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159 total results

Comments (135)

Hello. I have Bronchiectasis, diaphragm paresis , with FSH muscular dystrophy. Mac degeneration severe in rt...

https://connect.mayoclinic.org/comment/770277/

Bronchiectasis, diaphragm paresis , with FSH muscular ... dystrophy.

Discussion: 7% and excessive phlegm

Support Group: MAC & Bronchiectasis

Posted: Nov 7, 2022

@ske22 Looks very much like my Gelsolin (AKA Finnish Amyloidosis) and/or Fukatin Limb Girdle Muscular Dystrophy.....

https://connect.mayoclinic.org/comment/337577/

Amyloidosis) and/or Fukatin Limb Girdle Muscular ... Dystrophy..

Discussion: What are these patches??

Support Group: Autoimmune Diseases

Posted: Mar 24, 2021

This is how I feel as well "As I have some other health issues, I'm never...

https://connect.mayoclinic.org/comment/620165/

Also Mytonic Muscular Dystrophy II -

Discussion: Dementia and Not Eating: Very concerned

Support Group: Caregivers: Dementia

Posted: Jul 26, 2021

Thankyou so much! I am going to get a lip biopsy and I will ask about...

https://connect.mayoclinic.org/comment/1250279/

I thought I had Muscular Dystrophy,

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Mar 4 11:21am

I have CHF, nearly a lifelong diagnosis. My ejection fraction ranges from 40-65, depending on some...

https://connect.mayoclinic.org/comment/314985/

Gelsolin, RyR2, and Fukutin Limb Girdle Muscular ... Dystrophy.

Discussion: Dizziness and chest pain associated with HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 26, 2020

Thank you for these! I too have RA and muscle wasting from that , steroids (...

https://connect.mayoclinic.org/comment/1280639/

steroids ( can’t get off) and late onset muscular ... dystrophy.

Discussion: Autoimmune Muscle Atrophy Myositis coupled with Rheumatoid Arthiritis

Support Group: Autoimmune Diseases

Posted: Apr 13 8:41am

@jwillits8 I just received my International Lim Girdle Muscular Dystrophy Conference blurb fro the SPEAK Foundation....

https://connect.mayoclinic.org/comment/635747/

received my International Lim Girdle Muscular ... Dystrophy Conference blurb fro the

Discussion: Autonomic nervous system malfunction: 2 yrs, yet no diagnosis or help

Support Group: Stroke & Cerebrovascular Diseases

Posted: Sep 15, 2021

I have the same issue with both left and right scapula and have ping-ponged from orthopedists...

https://connect.mayoclinic.org/comment/1127160/

neurologist is testing for Limb Girdle Muscular ... Dystrophy because the muscle wasting

Discussion: Scapular Instability

Support Group: Bones, Joints & Muscles

Posted: Aug 20, 2024

Definitely get diagnosis! For pain and lack of energy etc - could be loads of things....

https://connect.mayoclinic.org/comment/1334134/

found out I also have undiagnosed muscular ... dystrophy!

Discussion: Many questions about knee pain, shots, NSAID use, & scoliosis

Support Group: Bones, Joints & Muscles

Posted: Jun 24 11:04am

Responding to @jchnbishop. Three of the four rheumatologists were at the University of Michigan Hospital system....

https://connect.mayoclinic.org/comment/772228/

I have also been to U of M muscular ... dystrophy clinic.

Discussion: Do I really have PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 11, 2022

@gailfaith You sound like a delightful 81 year old! I'm sure your doctor and his staff...

https://connect.mayoclinic.org/comment/90456/

You mentioned having a rare form of Muscular ... Dystrophy.

Discussion: Treating Osteoporosis: What works for you?

Support Group: Osteoporosis & Bone Health

Posted: Jul 4, 2017

As you might remember, I have Cancer>MM>Amyloidosis>Gelsolin, among other things. As you know, Gelsolin is a...

https://connect.mayoclinic.org/comment/621871/

of other genetic issues, including Muscular ... Dystrophy>Limb Girdle>Fktn and

Discussion: Want to help Mayo Clinic improve our Multiple Myeloma website?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2021

My ANA is elevated. Not terribly high, but enough to be a little+- worrisome. Most of...

https://connect.mayoclinic.org/comment/615434/

targets are congenital limb girdle muscular ... dystrophy, etc.

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: Jul 10, 2021

78 now RA and step. For 39 years - low dose prednisone every day / now...

https://connect.mayoclinic.org/comment/1284766/

recently diagnosed with late onset muscular ... dystrophy ( one dominate gene mutation

Discussion: Autoimmune Muscle Atrophy Myositis coupled with Rheumatoid Arthiritis

Support Group: Autoimmune Diseases

Posted: Apr 18 1:08pm

@tn2025nash Welcome to Mayo Connect. With your complex list of symptoms, I think you might want...

https://connect.mayoclinic.org/comment/1199603/

www.mayoclinic.org/diseases-conditions/muscular-dystrophy

Discussion: Advice on Limb-Girdle MD, Cardiac, Respiratory, & Distress

Support Group: Bones, Joints & Muscles

Posted: Dec 29, 2024

@judithmol Just a little reminder. Some AI diseases are Primary, Systemic, Hereditary, and mutate rapidly. One...

https://connect.mayoclinic.org/comment/312750/

with a simple Fukuyama Limb Girdle Muscular ... Dystrophy, and now know I am dealing ... it is basically a skin disease, or muscular ... dystrophy, or even mumps.

Discussion: Sjogren's, Hashimoto's and Thyroid Dysfunction: Got questions

Support Group: Autoimmune Diseases

Posted: Jun 14, 2020

OMG! What a bummer to find out you have another serious condition out of the blue...

https://connect.mayoclinic.org/comment/1334493/

#39;m sorry you have to do deal with muscular ... dystrophy as well as RA, and to be

Discussion: Many questions about knee pain, shots, NSAID use, & scoliosis

Support Group: Bones, Joints & Muscles

Posted: Jun 24 6:56pm

Hello: Hope you are doing well. My condition is similar. I have myotonic dystrophy type 2(genetically...

https://connect.mayoclinic.org/comment/603824/

fall into the muscular dystrophy umbrella ... Have you checked into the MDA (muscular ... dystrophy association) clinic at Mayo ... specialists in different types of muscular ... dystrophy.

Discussion: Myotonia Congenita

Support Group: Neuropathy

Posted: May 22, 2021

I am 80, male. I have the same issue, plus heavy bleeding from the penis. The...

https://connect.mayoclinic.org/comment/265525/

by Gelsolin and Fukutin Limb Girdle Muscular ... Dystrophy.

Discussion: Bowel incontinence

Support Group: Digestive Health

Posted: Mar 2, 2021

@indianascott, I have a form of cerebral angiopathy sometimes called "disappearing White Matter". It is diagnosed...

https://connect.mayoclinic.org/comment/336454/

diagnosed with FKTN (Fukutin Limb Girdle Muscular ... Dystrophy- LGGMD-4) who has been tested

Discussion: Causes of cerebral amyloid angiopathy

Support Group: Stroke & Cerebrovascular Diseases

Posted: Mar 3, 2021