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1,156 total results
Comments (1,069)
I have PV and you bring up an interesting root cause possibility for this disease. I...
I have PV and you bring up an interesting ... thought many times the root cause of my PV ... documented there is no known cause for PV ... excessive radiation is a root cause for PV ... to me..As a practical matter I have PV
Posted: Jul 6, 2024
Hi, I just found this forum, and wanted to tell my story. I was diagnosed with...
I was diagnosed with PV in 2015, and ... various dietary things to make the PV ... My PV seems to be reduced. ... reduced the effects, if not reversed my PV ... sites that say things like "for PV
Posted: Apr 29, 2023
Over the last few years, studies have shown that reducing the allele burden for PV and...
that reducing the allele burden for PV ... The traditional drugs prescribed for PV ... Besremi have been approved (so far for PV
Hi all. In December, I was diagnosed with a JAK2 mutation. Finally had my appointment with...
for the rationale, and was told (a) PV ... emhasizing that the DIAGNOSTIC criteria for PV ... an anemic hematocrit would indicate PV
Posted: Jan 11, 2019
Hi @lavender28 Welcome to Mayo Connect. It helps to know you’re not alone in a diagnosis....
mutated Jak2 gene referred to as Primary PV ... , or secondary PV which is generally ... for chronic shortness of breath with PV ... @itsmepeggysue, and others with PV. ... Another good article about PV: https
Posted: May 12, 2023
Your doctor has pretty much ruled out PV, even with the bone marrow biopsy. Hydroxyurea (HU)...
Your doctor has pretty much ruled out PV ... very beneficial for patients with PV ... follow their gut, and yours is staying PV ... Whether you have PV or not, or if your
In 2000, I had a rare autoimmune disease called Pemphigus Vulgaris. I was given high doses...
gave me side effects but didn’t put PV ... it was helping people like me with PV ... had no side effects from Rituxan and PV
Support Group: Autoimmune Diseases
Posted: Oct 26, 2025
@roughanne Hello. I was diagnosed with JAK2/PV almost 6 years ago. I’m 78 soon. Started on...
I was diagnosed with JAK2/PV almost ... to completely differentiate between PV ... diagnosed I scared myself when I googled PV
Posted: Nov 13, 2025