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468 total results

Comments (398)

I can totally relate to your story, as I am going through a very similar situation....

https://connect.mayoclinic.org/comment/1104784/

My cardiologist and I agree I have hEhler ... Ehlers-Danlos Syndrome is a “rare”,

Discussion: ANA positive result/rare patterns

Support Group: Autoimmune Diseases

Posted: Jul 13 8:11am

So much has happened since march ugh. I don't even know where to start. After this...

https://connect.mayoclinic.org/comment/143402/

anything to help me because of my Ehlers-Danlos ... Stupid Ehlers danlos syndrome seems

Discussion: Esophagus issues

Support Group: Digestive Health

Posted: Aug 24, 2017

Hi, everyone. I feel like I have read every single comment and that I know all...

https://connect.mayoclinic.org/comment/723992/

bouts of uncomplicated diverticulitis, Ehlers

Discussion: Problems months after colon resection surgery: What Helps?

Support Group: Colorectal Cancer

Posted: Jul 5, 2022

Boy I am in the same group. I am 74 & it has been a struggle....

https://connect.mayoclinic.org/comment/779495/

wouldn't help me. 1996 diag. with ehlers

Discussion: Many medical issues: How do you manage multiple chronic conditions?

Support Group: Aging Well

Posted: Dec 1, 2022

@krisrwalters You might want to talk more about tamoxifen with your oncologist. For us post-menopause, tamoxifen...

https://connect.mayoclinic.org/comment/1042367/

a case of someone with hypermobile Ehler ... My cousin has Ehlers Danlos and had

Discussion: Low Risk IDC w/ Baseline Multiple Painful Conditions

Support Group: Breast Cancer

Posted: Mar 29 3:14pm

I've done all the work that doctors should have done. I've given them everything they need...

https://connect.mayoclinic.org/comment/217827/

the craniocervical deformities of Ehlers-Danlos

Discussion: Possible Ehlers-Danlos Syndrome with craniocervical instability

Support Group: Bones, Joints & Muscles

Posted: Sep 26, 2018

YES. I am a 53 y/o woman who has always been healthy, athletic and active. I...

https://connect.mayoclinic.org/comment/898229/

although I was diagnosed with POTS and Ehlers

Discussion: Long haul Covid tremors and muscle spasms

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 18, 2023

Good news, folks! Patients like us are welcome in MA, and they do phone visits! We...

https://connect.mayoclinic.org/comment/593487/

connective tissue disorders including: • Ehlers-Danlos

Discussion: Ehlers Danlos Syndrome (EDS) & HSD, calling all types!

Support Group: Bones, Joints & Muscles

Posted: Apr 11, 2021

I had that and immediately had all the toes operated on to have put pins in...

https://connect.mayoclinic.org/comment/778029/

I also have Ehlers DAnlos syndrom…EDSh

Discussion: Foot fat atrophy and hammer toes

Support Group: Bones, Joints & Muscles

Posted: Nov 27, 2022

Hi…..reading through all of these I thought I would give you something else to consider……just what...

https://connect.mayoclinic.org/comment/846348/

of what you convey is my life with Ehlers-Danos

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Apr 20, 2023

Absolutely!…..I have it….Mast Cell ActivationSyndrome. MCAS is everything you described and relentless without intervention. Great doctors...

https://connect.mayoclinic.org/comment/771471/

I also have Ehlers Danlos Hypermobility

Discussion: Food Intolerances

Support Group: Digestive Health

Posted: Nov 10, 2022

Please see a neurologist, for essential tremors which are extremely common. You have to be very...

https://connect.mayoclinic.org/comment/775054/

I also have ehlers-danlos hyper mobility

Discussion: Thyroid? Or something else? Constant internal shakiness

Support Group: Diabetes & Endocrine System

Posted: Nov 19, 2022

I was reading your post assuming you were older and then I got to the point...

https://connect.mayoclinic.org/comment/50058/

#013; Now I am looking into Ehlers-Danlos

Discussion: Undiagnosed Hip Pain

Support Group: Bones, Joints & Muscles

Posted: Aug 26, 2011

I have Ehlers Danlos, hyperadrenergic POTS, cervical instability (CCI) and Chronic Intestinal Pseuo-obstruction. I found your...

https://connect.mayoclinic.org/comment/851560/

I have Ehlers Danlos, hyperadrenergic

Discussion: GI Disorder and Internal Shaking

Support Group: Digestive Health

Posted: Apr 29, 2023

Hello all, I realize it's been years since I posted this or there was last activity...

https://connect.mayoclinic.org/comment/806142/

2019, I was finally diagnosed with Ehlers ... very soon after I was diagnosed with Ehlers ... leak is much more likely to happen in Ehlers

Discussion: Desperately Trying to Get Diagnosed

Support Group: Autoimmune Diseases

Posted: Feb 3, 2023

@mitchgord, you are absolutely correct! My daughter is a homozygous c677t sufferer and so is my...

https://connect.mayoclinic.org/comment/1165545/

between the MTHFR gene and hypermobile Ehlers-Danlos

Discussion: MTHFR mutation and supplements to take

Support Group: Mental Health

Posted: Oct 31 12:07am

Hello! I too am new here. I have serious neck issues and wonder if a cervical...

https://connect.mayoclinic.org/comment/805844/

I have Ehlers Danlos Syndrome and have