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907 total results
Comments (825)
I had a terribly painful experience with the first bone marrow biopsy, and my doctor said...
https://connect.mayoclinic.org/comment/1332963/
years later with progression of my amyloidosis
@jwillits8 Yes, sometimes it seems that Mayo and most similar orgs are only helpful for the...
https://connect.mayoclinic.org/comment/635742/
be some form of Myeloma, probably Amyloidosis ... this way: Cancer > Myeloma > Amyloidosis
Hi @jebcyn. That’s a really inspirational story! It’s amazing how just the change in chemo regimens...
https://connect.mayoclinic.org/comment/782599/
That had to be frightening when the Amyloidosis
I had COVID ,Feb 2022 and sufferred with every symptom listed. Finlly got into a Post...
https://connect.mayoclinic.org/comment/708406/
which inflamed a reactivation of my AL AMYLOIDOSIS
You are totally correct, and I have been misdiagnosed as having a heart attack before when...
https://connect.mayoclinic.org/comment/1679792/
for hours from his already diagnosed amyloidosis
I went to the Mayo Clinic. And had 5 days of testing to confirm the Amyloidosis....
https://connect.mayoclinic.org/comment/1258777/
had 5 days of testing to confirm the Amyloidosis
I assume the stiffening of your heart is on the outside of your heart, and you...
https://connect.mayoclinic.org/comment/1099290/
If so, this is (Cardiac Amyloidosis)
Jim, I know that finding the right MD is the toughest part of chronic illness. My...
https://connect.mayoclinic.org/comment/95088/
stomach, esophagus, thyroid, and proven amyloidosis
@barbarian1 That is the purpose of a baseline biopsy, to show the initial health of your...
https://connect.mayoclinic.org/comment/1433000/
biopsies last summer that ruled out amyloidosis
Interesting note you give us. Almost everything you mention, except the specific diagnoses, I can relate...
https://connect.mayoclinic.org/comment/595137/
Hopkins, no less) had heard of, called Amyloidosis ... from Cancer to Multiple Myeloma to Amyloidosis ... under the name Gelsolin, AKA Finnish Amyloidosis
I have an appt coming up in March at Mayo. I received some interesting literature yesterday....
https://connect.mayoclinic.org/comment/147195/
explanation: a person has Familial amyloidosis
@rvickert I am still not sure I know the size of bumps you speak of, but...
https://connect.mayoclinic.org/comment/313062/
Gelsolin and perhaps other forms of Amyloidosis
I had the same issue when I started PT. I had COVID February 2020. My Pulmonary...
https://connect.mayoclinic.org/comment/688075/
My Amyloidosis returned and spread,
In my case, my "stiff heart" is apparently the result of cardiac amyloidosis. The V and...
https://connect.mayoclinic.org/comment/102954/
is apparently the result of cardiac amyloidosis
@srodriguez Hi, my friend. So much compassion for where you're at with you Light Chain Amyloidosis....
https://connect.mayoclinic.org/comment/70302/
you're at with you Light Chain Amyloidosis ... Myeloma, or Gelsolin, of plain old Amyloidosis ... Look up the Amyloidosis Foundation
I do have celiac and I am vigilant about no gluten and it's not hard because...
https://connect.mayoclinic.org/comment/70306/
He says I have Amyloidosis and my husband
@tracyann Just a quick note. My sister is in the final stages of life with Crohn's....
https://connect.mayoclinic.org/comment/137325/
close family with various types of amyloidosis
Yes, to make it short. But a couple lab tests might give you a clue.First, though,...
https://connect.mayoclinic.org/comment/149847/
Amyloidosis? ... And contact Amyloidosis.Org for lots
I've been taking alendronate for osteopenia since October 2023. I was diagnosed with Myeloma and Amyloidosis...
https://connect.mayoclinic.org/comment/1289613/
I was diagnosed with Myeloma and Amyloidosis
mikee and Jewel8888, yes, these are tough nuts to crack, and getting legitimate treatment is very...
https://connect.mayoclinic.org/comment/128397/
quite expensive, and in the case of amyloidosis
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