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1,156 total results
Comments (1,069)
@roughanne I too am starting to have neuropathy in my feet and it happens all day...
https://connect.mayoclinic.org/comment/1459504/
now that I am starting to convert to PV ... Is the neuropathy a symptom of the PV
Good morning I have secondary Mylo fibrosis that was diagnosed in May of this year. I...
https://connect.mayoclinic.org/comment/1432046/
never really had any issues with my PV
I have PV and you bring up an interesting root cause possibility for this disease. I...
https://connect.mayoclinic.org/comment/1100230/
I have PV and you bring up an interesting ... thought many times the root cause of my PV ... documented there is no known cause for PV ... excessive radiation is a root cause for PV ... to me..As a practical matter I have PV
Hi, I just found this forum, and wanted to tell my story. I was diagnosed with...
https://connect.mayoclinic.org/comment/851468/
I was diagnosed with PV in 2015, and ... various dietary things to make the PV ... My PV seems to be reduced. ... reduced the effects, if not reversed my PV ... sites that say things like "for PV
@lindakay55 "And I'm worried that I am near dying." Been there, done that! I felt doomed...
https://connect.mayoclinic.org/comment/1464368/
capsule (yes, it helps not only with PV
I am JAK 2 positive with PV and also take the hydroxyurea and one baby aspirin....
https://connect.mayoclinic.org/comment/1086544/
I am JAK 2 positive with PV and also
Over the last few years, studies have shown that reducing the allele burden for PV and...
https://connect.mayoclinic.org/comment/1222127/
that reducing the allele burden for PV ... The traditional drugs prescribed for PV ... Besremi have been approved (so far for PV
Hi all. In December, I was diagnosed with a JAK2 mutation. Finally had my appointment with...
https://connect.mayoclinic.org/comment/231778/
for the rationale, and was told (a) PV ... emhasizing that the DIAGNOSTIC criteria for PV ... an anemic hematocrit would indicate PV
Try Deep Breathing, Yoga style. It works for me, also cures PV headaches. I won't try...
https://connect.mayoclinic.org/comment/794589/
It works for me, also cures PV headaches
I suffer from neuropathy I believe it came from HAVINg blood illness ! PV too many...
https://connect.mayoclinic.org/comment/1251845/
PV too many RED CELLS !
Gout is listed as a side effect of PV. I’m not sure which blood disease you...
https://connect.mayoclinic.org/comment/1238826/
Gout is listed as a side effect of PV
Hi Sarah, you haven’t posted an update and I was wondering if you’ve had any news...
https://connect.mayoclinic.org/comment/873122/
news regarding your JAK2 test for PV
Hi @lavender28 Welcome to Mayo Connect. It helps to know you’re not alone in a diagnosis....
https://connect.mayoclinic.org/comment/858668/
mutated Jak2 gene referred to as Primary PV ... , or secondary PV which is generally ... for chronic shortness of breath with PV ... @itsmepeggysue, and others with PV. ... Another good article about PV: https
This site is very helpful however you may also like MPN Interterferon Forum. This Facebook site...
https://connect.mayoclinic.org/comment/821268/
thousands of others who also have PV
Does not have to be ET would have been better. I met a person at a...
https://connect.mayoclinic.org/comment/1280415/
conference that lives close by (he has PV
Your doctor has pretty much ruled out PV, even with the bone marrow biopsy. Hydroxyurea (HU)...
https://connect.mayoclinic.org/comment/1197581/
Your doctor has pretty much ruled out PV ... very beneficial for patients with PV ... follow their gut, and yours is staying PV ... Whether you have PV or not, or if your
In 2000, I had a rare autoimmune disease called Pemphigus Vulgaris. I was given high doses...
https://connect.mayoclinic.org/comment/1423593/
gave me side effects but didn’t put PV ... it was helping people like me with PV ... had no side effects from Rituxan and PV
@roughanne Hello. I was diagnosed with JAK2/PV almost 6 years ago. I’m 78 soon. Started on...
https://connect.mayoclinic.org/comment/1437600/
I was diagnosed with JAK2/PV almost ... to completely differentiate between PV ... diagnosed I scared myself when I googled PV
@leene808 I have a very good Hemo/Oncologist/researcher at University of Louisville Hospital. He says that iron...
https://connect.mayoclinic.org/comment/1459997/
supplements are not a good idea for us PV
Finally received the results of my BMB. Polycythemia Vera was confirmed. Additionally, my MGUS has progressed....
https://connect.mayoclinic.org/comment/714838/
question is how common is it to have PV ... assume it is better to focus on the PV
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