marty1996
@marty1996
@marty1996
Posts: 15
Joined: Mar 09, 2020
Alpha-1 Antitrypsin Deficiency: Is it considered autoimmune?
marty1996
@marty1996
@marty1996
Posts: 15
Joined: Mar 09, 2020
Yes I was diagnosed about 20 yrs ago. I developed acute enphasizma as result. I received 13yrs of prolastin IV treatments for my alpha 1. My mother passed at age 56 due to complications of liver failure due to alpha 1 as well as other major contributing factors. I'm 54 and I am a mirror image of my mother's health conditions. Thank you for your response much appreciated.
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John, Volunteer Mentor
@johnbishop
@johnbishop
Posts: 7085
Joined: Mar 22, 2016
Yes I was diagnosed about 20 yrs ago. I developed acute enphasizma as result. I received 13yrs of prolastin IV treatments for my alpha 1. My mother passed at age 56 due to complications of liver failure due to alpha 1 as well as other major contributing factors. I'm 54 and I am a mirror image of my mother's health conditions. Thank you for your response much appreciated.
@marty1996 are you still receiving prolastin IV treatments for alpha 1? I have no experience with Alpha-1. @windwalker , @kimber361, and @merpreb have mentioned Alpha-1 in a post and may have some suggestions for you.
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Merry, Volunteer Mentor
@merpreb
@merpreb
Posts: 5169
Joined: Feb 07, 2018
@marty1996 are you still receiving prolastin IV treatments for alpha 1? I have no experience with Alpha-1. @windwalker , @kimber361, and @merpreb have mentioned Alpha-1 in a post and may have some suggestions for you.
@johnbishop – I think that @sakota mentioned that she was tested for it. Joan can you help John?
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sakota9 (Joan)
@sakota
@sakota
Posts: 153
Joined: Dec 05, 2018
Hi, I was diagnosed as a carrier of alpha 1. It is considered an autoimmune disease and it affects your lungs and your liver. I have copd but they say its not connected with alpha one but who knows.
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sakota9 (Joan)
@sakota
@sakota
Posts: 153
Joined: Dec 05, 2018
Hi Everyone…….. I hope everyone has stocked up on supplies for the virus and are staying away from crowds. Its showing up around in south dakota now and has been one death
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marty1996
@marty1996
@marty1996
Posts: 15
Joined: Mar 09, 2020
Hi, I was diagnosed as a carrier of alpha 1. It is considered an autoimmune disease and it affects your lungs and your liver. I have copd but they say its not connected with alpha one but who knows.
Thank you.
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marty1996
@marty1996
@marty1996
Posts: 15
Joined: Mar 09, 2020
marty1996
@marty1996
@marty1996
Posts: 15
Joined: Mar 09, 2020
@johnbishop – I think that @sakota mentioned that she was tested for it. Joan can you help John?
I apologize I have not answered
Well I lived in California which is a wonderful place although when moving to Arkansas I discovered the fresh Air was a tremendous improvement for my lungs and I'm not in need of prolastin treatment at this time.😉I'm doing pretty just a touch of bronchitis from changing weather. Thank you all so much for your sharing.🍀
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@johnbishop
Hi @marty1996 — According to the Alpha-1 Foundation "Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition – it is passed from parents to their children through their genes. Alpha-1 may result in serious lung disease in adults and/or liver disease at any age."
What is Alpha-1? — https://www.alpha1.org/what-is-alpha1/
Have you been tested for Alpha-1 or do your parents have the genetic condition?