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Comments (937)

@2catmom nice to meet another CPAN person! We are few and far between…I was diagnosed in...

https://connect.mayoclinic.org/comment/817855/

me with peripheral neuropathy, and Raynaud

Discussion: Vasculitis - have you been re-biopsied?

Support Group: Autoimmune Diseases

Posted: Feb 26, 2023

Thank you for your interest and help. I am not taking Gabapenton, I am on Pregabapentin...

https://connect.mayoclinic.org/comment/814982/

of circulation in your hands may be Raynaud ... Raynaud's can also cause the circulation

Discussion: Trigeminal neuralgia: What helps stop the pain?

Support Group: Brain & Nervous System

Posted: Feb 21, 2023

The neuropathy is awful. Mine started about 5-6 weeks after having Covid the first time (July...

https://connect.mayoclinic.org/comment/813189/

Covid toes/feet, I was diagnosed with Raynaud ... different colors and now, where I have Raynaud

Discussion: Neuropathy post-Covid infection: Is there treatment that helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 17, 2023

Welcome @phillydee, I know it must be difficult dealing with so many symptoms for as long...

https://connect.mayoclinic.org/comment/796440/

connect.mayoclinic.org/discussion/mctd-265a2b/ – Raynaud ... /connect.mayoclinic.org/discussion/raynauds-syndrome

Discussion: MCTD, Fibromyalgia, Reynauds

Support Group: Autoimmune Diseases

Posted: Jan 14, 2023

I use Cera Ve creams and Working Hands several times each day. They help. I cannot...

https://connect.mayoclinic.org/comment/793953/

My other challenge is Raynaud’s Disease

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jan 8, 2023

Wow, that was quite a line up!!! I think that PAD and Raynaud’s would be my...

https://connect.mayoclinic.org/comment/790010/

I think that PAD and Raynaud’s would

Discussion: Vascular Disease: What is your progression of disease?

Support Group: Heart & Blood Health

Posted: Dec 29, 2022

The problem with your esophagus is esophageal dysmotility. Believe me it is a real problem with...

https://connect.mayoclinic.org/comment/789487/

Calcinosis R = Raynauds E = esophageal

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Dec 27, 2022

I have had Raynauds my whole life. Mainly numb fingers and toes when in cold temperatures...

https://connect.mayoclinic.org/comment/782648/

I have had Raynauds my whole life. ... disease as a result which started with Raynauds ... - wondering if there is a link to Raynauds

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Dec 9, 2022

Hello I’ve just been told by my primary doctor that I have Reynauds disease I’ve noticed...

https://connect.mayoclinic.org/comment/781627/

told by my primary doctor that I have Reynauds

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Dec 6, 2022

Hi Wendy, Just finished my 2 yrs. of Forteo and got my 1st injection yesterday for...

https://connect.mayoclinic.org/comment/768902/

Lupus, Sjogen's, Scleroderma, Reynaud

Discussion: Prolia treatment for osteoporosis: What is your experience?

Support Group: Osteoporosis & Bone Health

Posted: Nov 3, 2022

my rheumatologist also checked my ANA (Antinuclear Ab, HEp-2 Substrate, S). Method: Immunofluorescence using HEp-2 cellular...

https://connect.mayoclinic.org/comment/757633/

but it stands for: (calcinosis, Raynaud

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Oct 5, 2022

I know it’s frustrating… As you know, GCA, and PMR are forms of Vasculitis. There are...

https://connect.mayoclinic.org/comment/734091/

Your Raynaud’s is awful.

Discussion: Think I have Giant Cell Arteritis (or GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4, 2022

I’m not making a little of GCA. when I originally had head pain and a ESR...

https://connect.mayoclinic.org/comment/733862/

I have PMR and Raynauds hence Florida

Discussion: Think I have Giant Cell Arteritis (or GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 3, 2022

Hi Debbie! Yes, I had a nerve conduction test done first, by the first neurologist I...

https://connect.mayoclinic.org/comment/723627/

neuro also wondered if I might have Reynaud

Discussion: Small Fiber Neuropathy biopsy test results

Support Group: Neuropathy

Posted: Jul 4, 2022

Thank you for your swift reply. In May 2022, I ended up in ER in April...

https://connect.mayoclinic.org/comment/721582/

night sweats, weakness, unrelenting Raynauds

Discussion: Looking for neuroendocrine tumor (NET) with carcinoid syndrome support

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2022

When I was first diagnosed with MCTD the Raynaud’s was severe in my hands, feet and...

https://connect.mayoclinic.org/comment/715269/

was first diagnosed with MCTD the Raynaud

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Jun 7, 2022

I have experienced Raynaunds for many yrs. with my UCTD . I have had to take...

https://connect.mayoclinic.org/comment/714960/

I have experienced Raynaunds for many ... but as a side benefit my episodes of Raynauds

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Jun 6, 2022

Hello @wiedd, Welcome to Connect. I know it has to be frustrating when you are trying...

https://connect.mayoclinic.org/comment/711826/

Since you mentioned you also have Reynaud ... discussion you might find helpful -- Raynaud ... /connect.mayoclinic.org/discussion/raynauds-syndrome

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: May 27, 2022

I was told Fibromyalgia before we could even use the term due to just lazy or...

https://connect.mayoclinic.org/comment/701226/

I’ve gone to UC, DDD, RA, SS, REYNAUDS

Discussion: Fibromyalgia..Is It an autoimmune disease?

Support Group: Fibromyalgia

Posted: Apr 22, 2022

Hi @dipperlip1, I'm wondering if the feet going from cold to hot and changing colors is...

https://connect.mayoclinic.org/comment/678530/

hot and changing colors is caused by Raynaud ... discussion you might find helpful: -- Raynaud ... /connect.mayoclinic.org/discussion/raynauds-syndrome ... article -- What you need to know about Raynaud

Discussion: Peripheral Neuropathy vs. Erythromelalgia

Support Group: Autoimmune Diseases

Posted: Feb 7, 2022