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827 total results
Comments (755)
Now that he has had the PD surgery and waiting for it to heal before they...
https://connect.mayoclinic.org/comment/215029/
is 76 years old and due to the AL Amyloidosis
Kyle @lquillen1963, I have a number of the same symptoms, but that only means one thing:...
https://connect.mayoclinic.org/comment/298144/
Some sort of wild type/systemic amyloidosis
@srodriguez Hi, my friend. So much compassion for where you're at with you Light Chain Amyloidosis....
https://connect.mayoclinic.org/comment/70302/
you're at with you Light Chain Amyloidosis ... Myeloma, or Gelsolin, of plain old Amyloidosis ... Look up the Amyloidosis Foundation
Just a bit more for you. I have many dis-eases, and am learning they are all...
https://connect.mayoclinic.org/comment/149849/
springing from or piggybacking on my amyloidosis
Now that he has had the PD surgery and waiting for it to heal before they...
https://connect.mayoclinic.org/comment/213106/
is 76 years old and due to the AL Amyloidosis
@msbailey75 My heart muscles are stiffening, and enlarging. They quiver and vibrate as they contract and...
https://connect.mayoclinic.org/comment/383391/
what I have, a hereditary Gelsolin Amyloidosis
@ocogram I also have headaches almost every day, right behind the eyes and around the crown...
https://connect.mayoclinic.org/comment/96329/
I have ocular amyloidosis, systemic,
Hi there, I have the exact same symptoms as you and I am scheduled for a...
https://connect.mayoclinic.org/comment/980344/
the 29th to confirm or rule out AL Amyloidosis
@joan912 Hi, Joan, there are a few good docs at AZ. However, do not let them...
https://connect.mayoclinic.org/comment/166727/
I went there to sort out my Amyloidosis
Sounds very frustrating for you. Seems every institution including Mayo has a “watch and wait” protocol...
https://connect.mayoclinic.org/comment/883525/
Have you been checked for Amyloidosis
Interesting note you give us. Almost everything you mention, except the specific diagnoses, I can relate...
https://connect.mayoclinic.org/comment/595137/
Hopkins, no less) had heard of, called Amyloidosis ... from Cancer to Multiple Myeloma to Amyloidosis ... under the name Gelsolin, AKA Finnish Amyloidosis
@lily2013 Hi, Lily.Your situation is very interesting, but I believe there is hope of some understanding,...
https://connect.mayoclinic.org/comment/182119/
disorders such as hATTRwt (hereditary Amyloidosis ... Hereditary because it is in the blood line, Amyloidosis ... but it is still the gold standard, "Amyloidosis
Hi @jebcyn. That’s a really inspirational story! It’s amazing how just the change in chemo regimens...
https://connect.mayoclinic.org/comment/782599/
That had to be frightening when the Amyloidosis
@eltrosewater Back to Crohn's. my family and I for several generations have been diagnosed with some...
https://connect.mayoclinic.org/comment/212159/
diagnosed with some form of hereditary Amyloidosis
I have pain everywhere, and one serious pain currently and for years is in the are...
https://connect.mayoclinic.org/comment/77708/
Mayo, may be related to some form of Amyloidosis
I had COVID ,Feb 2022 and sufferred with every symptom listed. Finlly got into a Post...
https://connect.mayoclinic.org/comment/708406/
which inflamed a reactivation of my AL AMYLOIDOSIS
Thank-you! In addition to my joint symptoms, I had these strange skin lesions, purpura, in, of...
https://connect.mayoclinic.org/comment/1046753/
, who did skin biopsies, came back Amyloidosis
Peggyjean- Thank you so much for sharing your hard ordeals with me. All the information you...
https://connect.mayoclinic.org/comment/1120375/
And find out anything I can about amyloidosis
@jwillits8 Yes, sometimes it seems that Mayo and most similar orgs are only helpful for the...
https://connect.mayoclinic.org/comment/635742/
be some form of Myeloma, probably Amyloidosis ... this way: Cancer > Myeloma > Amyloidosis
@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering...
https://connect.mayoclinic.org/comment/81213/
For information on amyloidosis try this ... website from the Amyloidosis Foundation ... https://amyloidosis.org/facts/ You
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