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Comments (10,000+)

Hi all, just wanted to bring up having 1 CF gene with MAC]MAI, it was bought...

https://connect.mayoclinic.org/comment/66870/

all, just wanted to bring up having 1 ... getting MAI and returned positive for 1

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jun 12, 2020

I sympathize with you. Have had two heart attacks and have autoimmune disorders. After the heart...

https://connect.mayoclinic.org/comment/293315/

Now I can do a brisk 30 minutes (1 1

Discussion: Let’s Go Walking! Join me for a virtual walking support group

Support Group: Just Want to Talk

Posted: Mar 15, 2020

Thanks for checking in. Radiation to start next week-completed the simulation yesterday. Biomarkers were KRASg12c and...

https://connect.mayoclinic.org/comment/1272810/

and an immunotherapy TBD pending PDL-1 ... results The PDL-1 when I was diagnosed

Discussion: Multifocal Adenocarcinoma of the lung, continual recurrences

Support Group: Lung Cancer

Posted: Apr 2 5:05pm

Started Orgovyx last October 2024. PSA is down from 5.5 to .1 after 6 months months....

https://connect.mayoclinic.org/comment/1309827/

PSA is down from 5.5 to .1 after 6 months ... I will go for lab work after 1 month

Discussion: Abiraterone alone for HT ADT therapy for PC

Support Group: Prostate Cancer

Posted: May 21 5:59pm

Welcome @meq, I'm happy to see that you have connected with @sakota. You are right about...

https://connect.mayoclinic.org/comment/841916/

I posted a link to the Alpha-1 Foundation ... #39;t already seen it. --- Alpha-1 ... Foundation: https://www.alpha1.org/

Discussion: Alpha-1 Antitrypsin Deficiency: Is it considered autoimmune?

Support Group: Autoimmune Diseases

Posted: Apr 12, 2023

I had so much trouble immediately after the Nissen... what was supposed to be 1 or...

https://connect.mayoclinic.org/comment/51326/

Nissen... what was supposed to be 1 ... My Mayo MN doctor told me 1 of every

Discussion: Gastroparesis with severe symptoms!

Support Group: Digestive Health

Posted: Sep 19, 2019

Portable Oxygen Concentrator , I pick flights that have electrical power at each seat so I...

https://connect.mayoclinic.org/comment/267071/

#39;s make you carry batteries for 1 ... 1/2 the total fight time.

Discussion: Flying with lung disease

Support Group: Lung Health

Posted: Jun 25, 2019

Thanks for the report. I don't have the procedure until mid May but will probably pick...

https://connect.mayoclinic.org/comment/1289206/

less liquid and it is split dose so 1/ ... 2 evening before and 1/2 in the morning

Discussion: Colonoscopy and Endoscopy: Preparation

Support Group: Digestive Health

Posted: Apr 24 7:37pm

Was on Flecainide (& Eliquis) for many years. My doctor preferred Rythmol but it didn’t work...

https://connect.mayoclinic.org/comment/1236075/

It worked for 2 1/2 years, then I changed ... I’ve been off Amiodarone for 1 month

Discussion: Talk about flecainide

Support Group: Heart Rhythm Conditions

Posted: Feb 13 1:14pm

@sears It took me years but I was on low dosage 1 mg then cut pill...

https://connect.mayoclinic.org/comment/784403/

took me years but I was on low dosage 1 ... Still have sleep issues but use 1-3

Discussion: Has anybody successfully tapered off of lorazepam (Ativan)?

Support Group: Depression & Anxiety

Posted: Dec 13, 2022

Hi Ava, yes this is very difficult. I am sorry for you. I have had a...

https://connect.mayoclinic.org/comment/1174419/

Have to lay down for 1/2 hour so I can ... get up for 1/2 hour.

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Nov 16, 2024

Well I must be an outlier ...I will admit that a took a Xanax 1/2 before...

https://connect.mayoclinic.org/comment/1201238/

..I will admit that a took a Xanax 1/ ... I only took 1 mg.

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

@moonboy this kind of support with insulin, glucagon and glucose may have been easier for you...

https://connect.mayoclinic.org/comment/1168098/

easier for you than a person with type 1 ... the scariest places to be with type 1

Discussion: What is it like to die with an aortic Aneurysm?

Support Group: Aortic Aneurysms

Posted: Nov 4, 2024

@nancyjac, Yes! Non-smoking carriers of one Alpha-1 gene can and do get serious lung disease. I...

https://connect.mayoclinic.org/comment/212879/

Non-smoking carriers of one Alpha-1 ... understand the full extent of Alpha-1.

Discussion: Alpha-1 Antitrypsin Deficiency - just been diagnosed

Support Group: Lung Health

Posted: Aug 23, 2018

@gims: Its always concerning, but you did not say if it is an ascending or descending,...

https://connect.mayoclinic.org/comment/1307299/

comfort in the statistics that only 1 ... the ops are not successful. 99 to 1

Discussion: Any Women facing AAA?

Support Group: Aortic Aneurysms

Posted: May 18 10:04pm

My daughter in law was diagnosed with spindle cell sarcoma 1 year ago. A small cyst...

https://connect.mayoclinic.org/comment/1307536/

diagnosed with spindle cell sarcoma 1 ... We are now at her 1 year follow up. ... yesterday that said, “sclerotic focus 1.8cm

Discussion: Anyone have spindle cell sarcoma?

Support Group: Sarcoma

Posted: May 19 9:07am

At 5 months of doing the slow grind to the bottom on Ogorvyx. The fatigue is...

https://connect.mayoclinic.org/comment/1322822/

Thankfully only 1 grade 1 hot flash

Discussion: Castration Resistance

Support Group: Prostate Cancer

Posted: Jun 8 9:16am

HALFWAY TREATMENT? I saw the hematologist a few days ago. He diagnosed me with "MDS with...

https://connect.mayoclinic.org/comment/1325787/

gave me three treatment options: (1) ... halfway treatment" stronger than (1)

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 12 2:58pm

I'm 70 years old and I've used Trazodone for the past 15 years. I've had no...

https://connect.mayoclinic.org/comment/1330709/

#39;ve had to increase my dose from 1 ... to slowly taper off my dose back to 1

Discussion: Trazadone use for insomnia for seniors

Support Group: Depression & Anxiety

Posted: Jun 19 2:36pm

The rheumatologist has suggested Evenity due to bad bone density scores and a small fracture on...

https://connect.mayoclinic.org/comment/1073240/

scores and a small fracture on Spine (L-1) ... I am now down to 1-3/4 mg.

Discussion: Osteoporosis or PMR symptoms

Support Group: Osteoporosis & Bone Health

Posted: May 23, 2024