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801 total results
Comments (734)
@brad830, sorry to hear of your most recent diagnosis. If you are comfortable sharing, has it...
been shared with you which type of amyloidosis ... quite a few discussions dedicated to amyloidosis ... /connect.mayoclinic.org/discussion/amylodosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis-maybe
Support Group: Chronic Pain
Posted: Jan 9, 2024
Being a WM patient and knowing other WM and Amyloidosis patients, I concur with Colleen that...
WM patient and knowing other WM and Amyloidosis ... specialist who specializes in both WM and Amyloidosis ... Clinic, specializes in both WM and Amyloidosis
Hi @newtosohcm, here is a link to amyloidosis - https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178. If you have a chance to...
Hi @newtosohcm, here is a link to amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... through that, you may learn that "amyloidosis ... system and digestive tract." Amyloidosis ... comfortable sharing, were you diagnosed with amyloidosis
Posted: Oct 11, 2023
@azlatina, Please accept my Welcome to Mayo Connect. I could not open that link about Amyloidosis...
I could not open that link about Amyloidosis ... even though I have no experience with Amyloidosis ... Here is the link to information about Amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... newsnetwork.mayoclinic.org/discussion/what-is-amyloidosis-and
Posted: Jul 30, 2022
Thank you for sharing this, @oldkarl. This may sound naive, but with all your incredible research...
with all your incredible research on Amyloidosis ... 'open' studies, with respect to AL amyloidosis ... hereditary transthyretin-mediated amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Lab" which focuses on light chain amyloidosis
@gala75, @oldkarl, @cgarcia56 and others. I thought you might find the following upcoming webinar interesting and...
Hereditary ATTR (hATTR) amyloidosis ... In hATTR amyloidosis, the TTR gene change ... As a hereditary disease, hATTR amyloidosis ... If one parent has hATTR amyloidosis, ... mean that they will develop hATTR amyloidosis
Support Group: Autoimmune Diseases
Posted: Oct 4, 2024
Welcome to Connect, @bensondexter I'm confident that you will get response about Keppra from members sharing...
know that members are talking about amyloidosis ... blood-cancers-disorders/ - Current diagnosis is Amyloidosis ... what-a-shocker/ - Diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... seizures a recent development related to amyloidosis
Support Group: Epilepsy & Seizures
Posted: Jul 4, 2018
Hi - My HOCM doc is at Johns Hopkins which is a COE. I was tested...
I was tested for amyloidosis early on ... would have referred me to their "amyloidosis ... treatment is very different for HOCM and amyloidosis
Posted: Apr 16 9:52am
Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...
That is how my AL Amyloidosis was diagnosed ... There are other discussions about AL Amyloidosis ... find them by doing a search of "Amyloidosis
Posted: Mar 12, 2023
@lily2013 Hi Again, Lily. I have just done some study on your facial swelling, and I...
some say it is a primary systemic amyloidosis ... "Localized Cutaneous Amyloidosis. ... therapy will depend on the form of amyloidosis ... There is a lot more on this on "Amyloidosis ... It is a "Lichen Amyloidosis", while
Support Group: Autoimmune Diseases
Posted: Jan 23, 2018
Hi @nick0820, I want to add my welcome. You may be interested in this video by...
Grogan is a leading specialist in amyloidosis ... + Video Q&A about Amyloidosis ... https://connect.mayoclinic.org/webinar/amyloidosis-what-patients-need-to-know
Posted: Jun 23, 2019
Welcome to Connect @sseats. Since Amyloidosis can affect multiple areas/organs in the body getting the right...
Since Amyloidosis can affect multiple ... Do you know which type of Amyloidosis ... in the forum with members who have Amyloidosis ... a little informative article about amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis