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833 total results
Comments (763)
Relocating to Phoenix at some point and called Mayo Clinic for an appt. I was told...
https://connect.mayoclinic.org/comment/1031626/
nerve biopsies, tests to r/o MS and Amyloidosis
About chronic bronchiectasis. Several sources name this as a Positive Obligate sign of Gelsolin, or some...
https://connect.mayoclinic.org/comment/321181/
Gelsolin, or some call it Finnish Amyloidosis
Although I am diabetic (II), my neuropathy does not seem to be connected to the Glucose...
https://connect.mayoclinic.org/comment/211009/
seems to be my Gelsolin (AGel or GSN) Amyloidosis
@edda Hi, Edda. Don't be scared. The only thing to be scared of is that you...
https://connect.mayoclinic.org/comment/182461/
Medicare covers the basic tests for amyloidosis
I'm so sorry you're having to deal with all of this, it is indeed a big...
https://connect.mayoclinic.org/comment/1216639/
m glad you're being tested for amyloidosis
My husband’s heart was not affected by amyloid. His was localized to the kidneys. His kidney...
https://connect.mayoclinic.org/comment/1024115/
Amyloidosis is tricky, and MD Anderson
I researched and found out the purpose. My hemo/onc had my gastroenterologist do a biopsy for...
https://connect.mayoclinic.org/comment/754121/
gastroenterologist do a biopsy for Amyloidosis
@davej It is interesting how much can be seen on a good EKG, TEE or not,...
https://connect.mayoclinic.org/comment/330291/
and rest, a strong sign of cardiac amyloidosis
This is one of the articles that I found online about light chain amyloidosis: http://cjasn.asnjournals.org/content/1/6/1331.full. It...
https://connect.mayoclinic.org/comment/64605/
that I found online about light chain amyloidosis
@crissy2450 of the eight siblings of my family, and a dozen or so of their grown...
https://connect.mayoclinic.org/comment/217290/
14 have been dX with some form of Amyloidosis
@hopeful33250 Sure, Teresa. The nerve/muscle issue is not difficult to understand. Amyloidosis is a matter of...
https://connect.mayoclinic.org/comment/175113/
Amyloidosis is a matter of genetically ... cerebellum and is called cerebral cortex Amyloidosis ... 0.500 G/24 hour, you have some form of Amyloidosis
Hi there, I have the exact same symptoms as you and I am scheduled for a...
https://connect.mayoclinic.org/comment/980344/
the 29th to confirm or rule out AL Amyloidosis
@msbailey75 My heart muscles are stiffening, and enlarging. They quiver and vibrate as they contract and...
https://connect.mayoclinic.org/comment/383391/
what I have, a hereditary Gelsolin Amyloidosis
@ocogram I also have headaches almost every day, right behind the eyes and around the crown...
https://connect.mayoclinic.org/comment/96329/
I have ocular amyloidosis, systemic,
Upcoming webinar of interest... Foundation for Peripheral Neuropathy Webinar: Hereditary Neuropathy & Genetic Testing Thu, Oct...
https://connect.mayoclinic.org/comment/749431/
He co-founded the Penn Amyloidosis Center ... patients with hereditary and acquired amyloidosis
@pedie Sorry to hear about your tough spot, but it is not too surprising. First, in...
https://connect.mayoclinic.org/comment/182048/
corneal lattice effect from systemic Amyloidosis ... If you read my larger story, Amyloidosis
Sounds very frustrating for you. Seems every institution including Mayo has a “watch and wait” protocol...
https://connect.mayoclinic.org/comment/883525/
Have you been checked for Amyloidosis
@joan912 Hi, Joan, there are a few good docs at AZ. However, do not let them...
https://connect.mayoclinic.org/comment/166727/
I went there to sort out my Amyloidosis
Just a bit more for you. I have many dis-eases, and am learning they are all...
https://connect.mayoclinic.org/comment/149849/
springing from or piggybacking on my amyloidosis
Peggyjean- Thank you so much for sharing your hard ordeals with me. All the information you...
https://connect.mayoclinic.org/comment/1120375/
And find out anything I can about amyloidosis
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