without the biopsy

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Sep 2, 2017

I am 68 years old, I have MGUS and arrhythmogenic cardiomyopathy. Recent immunology shows my lambda...

https://connect.mayoclinic.org/comment/1370729/

biopsy done in 2022 that ruled out amyloidosis

Discussion: Is it normal for free light chains to fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Aug 14 4:05pm

I have a long way to go because I’ve only started to address the issue in...

https://connect.mayoclinic.org/comment/678135/

My father was Diagnosed with Amyloidosis

Discussion: B12 Deficiency common or not in redheads

Support Group: Brain & Nervous System

Posted: Feb 6, 2022

I have been SOB most of my life, and I am 80 now. Honestly, I have...

https://connect.mayoclinic.org/comment/203036/

Spongiform Encephalopathy), Gelsolin Amyloidosis

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jun 11, 2020

@ditamontoya and @hopeful33250 .. I was diagnosed as having LGMDr23 in 2015 by two labs working...

https://connect.mayoclinic.org/comment/730075/

diseases, often related to a myeloma(amyloidosis ... I have Gelsolin (Finnish Amyloidosis

Discussion: Limb Girdle Muscular Dystrophy

Support Group: Bones, Joints & Muscles

Posted: Jul 24, 2022

@feb ... Kathy, sounds to me that you have what is known by a bunch of...

https://connect.mayoclinic.org/comment/685009/

of different names besides Finnish Amyloidosis ... especially, the existence of the GSN - Amyloidosis

Discussion: Chest and upper back pain with bronchiectasis and pseudomonas

Support Group: MAC & Bronchiectasis

Posted: Feb 27, 2022

@patriciajennye Hi, Patsy. Over the last couple of centuries several members of my family, including me,...

https://connect.mayoclinic.org/comment/183534/

We have some form of Light Chain Amyloidosis ... freely at https://bit.Ly/1w7j4j8 "Amyloidosis

Discussion: Has anyone suffered from lumbar spinal stenosis? Did you have surgery?

Support Group: Spine Health

Posted: Feb 6, 2018

Lori, Thank you for the article, and for your inquiry also I am still uncertain as...

https://connect.mayoclinic.org/comment/775063/

The wild type and AL cardiac amyloidosis

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Thank you for your positive submissions relating to stage 4 prostate cancer. They give hope in...

https://connect.mayoclinic.org/comment/774841/

referred to Mayo Clinic for evaluation of amyloidosis

Discussion: Stage 4 prostate cancer treatment options

Support Group: Prostate Cancer

Posted: Nov 18, 2022

You are so right!!! I found out about a year ago that I have wild type...

https://connect.mayoclinic.org/comment/986909/

year ago that I have wild type ATTR ( Amyloidosis

Discussion: Chronic pain and upper abdomen? Please see added messages!!!

Support Group: Chronic Pain

Posted: Dec 26, 2023

My husband has MGUS and amyloidosis and received treatments and then a stem cell transplant in...

https://connect.mayoclinic.org/comment/847175/

My husband has MGUS and amyloidosis

Discussion: Has anyone experienced or is familiar with a high PTHrp?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

@techi Sure, Techi. Has anyone taken a good CT or MRI of our brain, especially around...

https://connect.mayoclinic.org/comment/175002/

of several different mutations of amyloidosis

Discussion: Headache

Posted: Nov 16, 2017

Hello. I had the same issue starting 7/2023. Went from chiropractor thinking slipped rib, ruled out,...

https://connect.mayoclinic.org/comment/1347591/

repeated tests, scans they suspected amyloidosis ... her words were “You are negative for amyloidosis

Discussion: Upper Right Quadrant Pain

Support Group: Digestive Health

Posted: Jul 13 8:21pm