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Comments (2,565)

I’ve been taking Evoxac for about 15 yrs for dry mouth caused by sjogrens. I do...

https://connect.mayoclinic.org/comment/879763/

about 15 yrs for dry mouth caused by sjogrens

Discussion: Cevimaline and lung issues

Support Group: Lung Health

Posted: Jun 16, 2023

Did you decide on a course of treatment? I also have Sjogrens and don’t want to...

https://connect.mayoclinic.org/comment/1259731/

I also have Sjogrens and don’t want

Discussion: Has anyone improved bone density without meds?

Support Group: Osteoporosis & Bone Health

Posted: Mar 16, 2025

If you read up EBV causes sjogrens and lupus. I have both. https://pmc.ncbi.nlm.nih.gov/articles/PMC7817975/#:~:text=Chronic%20or%20recurrent%20EBV%20infection,multiple%20sclerosis%20and%20other%20diseases.

https://connect.mayoclinic.org/comment/1205020/

If you read up EBV causes sjogrens and

Discussion: Small Fiber Neuropathy and Epstein-Barr Virus

Support Group: Neuropathy

Posted: Jan 6, 2025

I commend you for your strength and perseverence. I have not been diagnosed with Sjogrens yet...

https://connect.mayoclinic.org/comment/649483/

I have not been diagnosed with Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 29, 2021

https://pubmed.ncbi.nlm.nih.gov/10922951/ I too get mouth sores on Imuran and I am diagnosed with Sjogrens. I think...

https://connect.mayoclinic.org/comment/1023068/

on Imuran and I am diagnosed with Sjogrens

Discussion: Anyone else dealing with painful mouth sores and burning mouth?

Support Group: Autoimmune Diseases

Posted: Feb 26, 2024

Thankyou so much! It does not seem like any Doctors know much about Sjogrens at all....

https://connect.mayoclinic.org/comment/1252090/

seem like any Doctors know much about Sjogrens

Discussion: Sjogren's Question

Support Group: Autoimmune Diseases

Posted: Mar 6, 2025

I suppose Sjogrens must work in some way inside the mouth itself. I haven’t been diagnosed...

https://connect.mayoclinic.org/comment/1489758/

I suppose Sjogrens must work in some

Discussion: Salty tast in my mouth from diagnosed with Sjogren's

Support Group: Autoimmune Diseases

Posted: Jan 24 2:05am

Yes, although I think the Sjogrens may have come first? I was diagnosed with ET in...

https://connect.mayoclinic.org/comment/1495488/

Yes, although I think the Sjogrens may ... Sjogren’s later. ... heard of people with MPNs developing Sjogren

Discussion: Anyone with Essential Thrombocythemia & Sjogrens or autoimmune?

Support Group: Blood Cancers & Disorders

Posted: Feb 1 8:31am

I’m using Restasis twice a day for Sjogrens and at night I apply a warm moist...

https://connect.mayoclinic.org/comment/718713/

I’m using Restasis twice a day for Sjogrens

Discussion: Does anyone think restasis (eye drops) is helpful?

Support Group: Eye Conditions

Posted: Jun 18, 2022

I have Sjogrens and I can hardly open my mouth in the morning due to dryness....

https://connect.mayoclinic.org/comment/912304/

I have Sjogrens and I can hardly open

Discussion: Does Mayo Hospital Phoenix Offer IvIg Infusions?

Support Group: Autoimmune Diseases

Posted: Aug 13, 2023

Can anyone tell me where I can find medical research documents or medical text that connects...

https://connect.mayoclinic.org/comment/111390/

there is a connection to dry mouth / Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Mar 22, 2019

Look up Mary’s Magic Mouthwash in google. It’s a recipe you can show you physician to...

https://connect.mayoclinic.org/comment/793685/

THRUSH, THE PAIN and irritation of Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jan 7, 2023

I see you said she most likely has myeloma, why that? I was diagnosed with smoldering...

https://connect.mayoclinic.org/comment/728958/

Also sjogrens, lip biopsy it's my ... Because sjogrens can rupture the organs

Discussion: Seeking Help for Unknown Medical Issue

Support Group: Autoimmune Diseases

Posted: Jul 20, 2022

Yes I have this. Even long before covid. I have lupus Sjogrens. Fibro nueropathy. They/ drs...

https://connect.mayoclinic.org/comment/978631/

I have lupus Sjogrens. ... They/ drs think it’s from Sjogrens.

Discussion: Difficulty regulating body temperature. Does anyone else have this?

Support Group: Autoimmune Diseases

Posted: Dec 11, 2023

Well, that helps - here is a Support Group that may be a good fit for...

https://connect.mayoclinic.org/comment/931457/

I have Sjogrens and Osteoarthritis ... would-like-to-hear-from-people-with-sjogrens

Discussion: Would like to know people's experience using Fosamax

Support Group: Osteoporosis & Bone Health

Posted: Sep 17, 2023

@eileenb1022 I’m really glad you will be able to see a rheumatologist and get your questions...

https://connect.mayoclinic.org/comment/816306/

included Mayo Clinic’s information on Sjogrens ... www.mayoclinic.org/diseases-conditions/sjogrens-syndrome

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Feb 23, 2023

I was diagnosed with Sjogrens many years ago and was treated with methotrexate. I said was...

https://connect.mayoclinic.org/comment/922588/

I was diagnosed with Sjogrens many years ... attributed to PN are really coming from Sjogrens

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Sep 1, 2023

Here is a list of labs to have run by a rheumatologist. See a neuromuscular neurologist....

https://connect.mayoclinic.org/comment/1244905/

went to an eye doctor diagnosed with Sjogrens ... neuromuscular neurologist and she caught the Sjogrens

Discussion: Invisible illness how do you cope?

Support Group: Autoimmune Diseases

Posted: Feb 24, 2025

@dianedonohue, I appreciate that. I have been evaluated for Sjogrens, RA, Lupus, and Fibromyalgia multiple times...

https://connect.mayoclinic.org/comment/1498266/

I have been evaluated for Sjogrens,

Discussion: Skin that is painful to the touch

Support Group: Fibromyalgia

Posted: Feb 4 6:08pm

Thank you for your post. Much to think about here. We're on our own a bit...

https://connect.mayoclinic.org/comment/906675/

answers and effective treatments for Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 2, 2023