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612 total results
Comments (592)
@jcl75 I am sorry you have had this issue as a result of Reclast. Each time...
time we are willing to accept new treatment ... I am 2 months into my GCA diagnosis, ... Yet the treatment worked for which I
Support Group: Autoimmune Diseases
Posted: May 12 5:28am
@kittykelly1234 I was given the scorched earth treatment of 3 consecutive days of 1000mg solumedrol (prednisone)...
kittykelly1234 I was given the scorched earth treatment ... diabetes from the massive prednisone treatment ... it wasn’t high enough to handle the GCA
Posted: Mar 31 7:58pm
I struggled for 6+ years with PMR before asymptomatic GCA was Dx recently. I would think...
years with PMR before asymptomatic GCA ... autoimmune problems that need other treatments ... center, is one of 2 drugs approved for GCA ... need to talk with your rheumy but GCA ... Always check the posting date since PMR/GCA
Posted: Apr 15 5:02am
@4missvct Your comment is just what I needed to read! After almost 2 weeks in Mayo,...
Your comment about how your GCA manifests ... started for me before diagnosis & treatment
Support Group: Autoimmune Diseases
Posted: May 2 3:21am
@inga71 I am always very careful when confronting doctors with "facts" I gather off the internet....
the doctor is placing on my personal treatment ... history when making future treatment ... ask to be tested for asymptomatic GCA ... continued "PMR" stubborn and treatment ... Off‑label Tocilizumab, Refractory / GCA-PMR
Discussion: Prednisone
Posted: Mar 21 6:45am
I use MS Copilot as my AI Bestie and this is what it told me when...
“How long do most patients need treatment ... Most patients require 1–2 years of treatment ... Giant Cell Arteritis (GCA) Screening ... have any signs that concern you for GCA ... PMR and GCA overlap in a significant
GCA PLUS SECOND TYPE OF VASCULITIS Ten months with GCA; currently taking 40mg Prednisone; when to...
GCA PLUS SECOND TYPE OF VASCULITIS ... Ten months with GCA; currently taking ... If it is vasculitis and treatment is ... similar 2nd type of vasculitis and what treatment
Posted: Apr 25 9:31am
Last September I got C-diff & ecoli. Loads of fun! I w as treated with powerful...
autoimmune firestorm (I have Lupus & GCA ... only with antibiotics again but after treatment
Support Group: Infectious Diseases
Posted: May 6 9:42am
@lashley7 I understand you not wanting to live with the possible side effects of steroids. But...
could mean your disease has moved to GCA ... GCA is an inflammation of the lining ... The same thing happens when you have GCA ... Headaches are dangerous with GCA. ... First, if you are not happy with the treatment
At the time, Actemra (tocilizumab) was FDA approved for GCA but not PMR. My rheumatologist wanted...
(tocilizumab) was FDA approved for GCA ... #39;t usually pay for experimental treatments ... Also, if the treatment causes harm to ... required to give justification if their treatment ... patients now have an FDA-approved treatment
That’s understandable. Apologies for the delayed reply. I agree it’s frustrating treatment options are limited seemingly...
I agree it’s frustrating treatment options ... don’t have an established “go to” treatment ... there’s still the risk of developing GCA ... Forgoing treatment was absolutely not
Posted: Apr 17, 2024