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856 total results
Comments (782)
My neuropathy is from a combination of Waldenstroms macrglobinemia, with amyloidosis. It is very rare and...
https://connect.mayoclinic.org/comment/1306369/
Waldenstroms macrglobinemia, with amyloidosis
I was diagnosed with AL Amyloidosis nearly 2 years ago. It was randomly found during a...
https://connect.mayoclinic.org/comment/1114762/
I was diagnosed with AL Amyloidosis ... Mayo is a leader in the treatment of amyloidosis
The ONLY symptom I had that brought me to a doctor was that I had the...
https://connect.mayoclinic.org/comment/88314/
symptoms are for sure related to AL Amyloidosis ... I was diagnosed with AL Amyloidosis
FDA approves polyneuropathy treatment for adults The FDA has approved Amvuttra, an RNA interference therapeutic for...
https://connect.mayoclinic.org/comment/717559/
hereditary transthyretin-mediated amyloidosis ... hereditary transthyretin-mediated (hATTR) amyloidosis ... unmet medical needs, such as hATTR amyloidosis ... the release, 164 patients with hATTR amyloidosis ... making Amvuttra a reality for the hATTR amyloidosis
Hi @pysullivan, welcome to Connect. Here a few previous discussions in the community about Waldenstrom macroglobulinemia...
https://connect.mayoclinic.org/comment/256246/
lymphoma (NHL):
- Waldenstroms and amyloidosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
@edda Just a thought about this. Sounds to me like some sort of slowly progressing disease....
https://connect.mayoclinic.org/comment/72867/
I have LiteChain Amyloidosis, and it ... Amyloidosis starts with a single atom
I was diagnosed with IgG MGUS in 2021 and currently have blood tests for CBC PLT...
https://connect.mayoclinic.org/comment/770884/
had abdominal fat pad to rule out Amyloidosis
@12061948 Actually not particularly. Mine is related to my form of Light Chain Amyloidosis, probably Gelsolin...
https://connect.mayoclinic.org/comment/163065/
related to my form of Light Chain Amyloidosis
@aman_23_23 Sad to say, you are experiencing what most of us with an rare autoimmune disease...
https://connect.mayoclinic.org/comment/101817/
First, you probably have some for of Amyloidosis ... Karl" Mine is hereditary Gelsolin Amyloidosis ... Hospital of Helsinki, Finland, Boston Amyloidosis
@reagan1mc Hi, Reagan. First, Welcome. 2nd, You have bought a tough one. MCCD is one of...
https://connect.mayoclinic.org/comment/170421/
matter of what is MCCD and what is Amyloidosis ... of MCCD as the beginning stages of Amyloidosis ... Morey Gertz, of Mayo, Amyloidosis Diagnosis ... actually calls MCCD a mutation of Amyloidosis
Welcome to Mayo Connect. I was diagnosed with WM in 2014. I am an IWMF (International...
https://connect.mayoclinic.org/comment/624405/
WM let alone a second diagnosis of Amyloidosis ... specialists who also specialize in Amyloidosis
I have fought high calcium levels most of my 84 years. In the past few years...
https://connect.mayoclinic.org/comment/1054161/
calcium levels. you might ask about MM (Amyloidosis
Sorry for what you both have been going through, it is stressful and frustrating. I hear...
https://connect.mayoclinic.org/comment/874734/
special tests diagnosed him with CARDIAC AMYLOIDOSIS ... marrow biopsy to confirm what type of Amyloidosis ... Amyloidosis is overlooked and it can
I know I say this a lot on these groups. "Stiff heart." and other such issues...
https://connect.mayoclinic.org/comment/102948/
, mine is apparently part of my AL Amyloidosis ... , Or another sort of Amyloidosis, and ... have found many MDs who will say "All amyloidosis
Hi @catalpa, Blood and urine tests can help detect signs of amyloidosis. But from my understanding,...
https://connect.mayoclinic.org/comment/1377181/
urine tests can help detect signs of amyloidosis
You definitely need alcohol septal ablation surgery. I had HOCM and had the surgery. I still...
https://connect.mayoclinic.org/comment/1162426/
I also have cardiac amyloidosis (stiff
Cataracts are, if you have any other signs with them, markers of developing Amyloidosis of some...
https://connect.mayoclinic.org/comment/723440/
signs with them, markers of developing Amyloidosis
My husband has been diagnosis with wild amyloidosis. We live in NJ. I would like to...
https://connect.mayoclinic.org/comment/380266/
husband has been diagnosis with wild amyloidosis
Was diagnosed with Amyloidosis - Kidney on 12-26-2025, had Bone Marrow biopsy that show possible myeloma...
https://connect.mayoclinic.org/comment/1504025/
Was diagnosed with Amyloidosis - Kidney
Had Rituxan and Bendamustine for MZL ,and was discontinued after two cycles due tom intolerance. Oncologist...
https://connect.mayoclinic.org/comment/845626/
for persistent Afib with cardiac amyloidosis
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