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468 total results
Comments (398)
Doctors, PLEASE stop recommending this sport/religious practice/whatever the heck this is to people who actually have...
https://connect.mayoclinic.org/comment/783251/
(Diagnoses: Classical Ehlers-Danlos
She was diagnosed with gastroparesis. However, we think that's just a part of what is going...
https://connect.mayoclinic.org/comment/1041223/
Ehlers Danlos runs in my family, the
Hello, I would love to know where you got cold socks???Please I must find these... I...
https://connect.mayoclinic.org/comment/1094894/
twin brother also has EM.I also have Ehlers
@lisalucier, my mother and one of her sisters were hypermobile and had several unexplained things happening,...
https://connect.mayoclinic.org/comment/1165743/
Polymorphisms in Patients With Hypermobile Ehlers-Danlos
Hi Evie777 - I see the topic of Mast Cell Activation Syndrome (MCAS) has been raised...
https://connect.mayoclinic.org/comment/723329/
this from medical videos through the Ehlers ... another...many health care groups (Ehlers
@rwinney My son has really given Dr Oaklander a run for her money! She’s pretty perplexed...
https://connect.mayoclinic.org/comment/281921/
but wasn’t officially diagnosed with Ehlers
Hello @ginnyodie, I’d like to provide some more information regarding Mayo Clinic’s Pain Rehabilitation Center (PRC)....
https://connect.mayoclinic.org/comment/279436/
there’s a probable cause (diabetes, Ehlers-Danlos
I have had Raynaud Syndrome my entire life since I started ice skating when my toes...
https://connect.mayoclinic.org/comment/778004/
athletic and it turned out that I had Ehlers
I sadly am in your same boat. I have several large sacral Tarlov cysts with the...
https://connect.mayoclinic.org/comment/243345/
I found out I have ehlers-danlos syndrome
Hi there- Have you found your way to the EDS Blog on Connect? https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/ I have...
https://connect.mayoclinic.org/comment/903324/
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
I hope you found your answers by now since this post isn’t from two years ago!...
https://connect.mayoclinic.org/comment/134366/
of mast cell activation syndrome, Ehlers
Hi, I was reading you digest posting and felt compelled to write you. I have what...
https://connect.mayoclinic.org/comment/760086/
They tell me that I have Ehlers-Danlos
In 2012, I had my second spinal surgery which was a 3 level fusion-L3-S1. A few...
https://connect.mayoclinic.org/comment/837974/
#39;t been formally diagnosed with Ehlers
Hi @timtoby , So sorry to hear about your pain and you're feeling like you're not...
https://connect.mayoclinic.org/comment/878380/
great resources in the links, and the Ehlers-Danlos
There are many online resources giving examples of common exercises that help improve hypermobility. The keys...
https://connect.mayoclinic.org/comment/894531/
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Hello @annac3, Welcome to Connect. I’d like to offer some information about genetic conditions that may...
https://connect.mayoclinic.org/comment/277213/
Besides Marfan syndrome, Ehlers-Danlos
Alfred, Have you ever considered that the symptoms could be cause from instability? They did a...
https://connect.mayoclinic.org/comment/1099744/
I am hypermobile (hymobile ehlers danlos
OH MY GOODNESS!!! I have been desperately searching for anything describing the horrible lump in my...
https://connect.mayoclinic.org/comment/837844/
I’m also dx’d with Ehlers Danlos Syndrome
This is a LONG thread and kind of all over the place. I originally came to...
https://connect.mayoclinic.org/comment/1122187/
underlying condition of hypermobile Ehlers-Danlos
I can relate but have found a reg p.t. regimen that works for me. It sounds...
https://connect.mayoclinic.org/comment/725093/
so others know I also suffer with Ehlers
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