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4,144 total results
Comments (3,929)
@tigreyes2004 Hi Genie, I'm Rachel, it's nice to meet you. The best piece of advice I...
you know answers about living with neuropathy ... Have you tried any techniques to help ... PT "doesn't treat neuropathy ... physical exercise and mobility can't help ... neuropathy and keep you from deconditioning
Support Group: Chronic Pain
Posted: Jul 27, 2022
Hello @pacodennis, Welcome to Connect. You are not alone. I'm 79 and this neuropathy crept up...
I'm 79 and this neuropathy crept ... Journey Stories: What's Yours? ... find this older discussion somewhat helpful ... knowing what other members have shared ... times and one thing that I think is helpful
Support Group: Neuropathy
Posted: Jul 27, 2022
If you are able I would suggest a visit with a neurologist and have them order...
have seen so far have been less than helpful ... suggested that it might be a small fiber neuropathy ... Also, from what I have read small fiber ... neuropathy is idiopathic more than ... time, meaning they don't know what
Support Group: Neuropathy
Posted: Jul 26, 2022
My large peripheral nerves were damaged by vasculitis. I have pain and the tingling and the...
that happens when you have peripheral neuropathy ... Nothing really helps except I sometimes ... I don’t know what else to say.
Support Group: Neuropathy
Posted: Jul 24, 2022
Hi! Love your statement about accepting your pain each morning! It is such a good point...
point as there seems to be no cure for neuropathy ... attitude and trying different things to help ... I will continue to share what I try ... in hopes it helps someone else!
Support Group: Neuropathy
Posted: Jul 21, 2022
I must be the fortunate one. I’m in 900mg, 300mg x 3 and I don’t have...
Remember that with neuropathy you get ... That what neuropathy is. ... Gabapentin does help a lot for me.
Support Group: Neuropathy
Posted: Jul 16, 2022
Ask your doctor if they can put u on Bupropn, clonazepam and Ropinirole ( at night)....
I have small fiber sensory neuropathy ... along with Autonomic Neuropathy ( hence ... This is what has giving me relief and ... My heart goes out to you because neuropathy ... I hope this helps and gives you some
Support Group: Neuropathy
Posted: Jul 15, 2022
mhuddy4 - The braces are a prescription. I was in PT at the time. My physical...
therapist felt that the AFO's would be helpful ... walk-on flex ottobock, you will see what ... I am only providing info on what works ... for me with my type of neuropathy. ... my phys therapist, they will know what
Support Group: Neuropathy
Posted: Jul 13, 2022
Hello @flag64, Welcome to Connect. I'm sorry to hear you haven't found much relief yet for...
journey trying to find something that helps ... The best thing you can do to help is ... From my perspective I do believe diet helps ... neuropathy. ... What got me started eating healthier
Support Group: Neuropathy
Posted: Jul 10, 2022
Polyneuropathy, all of it non-diabetic. What would you like to know about it? It was caused...
What would you like to know about it ... Neuropathy is nerve pain and nerve pain ... Cyclobenzaprine or Tizanidine is helpful ... goes hand in hand with nerve pain (neuropathy ... dental issues can be the cause of neuropathy
Support Group: Neuropathy
Posted: Jul 10, 2022
Hi Evie777 - I see the topic of Mast Cell Activation Syndrome (MCAS) has been raised...
I may share what little I know, as well ... as what little I know is little understood ... 2nd shot, for I fear of getting a neuropathy ... You may wish to look online at what ... other hallmarks but sharing in case it helps
Support Group: Autoimmune Diseases
Posted: Jul 3, 2022
Welcome @nitsirk, It must be really difficult having such a rare form of neuropathy. For others...
For others who might not know what it ... is... "What is Wartenberg&#39 ... ;s migratory sensory neuropathy? ... Migrant sensory neuropathy (Wartenberg ... good that you found something that helps
Posted: Jul 2, 2022
Hi @lisa2022. I'm so sorry to hear about your difficulties with occipital neuralgia, headaches, jaw and...
I thought that might have been helping ... I was diagnosed with small fiber neuropathy ... Again, not much helped or was a game ... I had to help myself. ... Will you let me know your thoughts on what
Support Group: Brain & Nervous System
Posted: Jun 28, 2022
Welcome @lyndajenn, I'm glad you found Connect in your search. A lot of us have shared...
helps in this discussion that you might ... find helpful - Member Neuropathy Journey ... Stories: What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... different treatments available. -- Neuropathy
Support Group: Neuropathy
Posted: Jun 27, 2022
Hello @chuckc, I would like to add my welcome to Connect along with @njed and others....
it might be something that would be helpful ... also find the following discussion helpful ... --- Member Neuropathy Journey Stories ... : What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Jun 27, 2022
Hello @christine71. I thought it may be helpful to bring in a few other members who...
I thought it may be helpful to bring ... their experience with diagnosis to help ... you make your decision on what should ... connect.mayoclinic.org/discussion/lyme-disease-and-neuropathy ... diagnosis-treatment/drc-20374655 Do you know what
Support Group: Neuropathy
Posted: Jun 18, 2022
Hi Aithnie! Yours is the only comment that came up when I put in CPM. I...
I also now have Peripheral Neuropathy ... The brain business is what has scared ... I don't know if Mayo could help
Support Group: Brain & Nervous System
Posted: Jun 16, 2022
Hello Dillinger, I have severe neuropathy in my hands and forearms from CIDP. I feel quite...
Hello Dillinger, I have severe neuropathy ... experience, so I'm looking for help ... I'd love to hear his story and what
Support Group: Autoimmune Diseases
Posted: Jun 10, 2022
I am so sorry to hear about your children and SFN. I am 52 and was...
pregabalin) and duloxitine for the neuropathy ... I was otld to keep moving no mater what ... I went to Boston for help and found
Support Group: Neuropathy
Posted: Jun 8, 2022