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75 total results
Comments (69)
Our Osteostrong in Central Florida is $149 a month, and I pay $159 so I can...
https://connect.mayoclinic.org/comment/1368416/
session like a red light therapy, a PMF
Hi nohrt4me, Thank you for posting. White Coat Syndrome just means I get really high BP...
https://connect.mayoclinic.org/comment/1247243/
looked at all CALR mutation patients as PMF ... has experience treating either ET or PMF ... If I truly have PMF, her Hydrea regimen ... for docs to tell if one has ET or PMF
You know that my doctor called that another doctor by phone in front of me!! And...
https://connect.mayoclinic.org/comment/1044421/
him to diagnose me officially with pmf
My mother had CLL at 50, and my niece was diagnosed with ET at 15….then I...
https://connect.mayoclinic.org/comment/658776/
ET at 15….then I was diagnosed with PMF ... I belong to some blogs with other PMF
Kaiser Permanente Northern California seems to be treating Actemra and Kevzara as interchangeable with Actemra their...
https://connect.mayoclinic.org/comment/835305/
not PMR) and Kevzara is approved for PMF
I’m (51 yo male) nearly 15 months post SCT for pMF doing well except liver enzymes...
https://connect.mayoclinic.org/comment/1646005/
male) nearly 15 months post SCT for pMF
Do you know if there are other places to procure donors...other databases they can search, even...
https://connect.mayoclinic.org/comment/894434/
myself, that must be the blueprint of PMF ... reduce the anemia portion driven by the PMF
Thanks for the helpful info. In July I was diagnosed with PMF. When I asked my...
https://connect.mayoclinic.org/comment/970564/
In July I was diagnosed with PMF.
Hi, I was diagnosed with PMF CALR + Int. 2 back in March 2021. It took...
https://connect.mayoclinic.org/comment/1045170/
Hi, I was diagnosed with PMF CALR + ... well as a bone marrow biopsy once PMF
I have been taking daily 600mgs of HU for 6 yrs (Droxia formulation). When I started...
https://connect.mayoclinic.org/comment/1168197/
I'm 77, PMF, JAK2+, with elevated
I didn't like varying my HU dosage from 500mgs to 1000mgs from day to day; I...
https://connect.mayoclinic.org/comment/1148733/
I'm 77, PMF, JAK2+, and have not
I felt the same when I was diagnosed with PMF in July. I'm 76 so age...
https://connect.mayoclinic.org/comment/988097/
the same when I was diagnosed with PMF
I was diagnosed with PMF. My family doctor noted an abnormally high platelet count in Dec...
https://connect.mayoclinic.org/comment/1529795/
I was diagnosed with PMF.
Hello, @lmkmom I’ve been reading through a couple of your previous posts to see that you’ve...
https://connect.mayoclinic.org/comment/1320465/
diagnosed with myelofibrosis (MF or PMF
Thank you. I will be 69 years old next month and was diagnosed with PMF in...
https://connect.mayoclinic.org/comment/1266990/
next month and was diagnosed with PMF
Hi @cbernhart1 , I agree. I had a bone marrow biopsy after asking for one from...
https://connect.mayoclinic.org/comment/1644231/
biopsy and then changed my diagnosis to PMF
Hi nohrt4me, Just today, I received my bone marrow results in just nine days and message...
https://connect.mayoclinic.org/comment/1234098/
O/H that now she thinks I may have PMF
Hi nohrt4me, Thanks for posting. Yes, there are concerns still with only CALR mutation too I...
https://connect.mayoclinic.org/comment/1225391/
I am still concerned about PMF and how
Hi, I know this is an old thread but I had not found it until today!...
https://connect.mayoclinic.org/comment/1363614/
that exists in diagnosis of ET and PMF ... and then she changed my diagnosis to PMF
Hi @hughp, I know it is not fun being told we have myelofibrosis. I went for...
https://connect.mayoclinic.org/comment/1631752/
January 2025 which she changed to PMF
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