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165 total results

Comments (142)

Just a wild comment about what worked for me. I have muscular dystrophy and instead of...

https://connect.mayoclinic.org/comment/1301777/

I have muscular dystrophy and instead

Discussion: My legs collapsing underneath me without warning since I’ve been on ga

Support Group: Neuropathy

Posted: May 11 11:19am

Hello. I have Bronchiectasis, diaphragm paresis , with FSH muscular dystrophy. Mac degeneration severe in rt...

https://connect.mayoclinic.org/comment/770277/

Bronchiectasis, diaphragm paresis , with FSH muscular ... dystrophy.

Discussion: 7% and excessive phlegm

Support Group: MAC & Bronchiectasis

Posted: Nov 7, 2022

@ske22 Looks very much like my Gelsolin (AKA Finnish Amyloidosis) and/or Fukatin Limb Girdle Muscular Dystrophy.....

https://connect.mayoclinic.org/comment/337577/

Amyloidosis) and/or Fukatin Limb Girdle Muscular ... Dystrophy..

Discussion: What are these patches??

Support Group: Autoimmune Diseases

Posted: Mar 24, 2021

I have been on Prolea for a couple of years now and it’s improved my bones...

https://connect.mayoclinic.org/comment/1342214/

I have RA and patio, and adult muscular ... dystrophy (78).

Discussion: Anyone with autoimmune problems taking Prolia for osteoporosis?

Support Group: Autoimmune Diseases

Posted: Jul 6 10:40am

This is how I feel as well "As I have some other health issues, I'm never...

https://connect.mayoclinic.org/comment/620165/

Also Mytonic Muscular Dystrophy II -

Discussion: Dementia and Not Eating: Very concerned

Support Group: Caregivers: Dementia

Posted: Jul 26, 2021

Thankyou so much! I am going to get a lip biopsy and I will ask about...

https://connect.mayoclinic.org/comment/1250279/

I thought I had Muscular Dystrophy,

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Mar 4 11:21am

I have CHF, nearly a lifelong diagnosis. My ejection fraction ranges from 40-65, depending on some...

https://connect.mayoclinic.org/comment/314985/

Gelsolin, RyR2, and Fukutin Limb Girdle Muscular ... Dystrophy.

Discussion: Dizziness and chest pain associated with HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 26, 2020

Thank you for these! I too have RA and muscle wasting from that , steroids (...

https://connect.mayoclinic.org/comment/1280639/

steroids ( can’t get off) and late onset muscular ... dystrophy.

Discussion: Autoimmune Muscle Atrophy Myositis coupled with Rheumatoid Arthiritis

Support Group: Autoimmune Diseases

Posted: Apr 13 8:41am

@jwillits8 I just received my International Lim Girdle Muscular Dystrophy Conference blurb fro the SPEAK Foundation....

https://connect.mayoclinic.org/comment/635747/

received my International Lim Girdle Muscular ... Dystrophy Conference blurb fro the

Discussion: Autonomic nervous system malfunction: 2 yrs, yet no diagnosis or help

Support Group: Stroke & Cerebrovascular Diseases

Posted: Sep 15, 2021

I have the same issue with both left and right scapula and have ping-ponged from orthopedists...

https://connect.mayoclinic.org/comment/1127160/

neurologist is testing for Limb Girdle Muscular ... Dystrophy because the muscle wasting

Discussion: Scapular Instability

Support Group: Bones, Joints & Muscles

Posted: Aug 20, 2024

Responding to @jchnbishop. Three of the four rheumatologists were at the University of Michigan Hospital system....

https://connect.mayoclinic.org/comment/772228/

I have also been to U of M muscular ... dystrophy clinic.

Discussion: Do I really have PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 11, 2022

Hello Mbessie and Others, I have not had the surgery. My orthopedic surgeon believes there is...

https://connect.mayoclinic.org/comment/1367923/

happening with me - Parkinson's, or Muscular ... dystrophy, or Camptocormia.

Discussion: T10 to Pelvis Fusion. Experience, Comments Appreciated

Support Group: Spine Health

Posted: Aug 10 5:43pm

@gailfaith You sound like a delightful 81 year old! I'm sure your doctor and his staff...

https://connect.mayoclinic.org/comment/90456/

You mentioned having a rare form of Muscular ... Dystrophy.

Discussion: Treating Osteoporosis: What works for you?

Support Group: Osteoporosis & Bone Health

Posted: Jul 4, 2017

I am a 73 year old woman looking for someone with similar issues: Limb-girdle Muscular Dystrophy...

https://connect.mayoclinic.org/comment/970195/

someone with similar issues: Limb-girdle Muscular ... Dystrophy withcardiopathy(38 years)

Discussion: Constant nausea and vomiting

Support Group: Digestive Health

Posted: Nov 25, 2023

Definitely get diagnosis! For pain and lack of energy etc - could be loads of things....

https://connect.mayoclinic.org/comment/1334134/

found out I also have undiagnosed muscular ... dystrophy!

Discussion: Many questions about knee pain, shots, NSAID use, & scoliosis

Support Group: Bones, Joints & Muscles

Posted: Jun 24 11:04am

As you might remember, I have Cancer>MM>Amyloidosis>Gelsolin, among other things. As you know, Gelsolin is a...

https://connect.mayoclinic.org/comment/621871/

of other genetic issues, including Muscular ... Dystrophy>Limb Girdle>Fktn and

Discussion: Want to help Mayo Clinic improve our Multiple Myeloma website?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2021

My ANA is elevated. Not terribly high, but enough to be a little+- worrisome. Most of...

https://connect.mayoclinic.org/comment/615434/

targets are congenital limb girdle muscular ... dystrophy, etc.

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: Jul 10, 2021

@tn2025nash Welcome to Mayo Connect. With your complex list of symptoms, I think you might want...

https://connect.mayoclinic.org/comment/1199603/

www.mayoclinic.org/diseases-conditions/muscular-dystrophy

Discussion: Advice on Limb-Girdle MD, Cardiac, Respiratory, & Distress

Support Group: Bones, Joints & Muscles

Posted: Dec 29, 2024

@judithmol Just a little reminder. Some AI diseases are Primary, Systemic, Hereditary, and mutate rapidly. One...

https://connect.mayoclinic.org/comment/312750/

with a simple Fukuyama Limb Girdle Muscular ... Dystrophy, and now know I am dealing ... it is basically a skin disease, or muscular ... dystrophy, or even mumps.

Discussion: Sjogren's, Hashimoto's and Thyroid Dysfunction: Got questions

Support Group: Autoimmune Diseases

Posted: Jun 14, 2020

78 now RA and step. For 39 years - low dose prednisone every day / now...

https://connect.mayoclinic.org/comment/1284766/

recently diagnosed with late onset muscular ... dystrophy ( one dominate gene mutation

Discussion: Autoimmune Muscle Atrophy Myositis coupled with Rheumatoid Arthiritis

Support Group: Autoimmune Diseases

Posted: Apr 18 1:08pm