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Comments (968)

@shariday, I add my welcome. You'll notice that I moved your message to this existing discussion...

https://connect.mayoclinic.org/comment/605999/

(chronic inflammatory demylinating polyneuropathy

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: May 31, 2021

I’m so sorry that you are going through this. My husband has polyneuropathy. It started years...

https://connect.mayoclinic.org/comment/743885/

My husband has polyneuropathy. ... puncture ruled out MS so they said polyneuropathy ... a prognosis of progression of his polyneuropathy

Discussion: Lost my legs and now both arms to Neuropathy.

Support Group: Neuropathy

Posted: Aug 31, 2022

Hello Barbie @6969, welcome to Mayo Clinic Connect. Thank you for being an advocate for your...

https://connect.mayoclinic.org/comment/156836/

Here is some information on polyneuropathy ... (April 2017) - What to know about polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 22, 2018

Orthopedic surgeon lined up with neuro last week. I had the nerve conduction test, emg &!”...

https://connect.mayoclinic.org/comment/158617/

Diagnosis was progressive polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jun 3, 2020

600-1200 mgs of alpha lipoic acid. Germany has been using it by 1966 by IV for...

https://connect.mayoclinic.org/comment/1053076/

I have severe axonal sensorimotor polyneuropathy

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 18 11:12am

@orion7578 basically, I live with it. I have other things that give me pain like polyneuropathy,...

https://connect.mayoclinic.org/comment/944319/

other things that give me pain like polyneuropathy

Discussion: For the last 3-4 years I’ve had back spasms and pain in my thoracic a.

Support Group: Chronic Pain

Posted: Oct 8, 2023

Wow, only my own voice triggers the resonance echo, So I'm lucky! I do have a...

https://connect.mayoclinic.org/comment/1052415/

I have severe progressive polyneuropathy

Discussion: Hollow echo distortion in ear? Scared

Support Group: Ear, Nose & Throat (ENT)

Posted: Apr 17 10:56am

Hello @athenalee, I wasn't familiar with Tacrolimus but did see that some information supporting Tacrolimus induced...

https://connect.mayoclinic.org/comment/233857/

multifocal demyelinating sensorimotor polyneuropathy ... Tacrolimus-induced encephalopathy and polyneuropathy

Discussion: Neuropathy started during a gout spell

Support Group: Neuropathy

Posted: Feb 14, 2021

I was diagnosed with chronic Sensorimotor Axonal Polyneuropathy three years ago at Weill Cornell. My three...

https://connect.mayoclinic.org/comment/850198/

diagnosed with chronic Sensorimotor Axonal Polyneuropathy ... diagnosed with the Sensorimotor Axonal Polyneuropathy

Discussion: Hopeless and Discouraged, again! Seeking any advice.

Support Group: Neuropathy

Posted: Apr 27, 2023

I got peripheral neuropathy in feet after I had Shingles and PN in my hands after...

https://connect.mayoclinic.org/comment/1166208/

Neurologist confirmed polyneuropathy

Discussion: Shingrix and peripheral neuropathy

Support Group: Neuropathy

Posted: Nov 1 11:50am

This is what I found. On 3/12/21 it qas discontinued in the US. Most Recent Events...

https://connect.mayoclinic.org/comment/638056/

phase IIa trial for Distal sensory polyneuropathy

Discussion: Stage 2 Trials of Pirenzepine for Neuropathy

Support Group: Neuropathy

Posted: Sep 22, 2021

Hello @vradifegari -- I would like to add my welcome to Connect along with @gingerw and...

https://connect.mayoclinic.org/comment/266009/

Chronic Inflammatory Demyelinating Polyneuropathy ... Chronic-Inflammatory-Demyelinating-Polyneuropathy-CIDP-Information-Page

Discussion: Neuropathy and other strange symptoms

Support Group: Neuropathy

Posted: Jun 25, 2019

Hello John: First let me thank you very much for your timely reply and quantity of...

https://connect.mayoclinic.org/comment/219650/

Masquerading as Diabetic Autoimmune Polyneuropathy ... diagnosed with chronic axonal sensorimotor polyneuropathy

Discussion: In Search of Relief

Support Group: Neuropathy

Posted: Oct 12, 2018

I have had a sudden loss of mobility with severe polyneuropathy in my legs, and numbness...

https://connect.mayoclinic.org/comment/631286/

sudden loss of mobility with severe polyneuropathy

Discussion: Can Severe (electric shock-like) Pain be a sign of Regeneration?

Support Group: Neuropathy

Posted: Aug 30, 2021

@patkz Just to get some new info: do you currently have GBS and/or CIDP? What do...

https://connect.mayoclinic.org/comment/1077216/

cidp-chronic-inflammatory-demylinating-polyneuropathy

Discussion: has anyone with GBS or CIDP had joint replacement

Support Group: Autoimmune Diseases

Posted: May 29 12:58pm

Hi Dave, CIDP (chronic inflammatory Demyelinating Polyneuropathy) does effect the peripheral nervous system directly by removing...

https://connect.mayoclinic.org/comment/667627/

chronic inflammatory Demyelinating Polyneuropathy ... Chronic-Inflammatory-Demyelinating-Polyneuropathy-CIDP-Information-Page

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 4, 2022

Quick comment - I have axonal polyneuropathy and when I was at Mayo in MN in...

https://connect.mayoclinic.org/comment/796653/

Quick comment - I have axonal polyneuropathy

Discussion: B-6 vitamin danger!

Support Group: Neuropathy

Posted: Jan 14, 2023

I have SFN and polyneuropathy. My feet and toes cramp so hard that they curl under....

https://connect.mayoclinic.org/comment/764612/

I have SFN and polyneuropathy.

Discussion: Muscle Spams and Neuropathy

Support Group: Neuropathy

Posted: Oct 23, 2022

Hi @jlind it must be relieving to not take any medications at this time. I wanted...

https://connect.mayoclinic.org/comment/156898/

conditions/chronic-idiopathic-axonal-polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 14, 2019

I have polyneuropathy and osteoporosis and I am wondering if anyone who has both these illnesses...

https://connect.mayoclinic.org/comment/323481/

I have polyneuropathy and osteoporosis

Discussion: Reclast Appointment Cancelled Morning of Appointment!

Support Group: Osteoporosis & Bone Health

Posted: Oct 2, 2020