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581 total results
Comments (561)
@caroljeand -- I really appreciate your response to my inquiry. Your sense that my treatment should...
Your sense that my treatment should ... be addressing GCA/PMR is reassuring ... I'll keep pursuing treatments for ... perspective of fellow travelers on the GCA
Posted: Mar 4 2:13pm
Your experience was similar to mine, except it sounds like I had worse problems at the...
for about 7 months, and then PMR and GCA ... The GCA symptoms were low grade fever ... any symptoms or flares of the PMR or GCA ... I know that my PMR and GCA have been ... well controlled by basically the same treatment
Posted: Mar 3 6:49pm
@dougrout I think the vascular surgeon is right. After starting Prednisone it is hard to interpret...
that it isn't a "targeted treatment ... your symptoms sounds consistent with GCA ... www.hopkinsvasculitis.org/vasculitis-treatments
Posted: Mar 8 10:39am
Yes , 3 half months treatment with Pred & 12mths of treatment with Actemera for GCA...
Yes , 3 half months treatment with ... Pred & 12mths of treatment with ... Actemera for GCA & PMR Now 5months ... since stopping pred ) I’m completely treatment
@inga71 I am always very careful when confronting doctors with "facts" I gather off the internet....
the doctor is placing on my personal treatment ... history when making future treatment ... ask to be tested for asymptomatic GCA ... continued "PMR" stubborn and treatment ... Off‑label Tocilizumab, Refractory / GCA-PMR
Discussion: Prednisone
Posted: 1 day ago
@alandy233 I'm sorry you are having such difficult problems with your vision. I was fortunate that...
6 weeks after I was diagnosed with GCA ... does Actemra help preserve vision in gca ... It's used when standard steroid treatment ... shown improvement, particularly if treatment ... at least some of their vision from GCA
Posted: Jan 12 5:41pm
You started on a high dose for someone with PMR! I started at 60 to treat...
I started at 60 to treat GCA and PMR ... appetite in the first few weeks I started treatment
Posted: Feb 21 2:18pm
@chamberlainrebekah5 The use of Rinvoq is catching on quickly. I think doctors are very willing to...
are very willing to try these newer treatments ... options for PMR/GCA. ... wasn't a great option for PMR/GCA ... abbvies-rinvoq-a-surging-new-option-for-gca-treatment ... newer and perhaps "better" treatment
Discussion: Traveling with PMR
Posted: Feb 13 5:02pm
@sjc123 Hi @sjc123: Hmmm...my Rheumatologist did not assure me that GCA would resolve. She said that...
Rheumatologist did not assure me that GCA ... either told or read that I'd be on treatment ... (Dx'd PMR/GCA both July 2024.)
Before I was diagnosed a year and a half ago I had an episode where I...
a few hours they diagnosed me with GCA ... temporal artery biopsy, but started treatment ... for the GCA immediately without waiting ... days later and confirmed that I had GCA ... results of biopsy before starting treatment
@caroljeand Let's hope so! I don't want to stop the celebration but the game isn't over...
Actemra was working for PMR/GCA but ... ways they are supposed to respond to treatment ... For many autoimmune disorders ... treatment ... memo wasn't sent for treating PMR/GCA ... the "only option" for PMR/GCA
Diagnosed with GCA Jan 2025, confirmed with temporal ultrasound at Univ of WA GCA fast-track clinic....
Diagnosed with GCA Jan 2025, confirmed ... temporal ultrasound at Univ of WA GCA ... Once treatment began, my CRP and ESR ... CRP and ESR are so low because the treatment ... that if there is a flare while on the treatment