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1,042 total results
Comments (925)
Hi to all here and thank you for the opportunity to share my story. I was...
I was diagnosed with Systemic Lupus ... It took years to diagnose my Lupus and ... I would like to discuss this further
Support Group: Brain & Nervous System
Posted: Jan 30, 2024
Your symptoms and labs are certainly consistent with an autoimmune disease. Inflammatory markers and an ANA...
Inflammatory markers and an ANA that high would ... suggest possible lupus, especially ... have to have positive antiDSdna for a lupus ... I would not focus on the HLA B27 unless ... muscle inflammation) can accompany lupus
Support Group: Autoimmune Diseases
Posted: Jan 24, 2024
Hi John, I am so glad to hear back from you and a big thanks to...
have any sources or info on CEL I would ... My journey in a nutshell: I have lupus ... At that time we were hoping it would
Lupus and RA are auto-immune diseases so it seems like an immunologist would understand it best....
Lupus and RA are auto-immune diseases ... so it seems like an immunologist would ... If it were me I would search the Mayo
Support Group: Visiting Mayo Clinic
Posted: Jan 12, 2024
My story is so very long. I am getting counseling so I would like to think...
I am getting counseling so I would like ... mistakes I make writing I have SLE (Lupus ... on cry, he would just keep on and on ... But he would do this in front on my ... After I started to cry he would call
Support Group: Women's Health
Posted: Dec 28, 2023
thecyborgenchi, Bless you sweet lady. I understand. You have not mentioned fibromyalgia. Has that been mentioned...
and then do bloodwork to rule out Lupus ... difficult to get a diagnosis for Systemic Lupus ... from my Rheumatologist for borderline Lupus ... D3 can cause pain and fatigue and I would
Support Group: Autoimmune Diseases
Posted: Dec 8, 2023
Whew. Ok, so... I am doing everything I can to keep my sanity (not the word...
Doc told me it would take about 2 weeks ... Last week, I decided to look into Lupus ... I am 95% sure that I have Lupus. ... be made, actions could be taken, and ... I could maybe have a better quality
Support Group: Autoimmune Diseases
Posted: Dec 7, 2023
I appreciate your post! I was just diagnosed correctly and started Plaquanil & Breztri 3 months...
Sometimes a nurse would ask if I was ... Neither of them could understand why ... wasn't at least misdiagnosed with lupus
Support Group: Autoimmune Diseases
Posted: Nov 5, 2023
Here are some ideas for understanding and treating Raynauds: Raynauds is associated with several autoimmune diseases....
They are triggered by cold and stress ... or mittens anytime you’re handling cold ... ice and always outside when weather cold ... for years associated with systemic lupus
@logsohio I just came into this conversation...how is your husband feeling now? I knew back in...
I could actually date medical issues ... I currently have lupus and leukemia. ... later I was diagnosed with systemic lupus ... restarted leukemia meds and started lupus ... Right now I am starting my second lupus
Posted: Oct 14, 2023
Hi there..... Thankyou so much for this comment. I am positive for this to which my...
explained is the marker for the Gene for Lupus ... my grandma had lupus, i have every single ... I would love to learn from your experience
Support Group: Autoimmune Diseases
Posted: Sep 26, 2023
Oh my goodness, @jerrysgirl3, you’re dealing with so much right now. I’m such a hugger and...
I’m such a hugger and wish I could reach ... But with your bowel history issues, lupus ... and the CLL it would be best to check
Posted: Sep 10, 2023
@dreamjean1958 did your doc say why you cannot do Forteo again or Tymlos? You have to...
I have lupus and had cancer and my doc ... I would make an appointment with Keith ... But I would want to make sure. ... I had heard you could do Evenity after
Posted: Aug 3, 2023
@amykcpa 1:320 is not that high and people walk around perfectly healthy with a positive ANA....
If the RNP was positive you could have ... I have had lupus for 20 years and now ... I would not assume you are going to ... become sick and would continue your
Support Group: Autoimmune Diseases
Posted: Aug 2, 2023
Did you know that the NIH and many other institutions started trialing PAXLOVID on Jan. 23rd,...
viruses in patients...HIV, herpes, lupus ... I would love to drive, think, eat, ... dismissively and inappropriately because I couldn