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Comments (3,924)
Thanks for replying Chris. I am very discouraged I guess. My pain never stops. The spasms...
https://connect.mayoclinic.org/comment/92927/
primary doctor who is wonderful wants to help ... to read up on SFN and small fiber neuropathy ... to just sit down and explain to me what ... to expect or how to deal with what ... that is the way I learn more about what
@resawaller I have been on a quest for nearly a decade for a medication for my...
https://connect.mayoclinic.org/comment/157780/
for a medication for my peripheral neuropathy ... Lyrica was the first neuropathy medication ... that was starting to help until I had ... was turned on, and I had a taste of what ... It does help, but my feet are hurting
Diabetes does seem to be the leader along with idiopathic neuropathy. My cause is B12 deficiency....
https://connect.mayoclinic.org/comment/272513/
be the leader along with idiopathic neuropathy ... B12 injections have helped me level ... that are being referred to you can help ... fiber turning into large fiber and what
@helennicola, Good afternoon, thanks for responding today. I will cut right to the chase. The tingling...
https://connect.mayoclinic.org/comment/157652/
the percentage of living small fiber neuropathy ... this point, there is no cure from neuropathy ... and lifestyle adjustments that can help ... We can be right here to help you discover ... what is possible.
@lynnaustin Wow...that was fast. Thank you for responding. I am tagging @johnbishop since he also replied...
https://connect.mayoclinic.org/comment/157651/
As your "neuropathy" has moved ... skin biopsy to detect small fiber neuropathy ... exercises or treatments that can be helpful ... If I may ask, what dosage are you using ... balms or lotions or compounds that help
@rucyrious, Good evening. You have told your story well. What I hear loud and clear is...
https://connect.mayoclinic.org/comment/270858/
What I hear loud and clear is that you ... that someone would be available to help ... Biofeedback was helpful in becoming ... needles and tingles from my small fiber neuropathy ... So....let me know what might be possible
Hi, have you looked into trying MFR, or Myofascial Release Therapy? After just 1 session I...
https://connect.mayoclinic.org/comment/260012/
feel a reduction in the affects of neuropathy ... treatments as well you do at home to help ... This has really helped me with my attitude ... Hope this helps and good luck finding ... what you are looking for!!
@peggyn, Good afternoon. I will try to answer your questions succinctly. First.....a question for you. How...
https://connect.mayoclinic.org/comment/268641/
The MFR therapist can feel what is under ... With the diagnosis of Small Fiber Neuropathy ... Your therapist will also teach you what ... massagers that may be of surprising help
@peggyn -- I think I shared with you before that I've been taking the protocol from...
https://connect.mayoclinic.org/comment/268624/
Facebook group Solutions to Peripheral Neuropathy ... although I only have numbness with my neuropathy ... You can read my neuropathy story posted ... Here are some links that will help you ... determine what's legit and what
Hello Catie @cbnewpain -- Welcome to Connect. You mentioned you have vitamin B12 deficiency. Vitamin B12...
https://connect.mayoclinic.org/comment/157494/
trying to boost your B12 levels to help ... numbness with my small fiber peripheral neuropathy ... members can share their experience and what ... helps with the pain.
Yes it can help. Using an ointment and rubbing on surgical site has provided relief. Smoking...
https://connect.mayoclinic.org/comment/188484/
Yes it can help. ... What’s has helped the most so far for ... been a game changer in relieving the neuropathy ... What I mentioned above has been the
Wow! like I said, in my younger days, my finger would just twitch sometimes. if those...
https://connect.mayoclinic.org/comment/267714/
interventions the doc suggested and what ... helped
on the bike:
keep your weight ... hands, now I'd describe that as neuropathy
Laura, your description of your feet sounds exactly like mine... and I have Erythromelalgia along w/...
https://connect.mayoclinic.org/comment/256511/
vascular problem and of course we know what ... good ole neuropathy is like.. ... We do have to figure out what works ... doesn't for ourselves, because what ... helps one person might not help another
I am willing to have any surgery that will help with axonal sensory neuropathy. My doctors...
https://connect.mayoclinic.org/comment/238085/
willing to have any surgery that will help ... with axonal sensory neuropathy. ... #39;ll read this thread for ideas of what
Hi @carryme, I'm glad to electronically make your acquaintance too. I'm really not that knowledgeable but...
https://connect.mayoclinic.org/comment/203608/
things that impact my health or could help ... counter vitamins and minerals I take to help ... my neuropathy are not a cure. ... That said, the protocol I take has helped ... has a link to where I found them and what
Hi @elained . I just read through your post and had to extend my sincere sorrow...
https://connect.mayoclinic.org/comment/201237/
extend my sincere sorrow for all of the neuropathies ... at night and I noticed that it also helped ... little about Stem Cell treatment for Neuropathy ... with you about their experiences with what
Elizabeth@enska I’m sorry I haven’t responded to your post until now. I’ve been struggling with the...
https://connect.mayoclinic.org/comment/241682/
I wish that what is available now was ... information about complications or what ... The retinopathy and peripheral neuropathy ... The autonomic neuropathy (gastroparesis ... Find the help for your depression that
@Jamie Olson. Hello I was diagnosed with a hypoglossal Schwannoma location is the right side pushing...
https://connect.mayoclinic.org/comment/238536/
noted chiari 1 malformation, this is what ... I had neuropathy both legs and feet, ... Over 5 weeks on steroids did not help ... sensation in EVERY single joint and what ... They did not help the symptoms so after
I am curious to know if you have any further successes? I had pelvic vein embolization...
https://connect.mayoclinic.org/comment/218781/
research I said I thought I had pudendal neuropathy ... I don’t know what type of doctor to ... I would love to know what type of doctors ... other are seeking for help, and what ... is helping.
Hi @jlind it must be relieving to not take any medications at this time. I wanted...
https://connect.mayoclinic.org/comment/156898/
share this link in hopes it could be helpful ... with different types of peripheral neuropathy ... What are your symptoms?
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