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821 total results

Comments (750)

That's a tough row to how, Lisabeans. I have some of the same stuff, but not...

https://connect.mayoclinic.org/comment/137308/

99 % sure) that I have some form of amyloidosis ... themselves that there is no such thing as amyloidosis

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: May 13, 2017

@peach414144 Hi, Peach. So sorry to hear about your issue. However, I have been reading about...

https://connect.mayoclinic.org/comment/102958/

to have you tested for some form of Amyloidosis ... And for treatment of any form of Amyloidosis

Discussion: Stiff Heart - diastolic heart failure

Support Group: Heart & Blood Health

Posted: Nov 9, 2017

About chronic bronchiectasis. Several sources name this as a Positive Obligate sign of Gelsolin, or some...

https://connect.mayoclinic.org/comment/321181/

Gelsolin, or some call it Finnish Amyloidosis

Discussion: Chest and upper back pain with bronchiectasis and pseudomonas

Support Group: MAC & Bronchiectasis

Posted: Nov 21, 2020

Although I am diabetic (II), my neuropathy does not seem to be connected to the Glucose...

https://connect.mayoclinic.org/comment/211009/

seems to be my Gelsolin (AGel or GSN) Amyloidosis

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Jul 7, 2020

@edda Hi, Edda. Don't be scared. The only thing to be scared of is that you...

https://connect.mayoclinic.org/comment/182461/

Medicare covers the basic tests for amyloidosis

Discussion: First degree av block

Support Group: Heart Rhythm Conditions

Posted: Feb 7, 2018

See a hematologist. Check for protein in your plasma, your serum, your urine. Your pain sounds...

https://connect.mayoclinic.org/comment/148155/

Kee's little book about amyloidosis.

Discussion: Chest pain conflicting diagnosis

Support Group: Heart & Blood Health

Posted: May 28, 2017

Relocating to Phoenix at some point and called Mayo Clinic for an appt. I was told...

https://connect.mayoclinic.org/comment/1031626/

nerve biopsies, tests to r/o MS and Amyloidosis

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 11 10:46am

I researched and found out the purpose. My hemo/onc had my gastroenterologist do a biopsy for...

https://connect.mayoclinic.org/comment/754121/

gastroenterologist do a biopsy for Amyloidosis

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

@davej It is interesting how much can be seen on a good EKG, TEE or not,...

https://connect.mayoclinic.org/comment/330291/

and rest, a strong sign of cardiac amyloidosis

Discussion: I'm worried about chest pain/pressure

Support Group: Heart & Blood Health

Posted: Mar 4, 2021

This is one of the articles that I found online about light chain amyloidosis: http://cjasn.asnjournals.org/content/1/6/1331.full. It...

https://connect.mayoclinic.org/comment/64605/

that I found online about light chain amyloidosis

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jun 12, 2018

I have had this problem for a few years, and about 2-3 times each year. I...

https://connect.mayoclinic.org/comment/127067/

case, probably a gift of my kind of amyloidosis

Discussion: ESOPHOGEAL DIVERTICULUM -SPECIALIST IN THE JUPITER FLORIDA AREA.

Support Group: Digestive Health

Posted: Nov 6, 2016

My husband’s heart was not affected by amyloid. His was localized to the kidneys. His kidney...

https://connect.mayoclinic.org/comment/1024115/

Amyloidosis is tricky, and MD Anderson

Discussion: Newly dx with stiff heart

Support Group: MAC & Bronchiectasis

Posted: Feb 28 7:03am

I had neuropathy in my left foot/toes and terrible nerve pain. The mm and amyloidosis were...

https://connect.mayoclinic.org/comment/104687/

The mm and amyloidosis were diagnosed

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2016

@crissy2450 of the eight siblings of my family, and a dozen or so of their grown...

https://connect.mayoclinic.org/comment/217290/

14 have been dX with some form of Amyloidosis

Discussion: Chemo side effects

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2018

@mehlisue Sorry you feel you did not get any support here. I respond to every note...

https://connect.mayoclinic.org/comment/173902/

though, that exercise of writing "Amyloidosis ... written about twenty more pages in "Amyloidosis ... showing signs of various forms of Amyloidosis

Discussion: Cardiac Amyloidosis

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 25, 2017

@hopeful33250 Sure, Teresa. The nerve/muscle issue is not difficult to understand. Amyloidosis is a matter of...

https://connect.mayoclinic.org/comment/175113/

Amyloidosis is a matter of genetically ... cerebellum and is called cerebral cortex Amyloidosis ... 0.500 G/24 hour, you have some form of Amyloidosis

Discussion: heartbeat too fast with congestive heart failure

Support Group: Heart & Blood Health

Posted: Nov 21, 2017

Now that he has had the PD surgery and waiting for it to heal before they...

https://connect.mayoclinic.org/comment/215029/

is 76 years old and due to the AL Amyloidosis

Discussion: More peritoneal questions

Support Group: Kidney & Bladder

Posted: Sep 24, 2018

Kyle @lquillen1963, I have a number of the same symptoms, but that only means one thing:...

https://connect.mayoclinic.org/comment/298144/

Some sort of wild type/systemic amyloidosis