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Alpha-1 Antitrypsin Deficiency: Is it considered autoimmune?

Posted by marty1996 @marty1996, Mar 12, 2020

Is alpha 1 considered an autoimmune disease?

Mentor
John, Volunteer Mentor | @johnbishop | Mar 13, 2020

Hi @marty1996 — According to the Alpha-1 Foundation "Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition – it is passed from parents to their children through their genes. Alpha-1 may result in serious lung disease in adults and/or liver disease at any age."

What is Alpha-1? — https://www.alpha1.org/what-is-alpha1/

Have you been tested for Alpha-1 or do your parents have the genetic condition?

REPLY
marty1996 | @marty1996 | Mar 13, 2020

Yes I was diagnosed about 20 yrs ago. I developed acute enphasizma as result. I received 13yrs of prolastin IV treatments for my alpha 1. My mother passed at age 56 due to complications of liver failure due to alpha 1 as well as other major contributing factors. I'm 54 and I am a mirror image of my mother's health conditions. Thank you for your response much appreciated.

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Mar 13, 2020
In reply to @marty1996 "Yes I was diagnosed about 20 yrs ago. I developed acute enphasizma as result. I received..." + (show)
@marty1996

Yes I was diagnosed about 20 yrs ago. I developed acute enphasizma as result. I received 13yrs of prolastin IV treatments for my alpha 1. My mother passed at age 56 due to complications of liver failure due to alpha 1 as well as other major contributing factors. I'm 54 and I am a mirror image of my mother's health conditions. Thank you for your response much appreciated.

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@marty1996 are you still receiving prolastin IV treatments for alpha 1? I have no experience with Alpha-1. @windwalker , @kimber361, and @merpreb have mentioned Alpha-1 in a post and may have some suggestions for you.

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1 reply
Mentor
Merry, Volunteer Mentor | @merpreb | Mar 13, 2020
In reply to @johnbishop "@marty1996 are you still receiving prolastin IV treatments for alpha 1? I have no experience with..." + (show)
@johnbishop

@marty1996 are you still receiving prolastin IV treatments for alpha 1? I have no experience with Alpha-1. @windwalker , @kimber361, and @merpreb have mentioned Alpha-1 in a post and may have some suggestions for you.

Jump to this post

@johnbishop – I think that @sakota mentioned that she was tested for it. Joan can you help John?

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1 reply
sakota9 (Joan) | @sakota | Mar 13, 2020

Hi, I was diagnosed as a carrier of alpha 1. It is considered an autoimmune disease and it affects your lungs and your liver. I have copd but they say its not connected with alpha one but who knows.

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1 reply
sakota9 (Joan) | @sakota | Mar 13, 2020

Hi Everyone…….. I hope everyone has stocked up on supplies for the virus and are staying away from crowds. Its showing up around in south dakota now and has been one death

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marty1996 | @marty1996 | Mar 13, 2020
In reply to @sakota "Hi, I was diagnosed as a carrier of alpha 1. It is considered an autoimmune disease..." + (show)
@sakota

Hi, I was diagnosed as a carrier of alpha 1. It is considered an autoimmune disease and it affects your lungs and your liver. I have copd but they say its not connected with alpha one but who knows.

Jump to this post

Thank you.

REPLY
marty1996 | @marty1996 | Mar 16, 2020

Thank you all for your comments😉
Is anyone aware if this autoimmune difficiency will further effect other organs as it progresses such as the pancreas and our kidneys. My organs have decided it's time to battle for position😎

REPLY
marty1996 | @marty1996 | Mar 23, 2020
In reply to @merpreb "@johnbishop - I think that @sakota mentioned that she was tested for it. Joan can you..." + (show)
@merpreb

@johnbishop – I think that @sakota mentioned that she was tested for it. Joan can you help John?

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I apologize I have not answered
Well I lived in California which is a wonderful place although when moving to Arkansas I discovered the fresh Air was a tremendous improvement for my lungs and I'm not in need of prolastin treatment at this time.😉I'm doing pretty just a touch of bronchitis from changing weather. Thank you all so much for your sharing.🍀

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