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1,156 total results
Comments (1,069)
@kjoauch Jak2 positive can be diagnosed from a single lab test. It’s very expensive and takes...
https://connect.mayoclinic.org/comment/1401652/
Other times people have PV and are not ... PV and JAK2 Positive.
*/eileen1108, My platelet count is in the 250,00 range. Depending on who you talk to the...
https://connect.mayoclinic.org/comment/784190/
I am still a PV only person. ... My PV has not migrated into one of the
Hi, I just want to say thank you to everyone who has posted re PV and...
https://connect.mayoclinic.org/comment/1412874/
you to everyone who has posted re PV ... I am 73 and was diagnosed with PV in
Hi Keith, When someone gets a diagnosis of a blood cancer it’s pretty natural to experience...
https://connect.mayoclinic.org/comment/911932/
You’re right, with PV, not everyone ... aren’t aware of how long they’ve had PV ... With PV only the red blood cells are
Welcome to Mayo Connect, @ausableriver I’m happy you found us and decided to bypass Dr Google....
https://connect.mayoclinic.org/comment/875590/
Primary PV is caused by an acquired ... uncontrolled cell production as in PV ... active support group for members with PV
Thank you for the information. I have had some issues with blood clots in the past...
https://connect.mayoclinic.org/comment/850335/
blood clots in the past prior to my PV
Are you by chance taking testosterone, either by injection or a topical preparation? Polycythemia (but not...
https://connect.mayoclinic.org/comment/784089/
Polycythemia (but not PV) is often secondary
I've been treated for hypothyroid going on about 30 years. The found 2 nodules benign on...
https://connect.mayoclinic.org/comment/891975/
when other tests are negative for pv
I have PV and was put on 10mg then 30 mg Jakafi. Side-effects were constipation, scrubby...
https://connect.mayoclinic.org/comment/849654/
I have PV and was put on 10mg then 30
Hi! I just saw you mentioned a transplant? Which one? My husband had a liver transplant...
https://connect.mayoclinic.org/comment/885904/
Hydroxyurea for PV high risk for skin
Welcome to Connect, @shellep16 As fellow member @eloise999 mentioned, an allogenic SCT (using donor cells) would...
https://connect.mayoclinic.org/comment/1324156/
thrombocythemia (ET) or polycythemia vera (PV ... reserved for patients with advanced ET or PV
I have constant tickling all over face, ears and back. Also bad itching on scalp and...
https://connect.mayoclinic.org/comment/818196/
I don't know what PV is but all ... severe but would like to know what PV
Thank you. I was just diagnosed one week ago, but I am going to get the...
https://connect.mayoclinic.org/comment/194354/
PV is so rare. ... are only about 100,000 people with PV
Hello all. I am a healthy 26 y.o. male. Last week, I went to my doctor...
https://connect.mayoclinic.org/comment/231801/
potentially be hemochromatosis or PV ... mine are to become a concern for a PV
WOW! mattymatilda @mattymatilda, https://www.mayoclinic.org/diseases-conditions/mixed-connective-tissue-disease/symptoms-causes/syc-20375147 Just( PV-MF and several other diagnosis) That's so hard and frustrating. My...
https://connect.mayoclinic.org/comment/816334/
symptoms-causes/syc-20375147
Just( PV-MF ... PPV-MF but several people here have PV
Welcome Christine, I moved your "just diagnosed" message to this existing discussion of the same name:...
https://connect.mayoclinic.org/comment/749672/
connect easily with members like @pv17082022 ... polycythemia-primary-or-secondary/
- PV ... /connect.mayoclinic.org/discussion/pv-itching-not-after-bathing
I’m reading so many have PV yet it’s considered rare blood cancer. Like you, I never...
https://connect.mayoclinic.org/comment/844049/
I’m reading so many have PV yet it’s ... Was told I have PV three weeks ago.
I am new to this, so all I will do at this point is explain my...
https://connect.mayoclinic.org/comment/1357124/
on what is working for others with PV ... I am 83 years old and I've had PV
@mcvorbs, you might also be interested in these related discussions: - What's the latest Jakafi (ruxolitinib)...
https://connect.mayoclinic.org/comment/1178780/
ruxolitinib) for polycythemia vera (PV
I'm just starting on Jakafi and am anxious about the side effects and the necessity of...
https://connect.mayoclinic.org/comment/1381817/
done them along with Hydroxyurea for PV
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