PV – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

1,156 total results

Comments (1,069)

@cdurbin I, too, have PV and was diagnosed 5 years ago. I take 2 baby aspirin/day...

https://connect.mayoclinic.org/comment/1221100/

@cdurbin I, too, have PV and was diagnosed ... many publications on the topic of PV

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2025

Hi @saucy, In this case PV is Polycythemia Vera. It’s A type of blood cancer where...

https://connect.mayoclinic.org/comment/818232/

Hi @saucy, In this case PV is Polycythemia ... But here is a little information on PV

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

Penny...what was the determination? EV..PV? I too was diagnosed 3 years ago. BMB confirmed PV with...

https://connect.mayoclinic.org/comment/329374/

EV..PV? ... BMB confirmed PV with a Jak2 mutation

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2021

1pearl, Having faith in your healthcare provider is a great comfort when navigating conditions. I was...

https://connect.mayoclinic.org/comment/1252950/

diagnosed with Polycythemia Vera (PV ... PV is a nasty family relative of ET.

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2025

trustfaith4, I am not an expert on ET but I have have experience with Polycythemia Vera...

https://connect.mayoclinic.org/comment/1167012/

experience with Polycythemia Vera (PV ... My PV causes my body to produce platlets

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2024

reneemichelle, thank you so much for these citations. For the third item, this link will take...

https://connect.mayoclinic.org/comment/1283002/

being leukemogenic in either ET or PV ... largest non-controlled studies in ET and PV

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

Colleen, fatigue and itching are nasty symptoms of PV, period. I am miserable due to fatigue...

https://connect.mayoclinic.org/comment/776339/

and itching are nasty symptoms of PV

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2022

I understand that it is all very confusing. First are the difgerent diseases in the MPN...

https://connect.mayoclinic.org/comment/328561/

diseases in the MPN geoup, ie: ET, PV

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2020

Hello Everyone, Met with Hematologist today. Expectedly so, based on Jak2 detection and blood counts level,...

https://connect.mayoclinic.org/comment/937118/

has officially stamped diagnosis for PV

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2023

Have been on Jakafi since Fall last year and the only side effect is continuous sensation...

https://connect.mayoclinic.org/comment/908479/

UTI when I have to urinate (tied to PV

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

I have been on hydroxyurea for 3+ years following my diagnosis of PV. It has been...

https://connect.mayoclinic.org/comment/1179484/

3+ years following my diagnosis of PV

Discussion: Anyone had adverse effects from Jakafi (ruxolitinib) for PV?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2024

I was diagnosed with ET right after receiving the covid shot and like you I think...

https://connect.mayoclinic.org/comment/1417959/

started on hydrox and Dr. now says it’s PV

Discussion: Anyone else taking Hydroxyurea plus Gabapentin for Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2025

I’ll second the recommendation regarding exposure to the sun… I’ve been in Florida for a week...

https://connect.mayoclinic.org/comment/821588/

FYI diagnosed with PV spring of 2021

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

I have PV. Diagnosed 1/23 and am 57 years old. I had sore gums and tooth...

https://connect.mayoclinic.org/comment/1035554/

I have PV.

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2024

Glad you were diagnosed, @irishnanny3. Sorry to hear you're been having TIAs for some time. Since...

https://connect.mayoclinic.org/comment/1339287/

you to take a look at this or other PV

Discussion: Ischemic stroke, now mobility more limited, looking for encouragement

Support Group: Stroke & Cerebrovascular Diseases

Posted: Jul 1, 2025

Hi as I’ve recently been diagnosed with PV and have the JAK2 mutation I’m reading all...

https://connect.mayoclinic.org/comment/1437594/

I’ve recently been diagnosed with PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2025

I’ve been taking hydroxyurea for my PV since 2018 Two and half years ago my rheumatologist...

https://connect.mayoclinic.org/comment/1427100/

ve been taking hydroxyurea for my PV

Discussion: Anyone taking Hydroxyurea for ET and Prolia for Osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2025

Hi @nyjean. Hopefully I can answer your question about PV and ET. Those two conditions, along...

https://connect.mayoclinic.org/comment/1066510/

Hopefully I can answer your question about PV ... mentioned, there are other MPNs besides PV ... PV doesn’t turn into ET or vice versa ... of at least one member who has both PV

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Hello, I was recently diagnosed with PV in January. Originally my PC saw my red cells...

https://connect.mayoclinic.org/comment/870205/

Hello, I was recently diagnosed with PV

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

@roughanne, I moved your post about your new diagnosis of polycythemia vera to this existing discussion...

https://connect.mayoclinic.org/comment/1437225/

search function to find other related PV